Big Data and Health Research —The Governance Challenges in a Mixed Data Economy
AbstractDenmark is a society that has already moved towards Big Data and a Learning Health Care System. Data from routine healthcare has been registered centrally for years, there is a nationwide tissue bank, and there are numerous other available registries about education, employment, housing, pollution, etcetera. This has allowed Danish researchers to study the link between exposures, genetics and diseases in a large population. This use of public registries for scientific research has been relatively uncontroversial and has been supported by facilitative regulation that allows data to be used without the consent of data subjects. However, in the future much of the data will not be held by public authorities but by private companies. What are the implications of this shift for the governance of the research use of the data? This paper will argue that increased involvement of Research Ethics Committees and better training of researchers are necessary; and that some form of consent will have to be re-introduced. Four different consent models will be discussed: Opt-Out, Broad/Blanket consent, Dynamic consent, and Meta consent. It will be argued that a governance model including a possibility for citizens to make meta-choices strikes the best balance between individual and public interests.
Authors: Agbemenu K Abstract This research was conducted to identify the acculturation and health behaviors in the African Immigrant population, which is presently living in the United States. Ten studies met the criteria and included health behaviors of status, access to health care, psychiatric services, prostate cancer, morbidity and mortality, HIV knowledge and beliefs, perceptions of suicide, smoking, and obesity. Acculturation was measured using the most common social constructs that influenced the health behaviors of nativity, English (language proficiency), age at immigration, education and socioeconomic st...
Authors: Ward TD, Morris T Abstract Critical thinking is essential in the practice of the nurse generalist, today. Nursing faculty is frequently trying to identify teaching strategies in promoting critical thinking and engaging students in active learning. To close the gap between critical thinking and student success, a school in the south east United States implemented the use of the 'think like a nurse initiative" for incoming junior nursing students. Faculty collaborated to adopt the fundamental and essential nursing concepts for nursing students to support thinking like a nurse. PMID: 29443469 [PubMed]
Authors: Corsino L, Chinea FM, Ard JD, Voils CI, Rocha-Goldberg MDP, Svetkey LP Abstract Ethnic minorities in the United States have a higher prevalence of obesity, with higher levels reported in Latinos/Hispanics. A qualitative study was done to understand perceptions of obesity and identify factors that may enhance the attractiveness of a behavioral weight-loss intervention in the Latino community. Weight loss trials designed to target the Latino/Hispanic population may benefit by considering the Latino/Hispanic perception of the problem, the barriers to weight loss, and for study participation that may be specif...
Authors: Brown G Abstract Global health issues are concerns of all public health officials throughout the world. This entails reviewing aspects such as the impact of poverty and the lack of access to quality health care, ignored global killers such as Diseases (Infectious diseases-Malaria, HIV/AIDS), Natural Disasters (Earthquakes, Tsunamis, Floods, and Armed Conflict), Health in the Media, and the Involvement of Pharmaceutical Corporations and Medical Research. These issues are challenges to many needless deaths. Global initiatives are not advancing as they should, such as access to drugs and medications, which so...
Authors: PMID: 29443466 [PubMed]
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Highland Hospital is now the first hospital in the Rochester region to offer nitrous oxide as an additional pain relief option to mothers in labor.