Interrogating the Value of Return of Results for Diverse Populations: Perspectives from Precision Medicine Researchers

CONCLUSIONS: Conceptualizations of diversity and inclusion among PM researchers and investigators raise unique ethical questions where unexamined assumptions of the value of ROR inform study recruitment efforts to enroll minoritized and under-represented populations. A lack of consideration for resources and infrastructure necessary to translate ROR into actionable information may hinder trustworthy community-research relationships. Thus, we argue for a more intentional interrogation of ROR practices as an offer of benefit and for whom.PMID:37962912 | DOI:10.1080/23294515.2023.2279965

Source: AJOB Primary Research - November 14, 2023 Category: Medical Ethics Authors: Caitlin E McMahon Nicole Foti Melanie Jeske William R Britton Stephanie M Fullerton Janet K Shim Sandra Soo-Jin Lee Source Type: research