NIH Rare Disease Day 2015
Presented by: ORDR, NIHCategory: ConferencesAired date: 02/27/2015 (Source: Videocast - All Events)
Source: Videocast - All Events - March 3, 2015 Category: Journals (General) Tags: Past Events Source Type: video
National Center for Advancing Translational Sciences Advisory Council/Cures Acceleration Network Review Board - January 2015
The January 15, 2015, joint meeting of the National Center for Advancing Translational Sciences Advisory Council and the Cures Acceleration Network (CAN) Review Board will feature presentations by NCATS leadership, the CAN Review Board and invited guests. Presentations will include a Director’s Report, an overview and specific details on recent activities of the Rare Diseases Clinical Research Network, as well as CTSA program updates and Council/CAN Review Board discussions. A Council subcommittee also will report on medical technologies. In addition, NCATS staff will present Council Concept Clearances of proposed initia...
Source: Videocast - All Events - December 23, 2014 Category: Journals (General) Tags: Upcoming Events Source Type: video
NIH Rare Disease Day 2015
A day with speakers and posters to promote awareness and give updates in the world of rare diseases.For more information go to http://rarediseases.info.nih.gov/news-and-events/pages/28/rare-disease-dayAir date: 2/27/2015 8:00:00 AM (Source: Videocast - All Events)
Source: Videocast - All Events - May 27, 2014 Category: Journals (General) Tags: Upcoming Events Source Type: video
Rare Disease Day 2014
Presented by: Office of Rare Diseases Research, NIHCategory: ConferencesAired date: 02/28/2014 (Source: Videocast - All Events)
Source: Videocast - All Events - March 5, 2014 Category: Journals (General) Tags: Past Events Source Type: video
Rare Disease Day 2014
Rare Disease Day at NIH
On February 28, 2014, the National Institutes of Health (NIH) will celebrate the seventh annual Rare Disease Day with a day-long celebration and recognition of the various rare diseases research activities supported by the NIH Office of Rare Diseases Research, the NIH Clinical Center, other NIH Institutes and Centers; the Food and Drug Administration’s Office of Orphan Product Development; other Federal Government agencies; the National Organization for Rare Disorders; and the Genetic Alliance. Attendance is free and open to the public.
In addition to the various scheduled talks (see agenda on w...
Source: Videocast - All Events - January 27, 2014 Category: Journals (General) Tags: Upcoming Events Source Type: video
National Center for Advancing Translational Sciences Advisory Council/Cures Acceleration Network Review Board
The January 16, 2014 joint meeting of the National Center for Advancing Translational Sciences Advisory Council and the Cures Acceleration Network (CAN) Review Board will feature presentations by NCATS leadership and invited guests. Presentations will include a Director’s Report, a report from a CAN Review Board meeting on Flexible Research Authority, a portfolio analysis of current NCATS activities, an overview of advancements in rare disease research, and a discussion of pediatric study-researcher matching. Council subcommittees also will report on 1) patient engagement; 2) partnerships with pharmaceutical and biotechn...
Source: Videocast - All Events - January 2, 2014 Category: Journals (General) Tags: Upcoming Events Source Type: video
Investigational New Drug (IND) Applications: What You Need to Know for Successful Interactions with the FDA
An educational program of the NIH Clinical Center-FDA CDER Joint Task Force emphasizing regulatory requirements for clinical trials of new and repurposed drugs, with a special focus on rare diseases.
Target Audience:
Clinical investigators, clinical research study coordinators, clinical and translational research scientists and trainees.
Objectives:
• To provide training in FDA regulations for NIH investigators involved in phase I and phase II clinical trials of investigational drugs, emphasizing safety considerations in the early phases of drug development.
• To describe the IND-enabling elements of non-clin...
Source: Videocast - All Events - November 7, 2013 Category: Journals (General) Tags: Upcoming Events Source Type: video
A New Fabric for Clinical Research: Application to the Pain Problem
The Stephen E. Straus Distinguished Lecture in the Science of Complementary Health Therapies series was established to honor Dr. Straus, the founding director of the National Center for Complementary and Alternative Medicine.
Dr. Straus built a comprehensive research enterprise, championing the efforts to establish the efficacy and safety of CAM practices while upholding the rigorous standards of science for which the NIH is known. Under his leadership, CAM research at NIH grew threefold, facilitating his vision of an evidence-based integrative approach to health care for the benefit of the public. An internationally reco...
Source: Videocast - All Events - October 28, 2013 Category: Journals (General) Tags: Upcoming Events Source Type: video
Pre-Application Meeting for RFA-TR-13-002 "Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases Clinical Research Network (U54)"
Presented by: Rashmi Gopal-Srivastava, Ph.D. and Stephen C. Groft, Pharm.D., ORDR/NCATSCategory: SpecialAired date: 09/25/2013 (Source: Videocast - All Events)
Source: Videocast - All Events - September 26, 2013 Category: Journals (General) Tags: Past Events Source Type: video
Pre-Application Meeting for RFA-TR-13-002 "Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases Clinical Research Network (U54)"
The Office of Rare Diseases Research (ORDR), National Center for Advancing Translational Sciences, will host a public pre-application meeting for investigators planning to submit applications in response to RFA-TR-13-002, entitled "Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases Clinical Research Network (U54)".
The purpose of this informational pre-application meeting is to provide prospective applicants with an overview presentation of the RDCRC funding opportunity announcement (FOA) followed by an exchange of questions and answers pertinent to preparing applications in response to this FOA with ...
Source: Videocast - All Events - September 4, 2013 Category: Journals (General) Tags: Upcoming Events Source Type: video
Organs-on-Chips as Tools for Predictive Efficacy and Toxicology Assessment of Therapeutics & The NIH Genetic Testing Registry
Audio PodcastPresented by: Office of Rare Diseases Research, the National Eye Institute, National Institute of Mental Health, and the NIH Office of DirectorAired date: 4/4/2013 2:00:00 PM (Source: Videocast - All Events)
Source: Videocast - All Events - April 19, 2013 Category: Journals (General) Tags: Podcasts Source Type: video
Organs-on-Chips as Tools for Predictive Efficacy and Toxicology Assessment of Therapeutics & The NIH Genetic Testing Registry
Presented by: Office of Rare Diseases Research, the National Eye Institute, National Institute of Mental Health, and the NIH Office of DirectorCategory: BiospecimensAired date: 04/04/2013 (Source: Videocast - All Events)
Source: Videocast - All Events - April 8, 2013 Category: Journals (General) Tags: Past Events Source Type: video
Organs-on-Chips as Tools for Predictive Efficacy and Toxicology Assessment of Therapeutics & The NIH Genetic Testing Registry
Audio PodcastPresented by: Office of Rare Diseases Research, the National Eye Institute, National Institute of Mental Health, and the NIH Office of DirectorAired date: 4/4/2013 2:00:00 PM Eastern Time (Source: Videocast Podcasts)
Source: Videocast Podcasts - April 4, 2013 Category: Journals (General) Authors: National Institutes of Health Tags: Health Source Type: video
Organs-on-Chips as Tools for Predictive Efficacy and Toxicology Assessment of Therapeutics & The NIH Genetic Testing Registry
Video Podcast (CC)Presented by: Office of Rare Diseases Research, the National Eye Institute, National Institute of Mental Health, and the NIH Office of DirectorAired date: 4/4/2013 2:00:00 PM Eastern Time (Source: Videocast Podcasts)
Source: Videocast Podcasts - April 4, 2013 Category: Journals (General) Authors: National Institutes of Health Tags: Health Source Type: video
NF2: Translating Rare Disease Research to the General Population (NIH Only)
Presented by: Dr. Ashok AsthagiriCategory: NIH OnlyAired date: 02/22/2013 (Source: Videocast - All Events)
Source: Videocast - All Events - March 12, 2013 Category: Journals (General) Tags: Past Events Source Type: video
