Australian wanting to get Kalydeco from USA or UK (or anywhere!)

Hi all. Unfortunately Kalydeco (Ivacaftor) is not yet available in Australia. Well it is, but it is $300,000 per year (well outside the price range we can afford unfortunately). We are desperately seeking a way of getting the drug from USA or UK. Does anyone know if this is possible? Has anyone done it? Can anyone work out a way it can be done? It is unbearable to know that Kalydeco is out there and can help my daughter lead a normal life, but we can't get it. Any offers of information would be most appreciated. We are prepared to do what needs to be done to get access to this life saving medication. Thank you
Source: Cystic Fibrosis CFTR Modulation and Gene Therapy Forum - Category: Respiratory Medicine Authors: Tags: CFTR Modulation and Gene Therapy Talk Source Type: forums