“I Could Never Prepare for Something Like the Death of My Own Child”: Parental Perspectives on Preparedness at End of Life for Children with Complex Chronic Conditions

Children with complex chronic conditions (CCCs) have high morbidity and mortality. While these children often receive palliative care services, little is known about parental preparedness for their child ’s end of life (EOL).

Source: Journal of Pain and Symptom Management - July 1, 2020 Category: Palliative Care Authors: Jori F. Bogetz, Anna Revette, Abby R. Rosenberg, Danielle DeCourcey Source Type: research