Bobby Donovan’s double lung transplant journey

Twenty-two-year-old Bobby Donovan was diagnosed with Cystic Fibrosis (CF) at 4 months old. He was relatively healthy for someone with CF. However, in November of 2008 his health began to deteriorate. Every three months or so, he was admitted to Boston Children’s Hospital for two to four weeks at a time. In April of 2014, with his lungs not expected to last the year, Bobby received the double lung transplant, which not only saved, but transformed his life. One year following surgery, he shares his remarkable story. Learn more about the Boston Children’s Lung Transplant Program. The post Bobby Donovan’s double lung transplant journey appeared first on Thriving Blog.
Source: Thrive, Children's Hospital Boston - Category: Pediatrics Authors: Tags: Diseases & conditions Our patients’ stories cystic fibrosis Cystic Fibrosis Center double lung transplant Lung Transplant Program lungs Pediatric Transplant Center (PTC) Source Type: news

Related Links:

A 39-year-old non-smoker woman was admitted in the thoracic oncology unit of the Montpellier Academic Hospital in June 2017 for investigation of multiple lung consolidations, fever, and respiratory failure. She was followed-up since infancy for a cystic fibrosis with cystic fibrosis transmembrane conductance regulator (CFTR) mutation ( ΔF508-CFTR). Two years ago, a lung allograft was decided, owing to rapid onset of respiratory function impairment, and she received a bi-pulmonary transplant. According to the donor database, the lung transplant was removed from a 57-year-old woman with a 30 pack-year smoking history.
Source: Lung Cancer - Category: Cancer & Oncology Authors: Source Type: research
Cystic Fibrosis (CF) Centers are involved in the decisions regarding the eligibility of CF patients with end-stage lung disease and timing for inclusion on waiting lists (WL) for lung transplantation (LT). The...
Source: Italian Journal of Pediatrics - Category: Pediatrics Authors: Tags: Research Source Type: research
Doctors in Scotland believe a woman’s large tattoo on her leg may have been the cause of her unexplained inflammation and severe leg pain. The authors of a report on the woman’s case, published in BMJ Case Reports, say it is a reminder to physicians that they should be mindful of their patients’ tattoos if they encounter unusual and unexplained symptoms. The 31-year-old woman was suffering a condition called inflammatory myopathy, which affected her left leg and caused pain severe enough to disrupt her sleep. The woman had a double lung transplant in 2009, and was taking drugs to suppress her immune syst...
Source: TIME: Health - Category: Consumer Health News Authors: Tags: Uncategorized healthytime onetime tattoos Source Type: news
A woman with cystic fibrosis and lung transplants suffered chronic pain for three years after she had a tattoo on her thighGetting a tattoo if you have a weakened immune system could put you at risk of complications, doctors have warned. The caution comes after a woman with cystic fibrosis and lung transplants developed thigh and knee pain after having body art inked on her leg.Doctors say those taking immunosuppressant drugs should take precautions if considering body art. These medicines are often given after an organ transplant or to treat autoimmune conditions such as Crohn ’s disease, lupus or rheumatoid arthrit...
Source: Guardian Unlimited Science - Category: Science Authors: Tags: Tattoos Medical research Immunology Biochemistry and molecular biology Health Cystic fibrosis Diabetes Source Type: news
CONCLUSIONS: The lack of currently available evidence makes it impossible to draw conclusions about the comparative efficacy and safety of the various immunosuppressive drugs among people with cystic fibrosis after lung transplantation. A 2013 Cochrane Review comparing tacrolimus with cyclosporine in all lung transplant recipients (not restricted to those with cystic fibrosis) reported no significant difference in mortality and risk of acute rejection. However, tacrolimus use was associated with lower risk of broncholitis obliterans syndrome and arterial hypertension and higher risk of diabetes mellitus. It should be noted...
Source: Cochrane Database of Systematic Reviews - Category: General Medicine Authors: Tags: Cochrane Database Syst Rev Source Type: research
Over time, cystic fibrosis robbed Nicholas Hemmerle of his ability to enjoy active time with his daughter. But after a double lung transplant, he's breathing easier and ready to have fun again.? The last thing Nicholas Hemmerle remembers before going into surgery at?Mayo Clinic?for a double?lung transplant?is a nurse putting a blanket on him and [...]
Source: News from Mayo Clinic - Category: Databases & Libraries Source Type: news
Publication date: Available online 7 June 2018 Source:The Annals of Thoracic Surgery Author(s): Sarah Cullivan, Karen Redmond, Carole Ridge, Oisin J. O’Connell A 21-year-old patient presented with a short history of fatigue and dyspnea on a background of a double lung transplant for cystic fibrosis and pre-existing chronic superior vena cava obstruction (SVCO). Computed tomography of the chest demonstrated a 3-cm mass occluding the right pulmonary veins, with associated right upper and lower lobe parenchymal pulmonary infiltrates. Two invasive procedures were performed with similar complications in both procedures.
Source: The Annals of Thoracic Surgery - Category: Cardiovascular & Thoracic Surgery Source Type: research
Abstract A 21-year-old patient presented with a short history of fatigue and dyspnea on a background of a double lung transplant for cystic fibrosis and pre-existing chronic superior vena cava obstruction (SVCO). Computed tomography of the chest demonstrated a 3-cm mass occluding the right pulmonary veins, with associated right upper and lower lobe parenchymal pulmonary infiltrates. Two invasive procedures were performed with similar complications in both procedures. PMID: 29885978 [PubMed - as supplied by publisher]
Source: The Annals of Thoracic Surgery - Category: Cardiovascular & Thoracic Surgery Authors: Tags: Ann Thorac Surg Source Type: research
Authors: West NE, Flume PA Abstract INTRODUCTION: Cystic fibrosis (CF) outcomes and survival have improved over the last century primarily due to advancements in antibiotics, nutritional and pulmonary therapies. Reviewed here are the significant unmet needs that exist for individuals with CF. Areas Covered: With the recent development of medications that address the underlying defect in the CF protein, there is hope that there will be continued improvement in CF outcomes. However, there remains a need to prevent or stop progression of CF related complications, as the CF protein is important to several body systems....
Source: Expert Review of Respiratory Medicine - Category: Respiratory Medicine Tags: Expert Rev Respir Med Source Type: research
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Workshops Source Type: research
More News: Blogging | Children | Cystic Fibrosis | Health | Hospitals | Learning | Lung Transplant | Pediatrics | Transplant Surgery | Transplants | Universities & Medical Training