Despite Prognostic Awareness and Advance Care Planning Parents Feel Unprepared at End of Life for Children with Complex Chronic Conditions (RP420)
Children with complex chronic conditions (CCC) have lifelong, life-threatening health problems with high mortality. With increasing pediatric palliative care availability and advance care planning, little is known about how access to these services influences parental preparedness for their child's end-of-life (EOL).
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Jori Bogetz, Anna Revette, Abby Rosenberg, Joanne Wolfe, Danielle DeCourcey Source Type: research
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