Parents ’ perspectives on the use of children’s facial images for research and diagnosis: a survey

This study aimed to investigate parents’ views regarding the collection, storage, use and publication of their children’s facial images for research and diagnostic purposes. A total of 151 parents of children with and without congenital disorders comple ted an online survey evaluating their views on the collection, storage, use and publication of children’s facial images for research and diagnosis. Overall, 72.5% of parents would allow researchers to take facial photographs of their children, preferring the images to be stored in a secure databas e that is not available to the public. Parents of children with congenital disorders were more accepting of researchers taking facial photographs of their children, compared to parents of children without these conditions. Half of the respondents would allow facial photographs of their children to b e published in academic journals, without their eyes covered, and this acceptance increased as the proportion of the child’s face covered increased. Parents also indicated specific requirements to allow the use of these images in other similar research studies which need to be taken into considera tion when planning studies that involve facial analysis research.

Source: Journal of Community Genetics - December 1, 2022 Category: Genetics & Stem Cells Source Type: research