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'How long do you think?' Unresponsive dying patients in a specialist palliative care service: A consecutive cohort study
CONCLUSION: This study provides valuable new knowledge to support clinicians' confidence when responding to the 'how long' question and can inform decision-making at end-of-life. Further research using the AKPS could provide greater certainty for answering 'how long' questions across the illness trajectory.PMID:38654605 | DOI:10.1177/02692163241238903 (Source: Palliative Medicine)
Source: Palliative Medicine - April 24, 2024 Category: Palliative Care Authors: Tricia O'Connor Wai-Man Liu Juliane Samara Joanne Lewis Catherine Paterson Source Type: research

WITHDRAWAL - Administrative Duplicate Publication: Tribute to Derek Doyle and Cynthia Goh
Palliat Med. 2024 Apr 22:2692163241243121. doi: 10.1177/02692163241243121. Online ahead of print.NO ABSTRACTPMID:38646994 | DOI:10.1177/02692163241243121 (Source: Palliative Medicine)
Source: Palliative Medicine - April 22, 2024 Category: Palliative Care Source Type: research

Improving the D etection, A ssessment, M anagement and P revention of D elirium in Hospices (the DAMPen-D study): Feasibility study of a flexible and scalable implementation strategy to deliver guideline-adherent delirium care
CONCLUSIONS: Collection of data on delirium outcomes and guideline-adherence from clinical records is feasible. The signal of patient benefit supports formal evaluation in a large-scale study.PMID:38634231 | PMC:PMC11025298 | DOI:10.1177/02692163241236325 (Source: Palliative Medicine)
Source: Palliative Medicine - April 18, 2024 Category: Palliative Care Authors: Gillian P Jackson Catriona E Jackson Jason W Boland Imogen Featherstone Chao Huang Margaret Ogden Kathryn Sartain Najma Siddiqi Maureen Twiddy Mark Pearson Miriam J Johnson Source Type: research

A palliative care goals model for people with dementia and their family: Consensus achieved in an international Delphi study
CONCLUSION: A new palliative care goals model for people with dementia and their families includes relationship aspects for use by professionals and achieved a consensus among a panel with diverse cultural background. The position of life prolongation in relation to palliative care goals needs further research.PMID:38634232 | PMC:PMC11025301 | DOI:10.1177/02692163241234579 (Source: Palliative Medicine)
Source: Palliative Medicine - April 18, 2024 Category: Palliative Care Authors: Mayumi Nishimura Karen Harrison Dening Elizabeth L Sampson Edison Iglesias de Oliveira Vidal Miharu Nakanishi Nathan Davies Wilson Abreu Sharon Kaasalainen Yvonne Eisenmann Laura Dempsey Kirsten J Moore Sascha R Bolt Judith Mm Meijers Natashe Lemos Dekker Source Type: research

Death education interventions for people with advanced diseases and/or their family caregivers: A scoping review
CONCLUSIONS: This work identified a few potentially effective death education interventions for psychological outcomes for people with advanced cancer or their caregivers. Additional trials are needed to confirm the effectiveness of these interventions.PMID:38634233 | DOI:10.1177/02692163241238900 (Source: Palliative Medicine)
Source: Palliative Medicine - April 18, 2024 Category: Palliative Care Authors: Tong Wang Kin Cheung Huilin Cheng Source Type: research

Improving the D etection, A ssessment, M anagement and P revention of D elirium in Hospices (the DAMPen-D study): Feasibility study of a flexible and scalable implementation strategy to deliver guideline-adherent delirium care
CONCLUSIONS: Collection of data on delirium outcomes and guideline-adherence from clinical records is feasible. The signal of patient benefit supports formal evaluation in a large-scale study.PMID:38634231 | DOI:10.1177/02692163241236325 (Source: Palliative Medicine)
Source: Palliative Medicine - April 18, 2024 Category: Palliative Care Authors: Gillian P Jackson Catriona E Jackson Jason W Boland Imogen Featherstone Chao Huang Margaret Ogden Kathryn Sartain Najma Siddiqi Maureen Twiddy Mark Pearson Miriam J Johnson Source Type: research

A palliative care goals model for people with dementia and their family: Consensus achieved in an international Delphi study
CONCLUSION: A new palliative care goals model for people with dementia and their families includes relationship aspects for use by professionals and achieved a consensus among a panel with diverse cultural background. The position of life prolongation in relation to palliative care goals needs further research.PMID:38634232 | DOI:10.1177/02692163241234579 (Source: Palliative Medicine)
Source: Palliative Medicine - April 18, 2024 Category: Palliative Care Authors: Mayumi Nishimura Karen Harrison Dening Elizabeth L Sampson Edison Iglesias de Oliveira Vidal Miharu Nakanishi Nathan Davies Wilson Abreu Sharon Kaasalainen Yvonne Eisenmann Laura Dempsey Kirsten J Moore Sascha R Bolt Judith Mm Meijers Natashe Lemos Dekker Source Type: research

How do people in prison access palliative care? A scoping review of models of palliative care delivery for people in prison in high-income countries
CONCLUSION: Further research is needed to evaluate prison hospice costs and examine how prison hospices impact compassionate release usage. Beyond the USA, policies might formalise care pathways and recognise best practices. Further investigation to address psychosocial needs of people in prison with life-limiting illnesses and post-death bereavement support is required.PMID:38623718 | DOI:10.1177/02692163241242647 (Source: Palliative Medicine)
Source: Palliative Medicine - April 16, 2024 Category: Palliative Care Authors: Emma Gilbert Nick De Viggiani Joana de Sousa Martins Tanuka Palit Jessica Sears Daniel Knights Audrey Roulston Mary Turner Lucy E Selman Source Type: research

Experiences with advance care planning in amyotrophic lateral sclerosis: Qualitative longitudinal study with people with amyotrophic lateral sclerosis and their family carers
CONCLUSION: This study emphasizes how factors such as coping with the disease and relational dynamics shape individuals' thoughts about future care over time and how psychological, social, and medical factors are interwoven in advance care planning. The findings advocate for a process-oriented perspective, portraying advance care planning as an ongoing dialog, encompassing the needs, concerns, and emotions of both people with amyotrophic lateral sclerosis and their family carers.PMID:38610119 | DOI:10.1177/02692163241242320 (Source: Palliative Medicine)
Source: Palliative Medicine - April 13, 2024 Category: Palliative Care Authors: Isabel Vandenbogaerde Lieve Van den Block Luc Deliens Emma Carduff Agnes van der Heide Jan De Bleecker Aline De Vleminck Source Type: research

Telephone advice lines for adults with advanced illness and their family carers: a qualitative analysis and novel practical framework
CONCLUSIONS: Our novel evidence-based practical framework could be transformative for service design/delivery, as it presents key considerations relating to the various elements of advice lines that may impact on the patient/carer experience.PMID:38600058 | DOI:10.1177/02692163241242329 (Source: Palliative Medicine)
Source: Palliative Medicine - April 10, 2024 Category: Palliative Care Authors: Sophie Pask Allen Omoruyi Ahmed Mohamed Rachel L Chambers Phillippa G McFarlane Therese Johansson Rashmi Kumar Andy Woodhead Ikumi Okamoto Stephen Barclay Irene J Higginson Katherine E Sleeman Fliss Em Murtagh Source Type: research

A scoping review of guidelines and frameworks for advance care planning for adolescents and young adults with life-limiting or life-threatening conditions
CONCLUSIONS: Results highlight the importance of engaging adolescents and young adults in advance care planning and considering their unique needs when initiating and framing these discussions. Our findings can be used by healthcare professionals to inform advance care planning in this group.PMID:38600067 | DOI:10.1177/02692163241242331 (Source: Palliative Medicine)
Source: Palliative Medicine - April 10, 2024 Category: Palliative Care Authors: Hannah Linane Bhavana Tanjavur Lindsay Sullivan Source Type: research