CC Grand Rounds: Allergic Disease: Insight into a Common Disease by Studying a Rare Disease
For more information go tohttps://www.cc.nih.gov/about/news/grcurrent.htmlAir date: 10/30/2019 12:00:00 PM (Source: Videocast - All Events)
Source: Videocast - All Events - September 23, 2019 Category: General Medicine Tags: Upcoming Events Source Type: video
Rare Disease Day at NIH 2020
Rare diseases affect an estimated 30 million people in the United States. On February 28, 2020, NIH will host an event to raise awareness about these disorders, the people they affect, and current research collaborations. Sponsored by the National Center for Advancing Translational Sciences (NCATS) and the NIH Clinical Center, the event will feature interactive panel discussions, as well as posters and table exhibits. Participants can share their thoughts, photos, and experiences during the day via social media using the hashtag #RDDNIH.For more information go tohttps://ncats.nih.gov/rdd.Air date: 2/28/2020 8:00:00 AM (Sou...
Source: Videocast - All Events - August 8, 2019 Category: General Medicine Tags: Upcoming Events Source Type: video
NIH Research Festival - Plenary Session II
During this session, we will hear about recent research advances in the areas of immunodeficiency, rare diseases, genetic disorders, and membrane proteins.For more information go tohttps://researchfestival.nih.gov/2018/plenary-sessionsAir date: 9/13/2018 10:00:00 AM (Source: Videocast - All Events)
Source: Videocast - All Events - September 7, 2018 Category: General Medicine Tags: Upcoming Events Source Type: video
Rare Disease Day at NIH 2019
Rare diseases affect an estimated 25 million people in the United States. On February 28, 2019, NIH will host an event to raise awareness about these disorders, the people they affect, and current research collaborations.
Sponsored by the National Center for Advancing Translational Sciences (NCATS) and the NIH Clinical Center, the event will take place:
The event will feature interactive panel discussions, posters, exhibits, and virtual tours of the NIH Clinical Center. Admission is free and open to the public. In association with Global Genes ® , participants are encouraged to wear their favorite pair of jeans. Participa...
Source: Videocast - All Events - April 25, 2018 Category: General Medicine Tags: Upcoming Events Source Type: video
CC Grand Rounds: Contemporary Clinical Medicine: Great Teachers: Clinical Research in Vasculitis: A Model for Studying Rare Diseases
For more information go tohttp://www.cc.nih.gov/about/news/grcurrent.htmlAir date: 3/14/2018 12:00:00 PM (Source: Videocast - All Events)
Source: Videocast - All Events - February 26, 2018 Category: General Medicine Tags: Upcoming Events Source Type: video
The Growing Promise of Gene Therapy Approaches (Day 2)
This two-day workshop will bring together research, regulatory, industry and patient perspectives on the growing emergence of gene therapies and the information necessary to optimize their development and the potential benefits that these new therapies may have for monogenic and rare diseases.Air date: 9/11/2018 8:00:00 AM (Source: Videocast - All Events)
Source: Videocast - All Events - February 1, 2018 Category: General Medicine Tags: Upcoming Events Source Type: video
The Growing Promise of Gene Therapy Approaches (Day 1)
This two-day workshop will bring together research, regulatory, industry and patient perspectives on the growing emergence of gene therapies and the information necessary to optimize their development and the potential benefits that these new therapies may have for monogenic and rare diseases.Air date: 9/10/2018 8:00:00 AM (Source: Videocast - All Events)
Source: Videocast - All Events - February 1, 2018 Category: General Medicine Tags: Upcoming Events Source Type: video
NIH Rare Disease Day 2018
Full-day meeting with presentations from various speakers on rare diseases.For more information go tohttps://ncats.nih.gov/rddAir date: 3/1/2018 8:00:00 AM (Source: Videocast - All Events)
Source: Videocast - All Events - December 12, 2017 Category: General Medicine Tags: Upcoming Events Source Type: video
NCATS Toolkit for Patient-Focused Therapy Development: Demonstration and Dissemination Meeting
The NIH National Center for Advancing Translational Sciences will launch a new, centralized online resource portal that will enable patient groups to make progress along the entire translational science spectrum, no matter where they might be in that process.
The NCATS Toolkit for Patient-Focused Therapy Development: Demonstration and Dissemination Meeting will take place from 9 a.m. to 4 p.m. ET on the NIH campus in Bethesda, Maryland. The event will enable the rare diseases and other patient communities to learn more about the toolkit, including how it can streamline their therapeutic development activities. Participants...
Source: Videocast - All Events - August 10, 2017 Category: General Medicine Tags: Upcoming Events Source Type: video
Rare Disease Day 2017
All-day event of rare disease organizations and speakers to bring awareness to rare diseases.Air date: 2/28/2017 8:30:00 AM (Source: Videocast - All Events)
Source: Videocast - All Events - December 6, 2016 Category: Journals (General) Tags: Upcoming Events Source Type: video
National Center for Advancing Translational Sciences Advisory Council/Cures Acceleration Network Review Board
The Sept. 15, 2016, joint meeting of the NCATS Advisory Council and the Cures Acceleration Network (CAN) Review Board will feature presentations by NCATS leadership and invited guests. Topics include NCATS ’ CTSA Program and Office of Rare Diseases Research updates, as well as NIH ’ s Illuminating the Druggable Genome and Stimulating Peripheral Activity to Relieve Conditions programs. In addition, NCATS staff will present proposed initiative concepts for Council/CAN Review Board consideration. For more information, visit: https://ncats.nih.gov/advisory/council and https://ncats.nih.gov/advisory/canboard.For more inform...
Source: Videocast - All Events - August 25, 2016 Category: Journals (General) Tags: Upcoming Events Source Type: video
Clinicopathologic Grand Rounds: Clinical Cases from the NIH Clinical Center :Pathologic Immune Responses to Co-infections in HIV: Two Rare Diseases, One Therapeutic Target
For more information go to https://www.cc.nih.gov/about/news/grcurrent.htmlAir date: 6/1/2016 12:00:00 PM (Source: Videocast - All Events)
Source: Videocast - All Events - May 23, 2016 Category: Journals (General) Tags: Upcoming Events Source Type: video
NIDCD Beyond the Lab, Understanding Communication Disorders
Designed for administrative and support staff as well as scientists, the Beyond the Lab, Understanding Communication Disorders speaker series gives the NIH community an opportunity to learn about the National Institute on Deafness and Other Communication Disorder’s (NIDCD) research and research advances.
Learn about the NIDCD’s Audiology Unit, its contribution to biomedical research and the NIH mission, and its involvement in research evaluating a new therapy for Niemann-Pick disease type C (NPC). NPC is a rare cholesterol storage disorder that primarily affects children and is often fatal by early adulthood. NPC dam...
Source: Videocast - All Events - April 20, 2016 Category: Journals (General) Tags: Upcoming Events Source Type: video
Rare Disease Day 2016
Presented by: ORDR, NIHCategory: ConferencesAired date: 02/29/2016 (Source: Videocast - All Events)
Source: Videocast - All Events - March 2, 2016 Category: Journals (General) Tags: Past Events Source Type: video
Rare Disease Day 2016
Rare Disease Day was established to raise awareness with the public about rare diseases, the challenges encountered by those affected, the importance of research to develop diagnostics and treatments, and the impact of these diseases on patients' lives.
Air date: 2/29/2016 8:00:00 AM (Source: Videocast - All Events)
Source: Videocast - All Events - December 1, 2015 Category: Journals (General) Tags: Upcoming Events Source Type: video
