The roles and experiences of adolescents with cystic fibrosis and their parents during transition: A qualitative interview study

Cystic Fibrosis (CF) is a multi-organ disease which affects the respiratory, digestive and reproductive system and has also other clinical features. CF used to be a rare chronic disease exclusively concerning paediatric care services. Because of the increasing survival of children with CF into adulthood (median survival age of 51.7 years), CF has become an exemplary disease to illustrate the added value of healthcare transition programs [1,2]. Such programs facilitate the transfer from paediatric care to adult care services and include a planned and structured transfer of care [3].
Source: Journal of Cystic Fibrosis - Category: Respiratory Medicine Authors: Tags: Original Article Source Type: research