Thursday, March 1, 2018 -- Rare Disease Day at NIH 2018
Location: Building 10, Masur AuditoriumStart: March 01, 2018 @ 11:00 AMEnd: March 01, 2018 @ 12:00 PM (Source: NHGRI Events)
Source: NHGRI Events - January 17, 2018 Category: Genetics & Stem Cells Source Type: events
Rare Disease Day at NIH
Date: Thursday, 03 01, 2018; Speaker: Christopher P. Austin, M.D.,, Director, NCATS, NIH; James K. Gilman, M.D., CEO, NIH Clinical Center; Petra Kaufmann, M.D., M.Sc., Director, Office of Rare Diseases Research, NCATS, NIH; Anne Pariser, M.D., Deputy Director, Office of Rare Diseases Research, NCATS, NIH; Chester B. Whitley, Ph.D., M.D., Principal Investigator, Lysosomal Disease Network; Marshall Summar, M.D., Chairman of the Board of Directors, National Organization of Rare Disorders; Margie Frazier, Ph.D., LISW-S, Executive Director, Batten Disease Support and Research Association; Theresa V. Strong, Ph.D., Co-Founder an...
Source: NIH Calendar of Events - December 22, 2017 Category: American Health Source Type: events
SMi & #39;s 7th annual Orphan Drugs and Rare Diseases UK Conference
18 –19 October 2017, London, United Kingdom (Source: Scientific and Medical Events on Global Events List)
Source: Scientific and Medical Events on Global Events List - October 11, 2017 Category: Science Source Type: events
SMi & #39;s 7th annual Orphan Drugs and Rare Diseases UK 2017 Conference
18 –19 October 2017, London, United Kingdom (Source: Scientific and Medical Events on Global Events List)
Source: Scientific and Medical Events on Global Events List - October 11, 2017 Category: Science Source Type: events
Directorate-General Research & Innovation at the European Health Forum Gastein - 4 October 2017, Bad Hofgastein, Austria
DG Research & Innovation invites you to take part in the two interactive sessions organised at the European Health Forum Gastein.
Workshop on 4 October: "Personalised healthcare: How rare diseases pave the way", will focus on rare diseases research and care in Europe, the use of "omics" & Real-World Data, health data infrastructures and health data policy.
Session on 5 October: "Environment & Health: Building the evidence base for policy", will highlight the important role research plays in establishing and maintaining a strong evidence base for policy-making in the steadily evolving area of environment and...
Source: EUROPA - Research and Innovation: Events - September 29, 2017 Category: Research Tags: Health - D72D1707-FE0F-3C39-4E55830C194C2E7C Source Type: events
NCATS Toolkit for Patient-Focused Therapy Development: Demonstration and Dissemination Meeting
Date: Friday, 09 08, 2017; Speaker: Ronald Bartek, Friedreich ’s Ataxia Research Alliance ; Annie Kennedy, Parent Project Muscular Dystrophy; Petra Kaufmann, M.D., Director, Office of Rare Diseases Research, NCATS; Megan O’Boyle, Phelan-McDermid Syndrome Foundation; Jennifer Farmer, M.S., C.G.C., Friedreich’s Ataxia Research Alliance; Kenneth Hobby, Cure SMA; Building: Building 45 (Natcher Building) (Source: NIH Calendar of Events)
Source: NIH Calendar of Events - July 18, 2017 Category: American Health Source Type: events
eStandards Final Conference - 26-27 June 2017, Brussels, Belgium
The eStandards consortium is pleased to announce the eStandards Final Conference. This two-day event will take place in Brussels hosted by CEN TC251 at the CEN-CENELEC premises, Avenue Marnix 17, on June 26-27, 2017.
You are invited to think of a global eHealth ecosystem where we all enjoy timely safe and informed health anytime anywhere and interoperability assets fuel creativity, entrepreneurship and innovation.
In this eStandards conference, you will be part of in-depth discussions on the future of eHealth Standards that really impact the digital future of health. We will present the core elements of the final eStan...
Source: EUROPA - Research and Innovation: Events - June 27, 2017 Category: Research Tags: Health - D72D1707-FE0F-3C39-4E55830C194C2E7C Information and Communication Technologies (ICT) - 20C389EF-F27F-C500-874F52AB1E2A3208 Horizon 2020 - 719491AD-9C69-558D-B05B8AC79345ED08 Innovation Union - C49BB15F-ABF5-3ECB-569A321E2D77A13F Source Type: events
6th Orphan Drugs and Rare Diseases Europe 2017
15 –16 May 2017, Berlin, Germany (Source: Scientific and Medical Events on Global Events List)
Source: Scientific and Medical Events on Global Events List - May 9, 2017 Category: Science Source Type: events
Gene Therapy for Rare Diseases
11 April 2017, New York, United States (Source: Scientific and Medical Events on Global Events List)
Source: Scientific and Medical Events on Global Events List - March 30, 2017 Category: Science Source Type: events
Orphan Drugs & amp; Rare Diseases Global Congress 2017 Europe
8 –10 March 2017, London, United Kingdom (Source: Scientific and Medical Events on Global Events List)
Source: Scientific and Medical Events on Global Events List - February 26, 2017 Category: Science Source Type: events
Monday, February 27, 2017 -- Rare Disease Day at NIH
Rare Disease Day takes place worldwide on the last day in February to raise awareness among policymakers and the public about rare diseases and their impact on patients' lives. Each year, NCATS and the NIH Clinical Center sponsor Rare Disease Day at NIH as part of this global observance.Location: Building 10, Masur AuditoriumStart: February 27, 2017 @ 08:30 AMEnd: February 27, 2017 @ 04:00 PM (Source: NHGRI Events)
Source: NHGRI Events - January 3, 2017 Category: Genetics & Stem Cells Source Type: events
Rare Disease Day at NIH
Date: Monday, 02 27, 2017; Speaker: Christopher P. Austin, M.D., Director, National Center for Advancing Translational Sciences, NIH; Petra Kaufmann, M.D., M.Sc., Director, Office of Rare Diseases Research and Division of Clinical Innovation, National Center for Advancing Translational Sciences, NIH; Anthony Fauci, M.D., Director, National Institute of Allergy and Infectious Diseases, NIH; Max G. Bronstein, Senior Director, Advocacy& Science Policy, EveryLife Foundation for Rare Diseases; Scott E. Shirley, Executive Director, Uplifting Athletes; Nicole Boice, Founder and CEO, Global Genes; Building 10 (Clinical Center); Ma...
Source: NIH Calendar of Events - December 22, 2016 Category: American Health Source Type: events
3rd IRDiRC Conference - 8-9 February 2017, Paris, France
The 3rd conference of the International Rare Diseases Research Consortium (IRDiRC) will take place February 8-9, 2017 in Paris, France, at the conference center of Université Pierre et Marie Curie (UPMC) Sorbonne Universités, Jussieu.
Five years have passed since the initial launch of IRDiRC in 2011 and considerable advances have been made in rare diseases research. IRDiRC 2017 conference presents a unique opportunity to reflect upon this progress, confront barriers, and together, form new collaborations to take on challenges posed by rare diseases.
Past conferences were held in Dublin, Ireland, and Shenzhen,...
Source: EUROPA - Research and Innovation: Events - December 16, 2016 Category: Research Tags: Health - D72D1707-FE0F-3C39-4E55830C194C2E7C Life sciences - 7DB37216-D9A7-5F19-1F4B02B58D353C4B Horizon 2020 - 719491AD-9C69-558D-B05B8AC79345ED08 International Cooperation - 5BF57941-E740-571C-B4E5909CCF039C53 Source Type: events
TVLPF-The 100,000 Genomes Project: a new Genomic Medicine Service for patients with Rare Diseases
Starts on : Jun 28, 2016 at 19:00 Ends on : Jun 28, 2016 21:00 Where: John Lister Postgraduate Centre, Wexham Park Hospital Slough (Source: Royal Pharmaceutical Society Events)
Source: Royal Pharmaceutical Society Events - June 1, 2016 Category: Drugs & Pharmacology Tags: Talk Source Type: events
8th European Conference on Rare Diseases and Orphan Products
26–28 May 2016, Edinburgh, United Kingdom (Source: Scientific and Medical Events on Global Events List)
Source: Scientific and Medical Events on Global Events List - May 24, 2016 Category: Science Source Type: events
