What happens when a $2 million gene therapy is not enough

Baby Ben Kutschke was diagnosed at three months with spinal muscular atrophy, a rare inherited disorder which is the leading genetic cause of death in infancy globally. It leaves children too weak to walk, talk, swallow or even breathe. So when in 2021 his parents heard about Zolgensma – a…#babybenkutschke #elizabethkutschke #berwyn #illinois #sma #healthcare #novartis #medicaid #rogerhajjar #kutschke
Source: Reuters: Health - Category: Consumer Health News Source Type: news