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This Stroke Changed My Life and I Need Help: Social Media Resources for Bilingual Caregivers of Stroke Victims (S753)
Stroke remains a leading cause of long-term disability and burdened quality of life not only for stroke survivors with remaining disability (SSRDs) but also for the informal caregivers (ICGs) who care for them. Approximately 50% of SSRDs will require ICG hands-on support, precluding them from leaving home. With current technology, social media might be the only way for ICG to gain training/access support. What resources are available out there for ICGs of SSRDs?
Source: Journal of Pain and Symptom Management - January 25, 2020 Category: Palliative Care Authors: Sandra Sanchez-Reilly, Laura Reilly-Sanchez, Valeria Restrepo, Marcos Restrepo, Jeanette Ross, Michael Mader Source Type: research

A qualitative study on palliative needs of stroke patients in an Indian tertiary care setting - Doctors & #39; perspective
Conclusions: From the interviews of the clinicians, we can conclude that care of a stroke patient is more than medical management and rehabilitation, as several other aspects of the patient's life are affected by the condition. The quality of life aspect has to be looked upon as an area that requires active intervention in a setting of stroke. Physical disabilities were viewed as the most significant factor in reducing the quality of life. Spiritual needs have a low priority in comparison to other physical needs. Due to high patient load and time constraints, many of the needs are unaddressed. Two important area...
Source: Indian Journal of Palliative Care - January 31, 2019 Category: Palliative Care Authors: Jacob Lloyd Ashna Maria Pinto Shoba Nair Subhash Tarey Source Type: research

Mechanical thrombectomy for Trousseau syndrome in a terminally ill cancer patient
Trousseau syndrome was first described by Armand Trousseau in 1865 and is characterized by hypercoagulation resulting from malignant tumors. This complication can markedly impact quality of life (QOL). This is the first report of a terminally ill patient who developed large-vessel occlusion stroke from Trousseau syndrome and underwent mechanical thrombectomy. A 75-year-old woman presented with stage IV ovarian cancer. Goals of care were transitioned to palliative care. The patient was hospitalized with vertebral compression fracture, and suddenly developed right hemiparesis and total aphasia during admission.
Source: Journal of Pain and Symptom Management - December 18, 2018 Category: Palliative Care Authors: Naoto Kuroda, Hisaya Hiramatsu, Masanori Mori, Tokutaro Tanaka Tags: Palliative Care Rounds Source Type: research

End-of-Life Care for Stroke
Stroke is a leading cause of disability and the third leading cause of death in Canada, according to the Heart and Stroke Association. Despite a high mortality rate, the experience of dying from a stroke has received limited attention from a palliative point of view. When attempting to make inferences from other specialties that have well researched methods of palliation, there was an obvious gap when considering the stroke population. Palliative stroke patients, at the Royal University Hospital, rarely have access to a bed on a specialized palliative care unit.
Source: Journal of Pain and Symptom Management - November 30, 2018 Category: Palliative Care Authors: Shelley Jolly, Ruth Whelan, Kimberly Davy Source Type: research

Rectal administration of baclofen at the end of life
Spasticity can be a complicating symptom of a variety of neurological conditions such as multiple sclerosis, motor neuron disease, Creutzfeldt-Jakob disease, or post-stroke. Several pharmacological treatment options are available, including baclofen, tizanidine, gabapentin, botulinum toxin A and tetrahydrocannabinol/canabidiol (1, 2). However, treatment feasibility decreases as the end of life approaches, e.g. when patients are no longer able to tolerate oral medications, the onset of action would be too long, or the initiation of parenteral drug therapy (intravenous, intrathecal) is no longer indicated or appropriate.
Source: Journal of Pain and Symptom Management - August 7, 2018 Category: Palliative Care Authors: Charlotte Selge, Claudia Bausewein, Constanze Remi Source Type: research

Establishing Goals of Care for Patients with Stroke and Feeding Problems: An Interdisciplinary Trigger-Based Continuous Quality Improvement Project
Few patients with dysphagia due to stroke receive early palliative care to align treatment goals with their values, as called for by practice guidelines, particularly before enteral access procedures for artificial nutrition.
Source: Journal of Pain and Symptom Management - June 25, 2018 Category: Palliative Care Authors: Franchesca Hwang, Christine Boardingham, Susanne Walther, Molly Jacob, Andrea Hidalgo, Chirag D. Gandhi, Anne C. Mosenthal, Sangeeta Lamba, Ana Berlin Source Type: research

Palliative Care and Stroke: An Integrative Review of the Literature (S740)
Stroke survivors and their family members face unique needs related to life-altering functional and cognitive changes and burdensome symptoms, which negatively impact quality of life (QOL). Guidelines recommend that primary palliative care (PC) be offered to all stroke patients; however, gaps exist in understanding how PC is perceived and implemented within stroke.
Source: Journal of Pain and Symptom Management - February 1, 2018 Category: Palliative Care Authors: Kristen Overbaugh, Stephanie Molidor, Carole White, Deborah James Source Type: research

Seizure Bootcamp: Everything You Ever Needed to Know to Manage Seizures in End Stage Disease (FR455)
Seizures are a common occurrence in end stage disease, occurring in a wide range of conditions, including dementia, stroke, AIDS, end stage renal disease, and both primary brain tumors and metastatic disease. Not only are uncontrolled seizures a significant source of distress to both patient and families, but they present a significant management challenge to the hospice team, who are often faced with controlling seizures in the face of advancing disease, increasing seizure risk factors, and declining ability of the patient to take oral medications.
Source: Journal of Pain and Symptom Management - February 1, 2018 Category: Palliative Care Authors: Mara Lugassy, Neha Kramer, Ebtesam Ahmed, Joel Phillips, Colleen Fleming-Damon Source Type: research

Changes in the Use of Intensive and Supportive Procedures for Patients with Stroke in Taiwan in the Last Month of Life between 2000 and 2010
Stroke is the second leading cause of death and the primary cause of disability worldwide. It is uncertain what care patients with stroke receive in their end of life care and what trends in care are in recent years.
Source: Journal of Pain and Symptom Management - November 27, 2017 Category: Palliative Care Authors: Pei-Yi Wang, Yen-Ni Hung, Robert Smith, Chia-Chin Lin Source Type: research

Palliative Care Clinicians Caring for Patients Before and After Continuous Flow-Left Ventricular Assist Device
Left ventricular assist devices (LVADs) are an available treatment option for carefully-selected patients with advanced heart failure. Initially developed as a bridge to transplantation, LVADs are now also offered to patients ineligible for transplantation as destination therapy (DT). Individuals with a DT-LVAD will live the remainder of their lives with the device in place. While survival and quality of life improve with LVADs compared to medical therapy, complications persist including bleeding, infection, and stroke.
Source: Journal of Pain and Symptom Management - July 12, 2017 Category: Palliative Care Authors: Sara E. Wordingham, Colleen K. McIlvennan, Timothy J. Fendler, Amy L. Behnken, Shannon M. Dunlay, James N. Kirkpatrick, Keith M. Swetz Source Type: research

OnabotulinumtoxinA Improves Pain in Patients With Post-Stroke Spasticity: Findings From a Randomized, Double-Blind, Placebo-Controlled Trial
Patients with post-stroke spasticity (PSS) commonly experience pain in affected limbs, which may impact quality of life.
Source: Journal of Pain and Symptom Management - March 28, 2016 Category: Palliative Care Authors: J örg Wissel, Vaidyanathan Ganapathy, Anthony B. Ward, Jörgen Borg, Per Ertzgaard, Christoph Herrmann, Anders Haggstrom, Mohamed Sakel, Julia Ma, Rozalina Dimitrova, Antony Fulford-Smith, Patrick Gillard Tags: Original Article Source Type: research

OnabotulinumtoxinA Improves Pain in Patients with Post-Stroke Spasticity: Findings from a Randomized, Double-Blind, Placebo-Controlled Trial
Patients with post-stroke spasticity (PSS) commonly experience pain in affected limbs, which may impact quality of life.
Source: Journal of Pain and Symptom Management - March 28, 2016 Category: Palliative Care Authors: Jörg Wissel, Vaidyanathan Ganapathy, Anthony B. Ward, Jörgen Borg, Per Ertzgaard, Christoph Herrmann, Anders Haggstrom, Mohamed Sakel, Julia Ma, Rozalina Dimitrova, Antony Fulford-Smith, Patrick Gillard Source Type: research

“This Was Not What I Had in Mind,” and Other Palliative Challenges Encountered in Left Ventricular Assist Device (LVAD) Care (TH321)
With the evolution and growing availability of mechanical circulatory support (MCS) technology for patients with advanced heart failure come new frontiers for palliative care (PC) teams. Although data demonstrates that MCS devices, including left ventricular assist devices (LVADs), can improve survival and quality-of-life for patients with advanced heart failure, patients remain at risk for catastrophic events, like stroke or hemorrhage, persistent functional decline, or progression of other life-threatening medical conditions.
Source: Journal of Pain and Symptom Management - January 29, 2016 Category: Palliative Care Authors: J. Hunter Groninger, George Ruiz, Joan Panke, Anne Kelemen Source Type: research

Reversible hemiparesis in a patient with migraine.
This report is adapted from paineurope 2014; Issue 1, Haymarket Medical Publications Ltd., and is presented with permission. paineurope is provided as a service to pain management by Mundipharma International, Ltd., and is distributed free of charge to health care professionals in Europe. Archival issues can be accessed via the Web site: http://www.paineurope.com at which European health professionals can register online to receive copies of the quarterly publication. PMID: 25166776 [PubMed - indexed for MEDLINE]
Source: Journal of Pain and Palliative Care Pharmacotherapy - November 20, 2015 Category: Palliative Care Tags: J Pain Palliat Care Pharmacother Source Type: research

The Evolution of an Inpatient Palliative Care Consultation Service in an Urban Teaching Hospital.
CONCLUSION: We describe the evolution of palliative care in a safety-net hospital. Medicine services which are largely resident run adopted early. Specialty services that are attending driven adopted later. We believe house staff and nurses were the initial change agents. The number of consultations increased when house staff and students began rotating on the service suggesting unmet demand due to the limited supply of providers. PMID: 26543069 [PubMed - as supplied by publisher]
Source: The American Journal of Hospice and Palliative Care - November 5, 2015 Category: Palliative Care Authors: Liu OY, Malmstrom T, Burhanna P, Rodin MB Tags: Am J Hosp Palliat Care Source Type: research

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