Gaucher Disease: How a Rare Disease Provides a Window into Common Neurodegenerative Disorders
Date: Wednesday, 11 04, 2020; Speaker: Ellen Sidransky, M.D., Chief and Senior Investigator Medical Genetics Branch, NHGRI, NIH; Building: Building 10 (Clinical Center); Videocast Event (Source: NIH Calendar of Events)
Source: NIH Calendar of Events - October 24, 2020 Category: American Health Source Type: events
Rare Disease Day at NIH 2020
Date: Friday, 02 28, 2020; Speaker: Dr. Christopher P. Austin, Director, National Center for Advancing Translational Sciences; Dr. James K. Gilman, CEO, NIH Clinical Center; Dr. Anne R. Pariser, Director, ORDR, NCATS/NIH; Building: Building 45 (Natcher Building); Auditorium; Videocast Event (Source: NIH Calendar of Events)
Source: NIH Calendar of Events - January 14, 2020 Category: American Health Source Type: events
RE(ACT) congress – IRDiRC conference - 11-14 March 2020, Berlin, Germany
Join a major event on rare diseases in 2020: The RE(ACT) Congress and IRDiRC Conference, 11-14 March 2020, Meliá Berlin Hotel, Berlin.
Young and professional scientists, patients & patient representatives, and other rare diseases stakeholders are welcome to discuss latest cutting-edge research, innovation, and policy with the rare disease leaders.
The scientific program -inspired by IRDiRC principles, achievements, and activities foreseen in 2020- encompasses topics like diagnosis & artificial intelligence, molecular etiology, innovative clinical trials, patient engagement and drugs for all.
Blackswan Foun...
Source: EUROPA - Research and Innovation: Events - December 6, 2019 Category: Research Tags: Health - D72D1707-FE0F-3C39-4E55830C194C2E7C Information and Communication Technologies (ICT) - 20C389EF-F27F-C500-874F52AB1E2A3208 Life sciences - 7DB37216-D9A7-5F19-1F4B02B58D353C4B Horizon 2020 - 719491AD-9C69-558D-B05B8AC79345ED08 Environment Source Type: events
RE(ACT) congress – IRDiRC conference - 11-14 March 2020, Meliá Berlin Hotel, Berlin, Germany
Join a major event on rare diseases in 2020: The RE(ACT) Congress and IRDiRC Conference, 11-14 March 2020, Berlin - Germany.
Young and professional scientists, patients & patient representatives, and other rare diseases stakeholders are welcome to discuss latest cutting-edge research, innovation, and policy with the rare disease leaders.
The scientific program -inspired by IRDiRC principles, achievements, and activities foreseen in 2020- encompasses topics like diagnosis & artificial intelligence, molecular etiology, innovative clinical trials, patient engagement and drugs for all.
Blackswan Foundation and IRDi...
Source: EUROPA - Research and Innovation: Events - December 6, 2019 Category: Research Tags: Health - D72D1707-FE0F-3C39-4E55830C194C2E7C Information and Communication Technologies (ICT) - 20C389EF-F27F-C500-874F52AB1E2A3208 Life sciences - 7DB37216-D9A7-5F19-1F4B02B58D353C4B Horizon 2020 - 719491AD-9C69-558D-B05B8AC79345ED08 Environment Source Type: events
CC Grand Rounds: Allergic Disease: Insight into a Common Disease by Studying a Rare Disease
Date: Wednesday, 10 30, 2019; Speaker: Pamela A. Guerrerio, MD, PhD, Chief, Food Allergy Research Unit, , Laboratory of Allergic Diseases, NIAID; Building: Building 10 (Clinical Center); Lipsett Amphitheater; CME Credit; Videocast Event (Source: NIH Calendar of Events)
Source: NIH Calendar of Events - September 20, 2019 Category: American Health Source Type: events
Methods for Studying Treatments for Rare Diseases
Date: Tuesday, 09 24, 2019; Speaker: Joshua Gagne, Pharm.D., Sc.D., Associate Professor, Division of Pharmacoepidemiology and Pharmacoeconomics, Harvard T.H. Chan School of Public Health; Webinar; https://epi.grants.cancer.gov/events/rare-cancer/i (Source: NIH Calendar of Events)
Source: NIH Calendar of Events - August 21, 2019 Category: American Health Source Type: events
Designing Clinical Trials for Rare Diseases
Date: Friday, 03 15, 2019; Speaker: Brian Feldman, MD, Senior Scientist and Head, Division of Rheumatology, The Hospital for Sick Child; Building 10; 12S233 (Source: NIH Calendar of Events)
Source: NIH Calendar of Events - March 7, 2019 Category: American Health Source Type: events
Cracking the Code of Rare Diseases: Understanding Mechanisms and Developing new Therapeutic Options
Date: Tuesday, 03 12, 2019; Speaker: Aris N. Economides, Ph.D., Vice President – Research, Regeneron Pharmaceuticals, Inc, Cofounder& Head of Functional Modeling, Regeneron Genetics Center; Building: Building 4; 433 (Source: NIH Calendar of Events)
Source: NIH Calendar of Events - February 28, 2019 Category: American Health Source Type: events
Twitter Chat on Rare Diseases
Date: Friday, 02 22, 2019; Speaker: Francis S. Collins, M.D., Ph.D., Director, NIH; Christopher P. Austin, M.D., Director, NCATS, NIH; James K. Gilman, M.D., CEO, NIH Clinical Center; Anne R. Pariser, M.D., Director, Office of Rare Diseases Research, NCATS, NIH; Building: Building 1 (Source: NIH Calendar of Events)
Source: NIH Calendar of Events - January 22, 2019 Category: American Health Source Type: events
Understanding Leptin Physiology through Rare Disease Research
Date: Friday, 01 11, 2019; Speaker: Rebecca Brown, M.D., M.H.Sc., Lasker Clinical Investigator, NIDDK; 10-CRC; FAES 1&2 (Source: NIH Calendar of Events)
Source: NIH Calendar of Events - January 8, 2019 Category: American Health Source Type: events
Rare Disease Day at NIH
Date: Thursday, 02 28, 2019; Speaker: Christopher P. Austin, M.D., Director, NCATS, NIH; James K. Gilman, M.D., CEO, NIH Clinical Center; Anne R. Pariser, M.D., Director, Office of Rare Diseases Research (ORDR), NCATS, NIH; Tiina K. Urv, Ph.D., Program Director, ORDR, NCATS, NIH; Michael E. Shy, M.D., Director, Division of Neuromuscular Disease and Division of Neurogenetics, University of Iowa; Marc E. Rothenberg, M.D., Ph.D., Principal Investigator, Consortium of Eosinophilic Gastrointestinal Disease Researchers ; Francis S. Collins, M.D., Ph.D., Director, NIH; Eric W.K. Sid, M.D., M.H.A., Presidential Management Intern, ...
Source: NIH Calendar of Events - December 21, 2018 Category: American Health Source Type: events
The Growing Promise of Gene Therapy Approaches
Date: Monday, 08 20, 2018; Speaker: Christopher P. Austin, MD, Director , NCATS/NIH; Wilson Bryan, MD, Director, Office of Tissues& Advanced Therapies, CBER/FDA; Anne Pariser, MD, Director, Office of Rare Diseases Research, NCATS/NIH; Peter Marks, MD, Director, Center for Biologics Evaluation and Research, FDA; Building 10; Masur Auditorium; Videocast Event (Source: NIH Calendar of Events)
Source: NIH Calendar of Events - May 21, 2018 Category: American Health Source Type: events
The Clinical Neuroscience Grand Rounds: 8:30 - 9:00 Dr. Jeanne Billioux, Case Studies of Ebola Survivors seen Through the PREVAIL II In-Depth Neurology Study at the NIH, 9:00 - 10:00 Dr. Peter Williamson, Cryptococcosis: Rare Disease, Common Disease
Date: Tuesday, 05 08, 2018; Speaker: Dr. Jeanne Billioux, NINDS; Dr. Peter Williamson, NIAID; Building: Building 10 (Clinical Center); Lipsett Auditorium ; CME Credit (Source: NIH Calendar of Events)
Source: NIH Calendar of Events - May 3, 2018 Category: American Health Source Type: events
Contemporary Clinical Medicine: Great Teachers: Clinical Research in Vasculitis: A Model for Studying Rare Diseases
Date: Wednesday, 03 14, 2018; Speaker: Peter A. Merkel, MD, MPH Chief, Division of Rheumatology , Professor of Medicine and Epidemiology, University of Pennsylvania ; Building: Building 10 (Clinical Center); Lipsett Amphitheater; CME Credit; Videocast Event (Source: NIH Calendar of Events)
Source: NIH Calendar of Events - March 1, 2018 Category: American Health Source Type: events
Orphan Drugs & amp; Rare Diseases Global Congress 2018 Europe
7 –9 March 2018, London, United Kingdom (Source: Scientific and Medical Events on Global Events List)
Source: Scientific and Medical Events on Global Events List - February 26, 2018 Category: Science Source Type: events
