Disability, Depression, Diagnosis, and Harm: Reflections on Two Personal Scenarios

AbstractIn this article I draw on two scenarios from my personal life —the diagnosis of my newborn grandnephew with CHARGE syndrome and the diagnosis of my father with depression—to reflect on whether and when diagnosis may be harmful to patients (and their families). Despite the great differences between the two scenarios, I argue that in both cases the tendency of diagnosis to generalize, categorize, and stigmatize can lead to insidious and counterproductive effects. The perspective of disability studies can help physicians to anticipate, minimize or avoid these negative ramifications. I also reflect on the matter of who"owns" a particular diagnosis, whose purposes it serves, and how.
Source: Journal of Medical Humanities - Category: Medical Ethics Source Type: research

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Source: Journal of Intellectual and Developmental Disability - Category: Disability Authors: Source Type: research
ConclusionsThe PIP intervention seems not to be effective reducing burden, but appears to have a positive result on general mental health. The program was well received and valued by caregivers.
Source: Research in Developmental Disabilities - Category: Disability Source Type: research
CONCLUSIONS: Cervical compressive myelopathy patients with preoperative depression or anxiety according to the HADS tool had worse preoperative HRQOL statuses. However, patients with cervical compressive myelopathy showed significant improvements in HRQOL outcomes and had sufficient levels of satisfaction after surgery regardless of the presence of preoperative depression or anxiety. PMID: 31518976 [PubMed - as supplied by publisher]
Source: Journal of Neurosurgery.Spine - Category: Neurosurgery Authors: Tags: J Neurosurg Spine Source Type: research
Post-traumatic stress disorder (PTSD) is a common, often debilitating mental health condition that occurs in some people who have experienced trauma. It can have a negative impact on mood, mimicking depression, and is characterized by petrifying episodes in which affected people re-experience trauma. New research suggests psychotherapy may provide a long-lasting reduction of distressing symptoms. Over the course of a lifetime, many people directly experience or witness trauma, such as sexual assault, violence, or natural disasters. Experts estimate that 10% to 20% of these people will experience acute (short-term) PTSD. So...
Source: Harvard Health Blog - Category: Consumer Health News Authors: Tags: Anxiety and Depression Mental Health Source Type: blogs
Pediatric chronic pain is associated with risk of impact across social, emotional, and behavioral domains at child and family levels.30,52,67 Extant literature highlights psychosocial factors that can foster resilience and others that underlie vulnerability for poor pain coping and disability. Resilience factors, such as pain acceptance and psychosocial adjustment, have been found to promote the use of adaptive pain coping strategies within this population.14 Greater child and parent pain catastrophizing, clinically significant internalizing symptoms (e.g., anxiety, depression), and maladaptive parent responses (e.g., over...
Source: The Journal of Pain - Category: Materials Science Authors: Tags: Original Reports Source Type: research
Abstract Toll-like receptor-2 (TLR2), a member of the TLR family, plays an important role in the initiation and regulation of immune/inflammation response, which is a critical mechanism underlying Alzheimer's disease (AD). To clarify the role of TLR2 in the pathological process of AD, in the present study, TLR2 knockout plus APPswe/PSEN1dE9 transgenic mice (AD-TLR2KO) were generated. Neurobehavioral tests and brain MRI scan were conducted on mice at the age of 12 months. Additionally, neuron loss was evaluated using NeuN staining. Amyloid β protein (Aβ), glial fibrillary acidic protein (GFAP), endogenous...
Source: Aging - Category: Biomedical Science Authors: Tags: Aging (Albany NY) Source Type: research
Conclusion: A list of candidate genes whose expression is presumably associated with environmental factors and has potentially contentious manifestation for behavioral and neurological traits is identified for further experimental verification.
Source: Genes - Category: Genetics & Stem Cells Authors: Tags: Article Source Type: research
I'm going to defer any comment on the raging insanity around us and discuss a matter of direct importance to me. AsAustin Frakt discusses in the (highly successful) New York Times government -- at all levels really -- has an allergy to any rigorous investigation of whether policies actually work as intended. (Sorry if you've spent your free NYT chits for the month, I'll summarize a bit of it.) Health policy is part of my portfolio, and it's undergoing massive experimentation and innovation. Policy makers are struggling to address the rising cost of health care, the fragmentation of services, and the gaps in coverage, finan...
Source: Stayin' Alive - Category: American Health Source Type: blogs
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Source: Ciencia e Saude Coletiva - Category: Occupational Health Source Type: research
ConclusionsQuality of life, in patients with multiple sclerosis is an issue that worries health personnel, it is essential to implement strategies for reducing the impact of the disease on patients' lives, mainly through the application of programs aimed to decrees depression and improve social support.
Source: Multiple Sclerosis and Related Disorders - Category: Neurology Source Type: research
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