What outcomes do studies use to measure the impact of prognostication on people with advanced cancer? Findings from a systematic review of quantitative and qualitative studies
CONCLUSION: Outcome reporting and measurement varied markedly across the studies. A standardised approach to outcome reporting in studies of prognosis is necessary to enhance data synthesis, improve clinical practice and better align with stakeholders' priorities.PMID:37586031 | DOI:10.1177/02692163231191148 (Source: Palliative Medicine)
Source: Palliative Medicine - August 16, 2023 Category: Palliative Care Authors: Caitlin Spooner Bella Vivat Nicola White Andrea Bruun Gudrun Rohde Pei Xing Kwek Patrick Stone Source Type: research

What outcomes do studies use to measure the impact of prognostication on people with advanced cancer? Findings from a systematic review of quantitative and qualitative studies
CONCLUSION: Outcome reporting and measurement varied markedly across the studies. A standardised approach to outcome reporting in studies of prognosis is necessary to enhance data synthesis, improve clinical practice and better align with stakeholders' priorities.PMID:37586031 | DOI:10.1177/02692163231191148 (Source: Palliative Medicine)
Source: Palliative Medicine - August 16, 2023 Category: Palliative Care Authors: Caitlin Spooner Bella Vivat Nicola White Andrea Bruun Gudrun Rohde Pei Xing Kwek Patrick Stone Source Type: research

What outcomes do studies use to measure the impact of prognostication on people with advanced cancer? Findings from a systematic review of quantitative and qualitative studies
CONCLUSION: Outcome reporting and measurement varied markedly across the studies. A standardised approach to outcome reporting in studies of prognosis is necessary to enhance data synthesis, improve clinical practice and better align with stakeholders' priorities.PMID:37586031 | DOI:10.1177/02692163231191148 (Source: Palliative Medicine)
Source: Palliative Medicine - August 16, 2023 Category: Palliative Care Authors: Caitlin Spooner Bella Vivat Nicola White Andrea Bruun Gudrun Rohde Pei Xing Kwek Patrick Stone Source Type: research

Motor neurone disease: A point-prevalence study of patient reported symptom prevalence, severity and palliative care needs
CONCLUSIONS: Patients with motor neurone disease report high symptom burden. A validated motor neurone disease-specific symptom assessment tool is needed to accurately assess patients, including important variations in symptom clusters according to phenotype. Further research must focus on evidence-based treatment guidelines for symptoms experienced commonly and severely.PMID:37553906 | DOI:10.1177/02692163231191545 (Source: Palliative Medicine)
Source: Palliative Medicine - August 9, 2023 Category: Palliative Care Authors: Fiona Runacres Susan Mathers Sarah Cm Lee Rowan Hearn Sonia Gregory Natasha Bear Samar Aoun Source Type: research

Motor neurone disease: A point-prevalence study of patient reported symptom prevalence, severity and palliative care needs
CONCLUSIONS: Patients with motor neurone disease report high symptom burden. A validated motor neurone disease-specific symptom assessment tool is needed to accurately assess patients, including important variations in symptom clusters according to phenotype. Further research must focus on evidence-based treatment guidelines for symptoms experienced commonly and severely.PMID:37553906 | DOI:10.1177/02692163231191545 (Source: Palliative Medicine)
Source: Palliative Medicine - August 9, 2023 Category: Palliative Care Authors: Fiona Runacres Susan Mathers Sarah Cm Lee Rowan Hearn Sonia Gregory Natasha Bear Samar Aoun Source Type: research