Rare Disease Day at NIH

Date: Thursday, 03 01, 2018; Speaker: Christopher P. Austin, M.D.,, Director, NCATS, NIH; James K. Gilman, M.D., CEO, NIH Clinical Center; Petra Kaufmann, M.D., M.Sc., Director, Office of Rare Diseases Research, NCATS, NIH; Anne Pariser, M.D., Deputy Director, Office of Rare Diseases Research, NCATS, NIH; Chester B. Whitley, Ph.D., M.D., Principal Investigator, Lysosomal Disease Network; Marshall Summar, M.D., Chairman of the Board of Directors, National Organization of Rare Disorders; Margie Frazier, Ph.D., LISW-S, Executive Director, Batten Disease Support and Research Association; Theresa V. Strong, Ph.D., Co-Founder and Director of Research Programs, Foundation for Prader-Willi Research; Salvatore La Rosa, Vice President, Research and Development, Children ’s Tumor Foundation; Kathleen Brewer, Founder and President, Erdheim-Chester Disease (ECD) Global Alliance; James O’Leary, M.B.A., Chief Innovation Officer, Genetic Alliance; Philip John (P.J.) Brooks, Ph.D., Program Director, Division of Clinical Innovation, NCATS, NIH; Maria Kefalas, Co-Founde r, Calliope Joy Foundation; Kristin Smedley, President, Curing Retinal Blindness Foundation; Peter Marks, M.D., Ph.D., Director, Center for Biologics Evaluation and Research, Food and Drug Administration; Building 10 (Clinical Center); Masur Auditorium; Videocast Event
Source: NIH Calendar of Events - Category: American Health Source Type: events