Experiences with advance care planning in amyotrophic lateral sclerosis: Qualitative longitudinal study with people with amyotrophic lateral sclerosis and their family carers

CONCLUSION: This study emphasizes how factors such as coping with the disease and relational dynamics shape individuals' thoughts about future care over time and how psychological, social, and medical factors are interwoven in advance care planning. The findings advocate for a process-oriented perspective, portraying advance care planning as an ongoing dialog, encompassing the needs, concerns, and emotions of both people with amyotrophic lateral sclerosis and their family carers.PMID:38610119 | DOI:10.1177/02692163241242320

Source: Palliative Medicine - April 13, 2024 Category: Palliative Care Authors: Isabel Vandenbogaerde Lieve Van den Block Luc Deliens Emma Carduff Agnes van der Heide Jan De Bleecker Aline De Vleminck Source Type: research