Evaluating quality of life in pediatric palliative care: a cross-sectional analysis of children ’s and parents’ perspectives

Conclusions: Children have a more optimistic view than their parents. When the child is the one who reports a lower QoL score than their parent, the child should be carefully monitored. The voice of the child and that of the family members can be collected to create a “family voice” and can be complementary.What is Known:• Children with life-limiting conditions experience multiple and changing symptoms that affect their QoL.• The child’s perspective is often overlooked.What is New:• Children value QoL more positively than their parents do, even if we control for sociodemographic variables and the disease itself.• When the child is the one who reports a lower QoL score than their parent, the child should be carefully monitored.
Source: European Journal of Pediatrics - Category: Pediatrics Source Type: research