Pennsylvania girl who got lung transplants recovering from more surgery

(Reuters) - A 10-year-old Pennsylvania girl with cystic fibrosis who sparked a national debate about child access to organ donations that led to two lung transplant operations was in recovery on Tuesday after surgery to repair her diaphragm, her family said.
Source: Reuters: Health - Category: Consumer Health News Tags: healthNews Source Type: news

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U.S. health regulators have expanded the use of one of Vertex Pharmaceuticals Inc's cystic fibrosis drugs to include patients aged between 12 months and 24 months.
Source: Reuters: Health - Category: Consumer Health News Tags: healthNews Source Type: news
One of the most engaging areas of research these days is improving drug delivery. Here at Medgadget, we often share news about technological advances in nanomedicine that promise improved delivery to tumor sites, or newly designed gadgets that increa...
Source: Medgadget - Category: Medical Devices Authors: Tags: Critical Care Exclusive Materials Medicine Surgery Source Type: blogs
Conditions:   Cystic Fibrosis;   Iron-deficiency Intervention:   Drug: Ferric carboxymaltose Sponsor:   University of Oxford Not yet recruiting
Source: ClinicalTrials.gov - Category: Research Source Type: clinical trials
This article reviews the current published evidence. Expert opinion: The picture is far from clear concerning the impact of CFTR modulators on lung infections. However, currently, such drugs restore CFTR function incompletely, are most commonly introduced when lung damage is already present, are not suitable for all CF patients and not reimbursed in some areas. Therefore, whatever their eventual anti-infective potential, we need to continue our search for effective anti-pseudomonal therapies for the foreseeable future. PMID: 30101632 [PubMed - as supplied by publisher]
Source: Expert Opinion on Pharmacotherapy - Category: Drugs & Pharmacology Tags: Expert Opin Pharmacother Source Type: research
Conditions:   Cystic Fibrosis;   Iron-deficiency Intervention:   Drug: Ferric carboxymaltose Sponsor:   University of Oxford Not yet recruiting
Source: ClinicalTrials.gov - Category: Research Source Type: clinical trials
Luis Walker, 8, wrote to Vertex Pharmaceuticals saying Orkambi would make him "feel much better".
Source: BBC News | Health | UK Edition - Category: Consumer Health News Source Type: news
In conclusion, CF is associated with poorer QOL in childhood. In order to improve quality of life in CF, the psychiatric conditions of children and adolescents should also be evaluated and their follow-up and treatment should involve a multidisciplinary team approach. PMID: 30102477 [PubMed - in process]
Source: The Turkish Journal of Pediatrics - Category: Pediatrics Authors: Tags: Turk J Pediatr Source Type: research
ConclusionsOur cases highlight that paediatricians should be aware of the clinical presentations of and therapeutic approaches for DRESS syndrome, especially in children receiving long-term antibiotic treatment. The removal of the offending drug is crucial and may be the only life-saving measure. In more aggressive cases, corticosteroid or other immunosuppressive drugs should be considered to achieve the best outcome.
Source: Italian Journal of Pediatrics - Category: Pediatrics Source Type: research
Dartmouth College undergraduate Sam Neff D '21 fights cystic fibrosis (CF) every day by following a strict treatment regimen, by contributing to CF research in Geisel’s Lung Biology Center, and by participating in a clinical trial at Dartmouth-Hitchcock.
Source: News at Dartmouth Medical School - Category: Hospital Management Authors: Tags: Multimedia News Research Video cystic fibrosis Dartmouth undergraduate Home-feature Interaction student research Source Type: news
The U.K.'s National Institute for Health and Care Excellence (NICE) has suspended its review of Vertex's Symkevi for treating cystic fibrosis patients who are homozygous for the F508del mutation, after the biotech did not provide evidence for the agency's appraisal.
Source: PharmaManufacturing.com - Category: Pharmaceuticals Source Type: news
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