GlobalGenes.org in Huntingdon Beach California

I will be there representing all of us! We are being sponsored by Healthcare at Home a company from the UK. I met Natalie Douglas in April at an eyeforpharma conference in Philadelphia. She is a Board member of www.globalgenes.org. She is impressed with our community, and the work we are doing since the important survey when 478 of you participated. I will bring the reports...but mostly KNOW that YOU are the Gatekeepers of so much important work for Rare Diseases! I want to let everyone know YOU are the ones who cheer each other into clinical trials. You are the ones who are testing personalized medicine...which as LittleLab4CF reminds me is like a nuclear bomb to your system...it changes all the cells. (He may correct me here). You are the ones so many diseases which have NO drugs can look to. You have forged the path. You are the pioneers for genetic medicine I want them to know. Fabio Gratton will also meet me in Huntingdon Beach to show me the new website his team has been working on for us. I will even get to meet some of you out there. I am humbled and excited! Salt and Light, Jeanne
Source: Cystic Fibrosis Adults Forum - Category: Respiratory Medicine Authors: Tags: Adults Source Type: forums