Living With Muscular Dystrophy at 50 Makes Death My Shadow Partner

I am an Aries through and through—bold, ambitious, fiery, and confident.  Today, March 27, marks my 50th year on this planet, something I could never have imagined. I was diagnosed with an undetermined type of muscular dystrophy as a young child, and doctors told my parents I wouldn’t live to become an adult. My immigrant parents cried when they heard the news. Even though this news was devastating, they never treated me like a fragile egg about to break. In fact, as the first born child of three girls, I had a lot of responsibilities and expectations which only reinforced my Aries tendencies. [time-brightcove not-tgx=”true”] While my parents always supported me, I knew at an early age that my life was different. And since they didn’t sugarcoat anything to me, I had a very clear sense that my time was limited. In my bedroom, with a scary clown ceiling light above me at night, my vivid imagination wondered how I would die–would it be a slow and painful death? Would it be fast from a medical emergency? Knowing my muscles are progressively weakening as I struggled to walk as a child and breathe as a teenager always kept death at the forefront of my mind. Believing I had no future shaped me in ways I am still processing today. Birthdays have given me pause for reflection, especially this year. I recently looked at a picture taken from my 40th birthday party and could not recognize myself. I wasn’t wearing a BiPap mask because ...
Source: TIME: Health - Category: Consumer Health News Authors: Tags: Uncategorized freelance Source Type: news