Effect of Family Centered Pediatric Advance Care Planning for Children with Rare Diseases on Meaning/Peace (CO101B)

1.  Know how advance care planning with families of children with rare diseases can improve family caregiver outcomes.2. Understand the impact of race and social determinants of health on family caregiver appraisal of their caregiving and the impact of poverty on family well-being, caregiver distre ss, and anxiety.
Source: Journal of Pain and Symptom Management - Category: Palliative Care Authors: Source Type: research