Effect of Angiofibromas on Quality of Life and Access to Care in Tuberous Sclerosis Patients and Their Caregivers

ConclusionsPresence and lack of treatment of AF significantly impacts QoL in TSC patients and their caregivers. Access to care for AF is limited by multiple factors and should be addressed by clinicians working with this patient population.

http://onlinelibrary.wiley.com/resolve/doi?DOI=10.1111%2Fpde.12933

Source: Pediatric Dermatology - July 18, 2016 Category: Dermatology Authors: Cary Crall, Molly Valle, Kush Kapur, Kira A. Dies, Marilyn G. Liang, Mustafa Sahin, Jennifer T. Huang Tags: Original Article Source Type: research