Feasibility of collecting patient-generated health data to enhance cancer registry surveillance

ConclusionAugmenting cancer registry data with longitudinally collected PGHD is feasible, although more work is needed to overcome barriers of initial patient recruitment and adoption of online PGHD collection techniques for public health surveillance.Implications for Cancer SurvivorsRegistry data, including PGHD, can provide the medical community with  patient perspectives on treatment effects and quality of life and can offer cancer survivors information about symptom management and advances in research.
Source: Journal of Cancer Survivorship - Category: Cancer & Oncology Source Type: research