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Systematic overviews of partnership principles and strategies identified from health research about spinal cord injury and related health conditions: A scoping review
CONCLUSION: We provided systematic overviews of principles and strategies for research partnerships. These could be used by researchers and research users who want to work in partnership to plan, conduct and/or disseminate their SCI research. The findings informed the development of the new SCI Integrated Knowledge Translation Guiding Principles (www.iktprinciples.com) and will support the implementation of these Principles within the SCI research system.PMID:35262473 | DOI:10.1080/10790268.2022.2033578
Source: Journal of Spinal Cord Medicine - March 9, 2022 Category: Orthopaedics Authors: Femke Hoekstra Francisca Trigo Kathryn M Sibley Ian D Graham Michael Kennefick Kelly J Mrklas Tram Nguyen Mathew Vis-Dunbar SC. I. Guiding Principles Consensus Panel Heather L Gainforth Source Type: research

COVID-19 Associated Reversible Cerebral Vasoconstriction Syndrome Successfully Treated with Nimodipine and Aspirin
A 31-year-old sexually active, non-smoker female with a past medical history of spina-bifida and idiopathic thoracolumbar scoliosis status post hardware spinal fusion surgery five years ago presented with a one-day history of severe holocranial headaches associated with nausea and visual changes. A thorough neurological examination was intact. She complained of mild cough as well. She had a positive nasopharyngeal swab for SARS-CoV-2 on RT-PCR assay. A comprehensive drug screen including amphetamines, cocaine, nicotine, alcohol, and ecstasy as well as a pregnancy test were negative; coagulation profile was within normal limits.
Source: Journal of Stroke and Cerebrovascular Diseases - April 12, 2021 Category: Neurology Authors: Tarab Mansoor, Ali A. Alsarah, Hossein Mousavi, Javed Elyias, Tarun Girotra, Omar Hussein Tags: Case Report Source Type: research

Sexual Health in the Neurogenic Patient
AbstractPurpose of ReviewIn this review, the current literature addressing sexual health in common neurologic conditions will be summarized. Conditions discussed include stroke, multiple sclerosis, spinal cord injury, and spina bifida.Recent FindingsThere is an increasing awareness of sexual dysfunction in patients with neurologic injury and of the role of sexual therapy in improving quality of life.SummarySexual health in a neurogenic patient is dependent upon a variety of factors. Determining the most influential sources of sexual dysfunction is important for providing effective treatment.
Source: Current Bladder Dysfunction Reports - December 9, 2020 Category: Urology & Nephrology Source Type: research

Prevalence and Cost of Catheters to Manage Neurogenic Bladder
AbstractPurpose of ReviewIn this review, we examine the current literature to address the epidemiology of catheters for managing neurogenic bladder. We will address the epidemiology of conditions associated with neurogenic bladder, including multiple sclerosis, spinal cord injury, Parkinson ’s disease, stroke, and spina bifida. Rates of utilization of various catheter strategies, including indwelling urethral catheter, suprapubic catheter, and intermittent catheterization rates will be reviewed. Lastly, we examine the cost considerations between and within each type of strategy.Recent FindingsManagement strategies for ne...
Source: Current Bladder Dysfunction Reports - August 25, 2018 Category: Urology & Nephrology Source Type: research

Catheter washout solutions for long-term urinary catheterisation in adults: A Cochrane Review Summary
People may require long-term urinary catheterisation for a number of reasons, such as: urinary retention (incomplete emptying of the bladder) caused by benign prostatic hyperplasia (enlarged prostate) or prostate tumour; reduced bladder contractility; or urinary incontinence (involuntary leakage of urine) not amenable to toileting or other method of management. People with conditions such as multiple sclerosis, dementia, stroke, spina bifida, and spinal cord injury may be susceptible to these problems.
Source: International Journal of Nursing Studies - October 26, 2017 Category: Nursing Authors: Ashley J. Shepherd, William Gordon Mackay, Suzanne Hagen Tags: Cochrane Nursing Care Field (CNCF) – Cochrane Review Summary Source Type: research

First Case of Autonomic Dysrefleixa Following Elective Lower Thoracic Spinal Cord Transection in a Spina Bifida Adult
Spinal cord transection is a radical but effective treatment for highly selective cases of symptomatic spinal re-tethering in paraplegic spina bifida patients. Autonomic dysreflexia (AD) is a potentially life-threatening syndrome involving a dysregulated sympathetic discharge reflex commonly seen following cervical and high thoracic spinal cord injury leading to a disconnect between autonomic pathways above and below the lesion that can lead to severe complications including uncontrolled hypertension, bradycardia, stroke, and potentially death.
Source: World Neurosurgery - August 3, 2017 Category: Neurosurgery Authors: Juanita Garces, Mansour Mathkour, Tyler Scullen, Lora Kahn, Erin Biro, Olawale A.R. Sulaiman, Roger Smith, Cuong J. Bui Tags: Case Report Source Type: research

First Case of Autonomic Dysreflexia Following Elective Lower Thoracic Spinal Cord Transection in a Spina Bifida Adult
Spinal cord transection is a radical but effective treatment for highly selective cases of symptomatic spinal retethering in paraplegic spina bifida patients. Autonomic dysreflexia (AD) is a potentially life-threatening syndrome involving a dysregulated sympathetic discharge reflex commonly seen following cervical and high thoracic spinal cord injury, leading to a disconnect between autonomic pathways above and below the lesion that can lead to severe complications including uncontrolled hypertension, bradycardia, stroke, and potentially death.
Source: World Neurosurgery - August 3, 2017 Category: Neurosurgery Authors: Juanita Garces, Mansour Mathkour, Tyler Scullen, Lora Kahn, Erin Biro, Alex Pham, Olawale A.R. Sulaiman, Roger Smith, Cuong J. Bui Tags: Case Report Source Type: research

Fighting for Kennedy: Coping with moyamoya disease
If you happen to be waiting in line at the supermarket with Kennedy Grace Cheshire, you’ll likely leave the store with a whole new group of friends. This outgoing five-year-old can’t resist introducing herself to her fellow shoppers — and then introducing them to each other. “She’s never met a stranger,” says her mother, Amber. Kennedy, who lives in Texas, brought that playful attitude to the East Coast last year when she and her family arrived at Boston Children’s Hospital for evaluation and treatment. At age two, she had been diagnosed with neurofibromatosis 1 (NF1), a genetic condition that causes symptoms...
Source: Thrive, Children's Hospital Boston - March 21, 2017 Category: Pediatrics Authors: Jessica Cerretani Tags: Diseases & Conditions Our Patients’ Stories Dr. Edward Smith moyamoya Moyamoya Disease Program Source Type: news

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