Data of the dead participant: what ’s the right thing to do?

by Marieke Bak, MSc, MA, PhD(c) When people die nowadays, they no longer leave behind only physical assets. Their estate includes large amounts of personal data that remain in existence after they pass away. Creating a digital will may be a sensible way to posthumously control digital assets like Facebook pages or Google search histories. However, a recent survey found that the vast majority of us never discuss what should happen to our data after death. When it comes to medical data, particularly those collected in the context of research, the situation is similar.…
Source: blog.bioethics.net - Category: Medical Ethics Authors: Tags: Decision making Featured Posts Genetics Human Subjects Research & IRBs Privacy Research Ethics Science Source Type: blogs