Quality of Life in Angelman Syndrome: A Caregivers' Survey

A web-based survey was distributed to caregivers of individuals with Angelman Syndrome (AS) to characterize motor function, cannabidiol (CBD) use, and factors affecting quality of life (QOL).One hundred eighty three individuals with AS (mean age of 19.4 ± 13.4 years; 48.1% female): 72% had sleep problems, 80% had seizures, and 32% had ≥1 ED visits in the previous year. Eighty-eight percent were ambulatory (with or without assistance), and half experienced falls, 10.4% resulting in serious injury.
Source: Pediatric Neurology - Category: Neurology Authors: Tags: Research Paper Source Type: research