Coping with Diffuse Intrinsic Pontine Glioma in Children – Findings from an Interview Study on Bereaved Parents
Conclusions Retrospective interview studies in this context are feasible.
Early involvement of the palliative care team may relieve burden from affected
parents. Open communication about death proved helpful for all involved parties,
it may facilitate acceptance of terminal illness and alleviate guilt in
parents.Concepts for an open and empowering communication within families and
between treatment site and families need continuing adjustment. The Palliative
care team may also have a key role regarding early phase trials and molecular
studies. [...] Georg Thieme Verlag Rüdigerstraße 14, 70469 Stuttgart,
GermanyArticle in Thieme eJournals: Table of contents | Abstract | Full text
Source: Klinische Padiatrie - Category: Pediatrics Authors: Radlanski, Kalinka Hartwig, Maite Kordes, Uwe Tags: Original Article Source Type: research
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