Measuring Physical and Cognitive Fatigue in People With Post-Polio Syndrome: Development of the Neurological Fatigue Index for Post-Polio Syndrome (NFI-PP)

Conclusions A patient-derived Neurological Fatigue Index for PPS, with physical and cognitive subscales and a total score, has demonstrated good reliability, appropriate concurrent validity, and satisfies the Rasch measurement model. A raw-score to interval scale transformation is available for parametric applications and the calculation of change scores. Level of Evidence To be determined.
Source: PMandR - Category: Rehabilitation Source Type: research

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Conclusions and implications. Follow-up of polio survivors should include systematic screening for sleep disorders because they are associated with adverse consequences. Sleep disorder evaluation and management should improve the long-term survival and quality of life of polio survivors. Methodologically robust clinical trials are needed, but the decreasing prevalence and large clinical spectrum of the disease may complicate the creation of comparable groups.
Source: Annals of Physical and Rehabilitation Medicine - Category: Rehabilitation Source Type: research
CONCLUSION: The group of non-Western immigrants with polio in Norway reported more health and social problems than the group of Western immigrants with polio or the native Norwegian group with polio, even though they were younger and more highly educated. Their complex psychological and social situation requires active intervention from the health system, and health professionals need extra skills to deal most effectively with their situation. PMID: 31690950 [PubMed - as supplied by publisher]
Source: Journal of Rehabilitation Medicine - Category: Rehabilitation Tags: J Rehabil Med Source Type: research
Photo credit Sander Weeteling Dear Carol: My 84-year-old mother has been living in her own condominium but her problems with dementia are making this a scary situation. She forgets that she’s cooking and leaves the stove on and has left the water running for hours. She forgets what day it is and how to do basic self-care. Mom has physical problems, too, including damaged lungs and mobility and pain problems from post-polio syndrome. I talked her into in-home care twice in the past but when the caregivers came, she refused to let them in. I understand because I doubt that I’d like strangers coming in either, but...
Source: Minding Our Elders - Category: Geriatrics Authors: Source Type: blogs
Post-polio syndrome (PPS) is a neurological condition that affects polio survivors decades after their initial infection. Despite its high prevalence, the aetiology of PPS remains elusive, mechanisms of progression are poorly understood and the condition is notoriously under-researched. While motor dysfunction is a hallmark feature of the condition, generalised fatigue, sleep disturbance, decreased endurance, neuropsychological deficits, sensory symptoms and chronic pain are also often reported and have considerable quality of life implications in PPS. The non-motor aspects of PPS are particularly challenging to evaluate, ...
Source: Frontiers in Neurology - Category: Neurology Source Type: research
Conclusion: Our data indicate that individuals with a history of PM late in life experience a variety of symptoms that cannot be attributed to lesions of the anterior horn. Furthermore, late symptoms do not seem to be related to initial symptoms of the acute stage of PM but to reported PPS. The last finding supports the perception that the cause of PPS is not just normal ageing.Eur Neurol 2018;80:295 –303
Source: European Neurology - Category: Neurology Source Type: research
Abstract Preoperative oral care is helpful to prevent postoperative complications in patients who are undergoing esophagectomy. Here, we report the case of an 81-year-old Japanese man with an upper limb disability caused by post-polio syndrome who was receiving neoadjuvant chemotherapy for esophageal cancer. He had poor oral health status and developed oral complications as a side effect of chemotherapy. He could not brush his teeth by himself. However, infection control by oral care provided by an interprofessional collaboration successfully improved his oral hygiene, and his follow-up involved no severe complica...
Source: Acta Med Okayama - Category: Universities & Medical Training Authors: Tags: Acta Med Okayama Source Type: research
Background: Post-polio syndrome (PPS) is generally defined as a clinical syndrome consisting of new muscle weakness, fatigue, and pain in poliomyelitis survivors. In PPS, there is no definitively validated treatment option, although Acler M et al. reported that anodal transcranial direct current stimulation (tDCS) over pre-motor cortex for 15 days improved sleep and fatigue symptoms in patients with PPS. tDCS may be a valuable, non-invasive new tool for managing patients with PPS.
Source: BRAIN STIMULATION: Basic, Translational, and Clinical Research in Neuromodulation - Category: Neurology Authors: Source Type: research
CONCLUSION: Low knee extension muscle strength on the weaker side was associated with falls, but predictive ability using a single internal factor might be poor. It appears that a comprehensive examination, including other factors, is required. Implications for rehabilitation As polio survivors age, their risk of falling increases. To identify polio survivors who are at risk of falls, it is important to determine the factors associated with falls and their influence on fall risk. The results of this study showed that reduced knee extension muscle strength on the weaker side was a risk factor for falls in polio survivors. T...
Source: Disability and Rehabilitation - Category: Rehabilitation Authors: Tags: Disabil Rehabil Source Type: research
Abstract As the world comes closer to the eradication of polio, the question of preparing for life after this debilitating disease becomes increasingly pertinent. This paper focuses on on-going institutional attempts to conceptualise, plan, and deliver a world after polio. Drawing upon interviews with global health officials and ethnographic fieldwork with eradication initiatives in Nigeria and Pakistan, I explore how international donors are transitioning towards life after the disease and the curtailment of the substantial resources it has successfully mobilised. Focusing specifically on the wind-down of the Glo...
Source: Health and Place - Category: Environmental Health Authors: Tags: Health Place Source Type: research
ConclusionsIn this small sample, using strong limb T-scores resulted in fewer individuals categorized as having low bone density or osteoporosis than when weak limb T-scores were used. Underestimating BMD loss may lead to under-treatment and increased risk of morbidity, mortality and costs associated with femoral neck fractures in this high fall-risk group.
Source: PMandR - Category: Rehabilitation Source Type: research
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