Parent Perspective and Response to Challenges and Priorities for Pediatric Palliative Care Research
We write to express our appreciation for the many tributaries of care and concern around pediatric palliative care research that are reflected in the paper Challenges and Priorities for Pediatric Palliative Care Research (submitted for publication by Drs. Chris Feudtner and Joanne Wolfe – July 2019). We are caregivers whose children and families have been the beneficiaries of pediatric palliative care, and we are dedicated to building awareness of its critical value in our roles as staff and parent members of Courageous Parents Network, a national non-profit whose mission it is t o empower, orient and support parents caring for children with serious illness.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Sandra Clancy, Blyth Lord, Michelle Moon, Brenda Murray, Kerri Padgett, Bob Searle, Jennifer Siedman, Barbara Swoyer Source Type: research