Secured web-based video repository for multicenter studies

We developed a novel secured web-based dystonia video repository for the Dystonia Coalition, part of the Rare Disease Clinical Research network funded by the Office of Rare Diseases Research and the National Institute of Neurological Disorders and Stroke. A critical component of phenotypic data collection for all projects of the Dystonia Coalition includes a standardized video of each participant. We now describe our method for collecting, serving and securing these videos that is widely applicable to other studies.

Source: Parkinsonism and Related Disorders - January 19, 2015 Category: Neurology Authors: Ling Yan, Matt Hicks, Korey Winslow, Cynthia Comella, Christy Ludlow, H.A. Jinnah, Ami R. Rosen, Laura Wright, Wendy R. Galpern, Joel S. Perlmutter Source Type: research