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A qualitative study on palliative needs of stroke patients in an Indian tertiary care setting - Doctors & #39; perspective
Conclusions: From the interviews of the clinicians, we can conclude that care of a stroke patient is more than medical management and rehabilitation, as several other aspects of the patient's life are affected by the condition. The quality of life aspect has to be looked upon as an area that requires active intervention in a setting of stroke. Physical disabilities were viewed as the most significant factor in reducing the quality of life. Spiritual needs have a low priority in comparison to other physical needs. Due to high patient load and time constraints, many of the needs are unaddressed. Two important area...
Source: Indian Journal of Palliative Care - January 31, 2019 Category: Palliative Care Authors: Jacob Lloyd Ashna Maria Pinto Shoba Nair Subhash Tarey Source Type: research

End-of-Life Care for Stroke
Stroke is a leading cause of disability and the third leading cause of death in Canada, according to the Heart and Stroke Association. Despite a high mortality rate, the experience of dying from a stroke has received limited attention from a palliative point of view. When attempting to make inferences from other specialties that have well researched methods of palliation, there was an obvious gap when considering the stroke population. Palliative stroke patients, at the Royal University Hospital, rarely have access to a bed on a specialized palliative care unit.
Source: Journal of Pain and Symptom Management - November 30, 2018 Category: Palliative Care Authors: Shelley Jolly, Ruth Whelan, Kimberly Davy Source Type: research

End-of-Life Symptoms in Adult Patients With Stroke in the Last Two Years of Life: An Integrative Review
CONCLUSIONS: There is a need for better assessment and management of EOL symptoms in patients with stroke. Established palliative and EOL care guidelines need to be incorporated into clinical practice to ensure access to high-quality care.PMID:37615127 | DOI:10.1177/10499091231197657
Source: The American Journal of Hospice and Palliative Care - August 24, 2023 Category: Palliative Care Authors: Hanna Ramsburg Helene J Moriarty Meredith MacKenzie Greenle Source Type: research

Palliative Care and Stroke: An Integrative Review of the Literature (S740)
Stroke survivors and their family members face unique needs related to life-altering functional and cognitive changes and burdensome symptoms, which negatively impact quality of life (QOL). Guidelines recommend that primary palliative care (PC) be offered to all stroke patients; however, gaps exist in understanding how PC is perceived and implemented within stroke.
Source: Journal of Pain and Symptom Management - February 1, 2018 Category: Palliative Care Authors: Kristen Overbaugh, Stephanie Molidor, Carole White, Deborah James Source Type: research

This Stroke Changed My Life and I Need Help: Social Media Resources for Bilingual Caregivers of Stroke Victims (S753)
Stroke remains a leading cause of long-term disability and burdened quality of life not only for stroke survivors with remaining disability (SSRDs) but also for the informal caregivers (ICGs) who care for them. Approximately 50% of SSRDs will require ICG hands-on support, precluding them from leaving home. With current technology, social media might be the only way for ICG to gain training/access support. What resources are available out there for ICGs of SSRDs?
Source: Journal of Pain and Symptom Management - January 25, 2020 Category: Palliative Care Authors: Sandra Sanchez-Reilly, Laura Reilly-Sanchez, Valeria Restrepo, Marcos Restrepo, Jeanette Ross, Michael Mader Source Type: research

Changes in the Use of Intensive and Supportive Procedures for Patients with Stroke in Taiwan in the Last Month of Life between 2000 and 2010
Stroke is the second leading cause of death and the primary cause of disability worldwide. It is uncertain what care patients with stroke receive in their end of life care and what trends in care are in recent years.
Source: Journal of Pain and Symptom Management - November 27, 2017 Category: Palliative Care Authors: Pei-Yi Wang, Yen-Ni Hung, Robert Smith, Chia-Chin Lin Source Type: research

Palliative and End-of-Life Care After Severe Stroke
This study sought to determine the prevalence, predictors, and outcomes associated with PCC for patients hospitalized with severe ischemic stroke.
Source: Journal of Pain and Symptom Management - January 4, 2022 Category: Palliative Care Authors: Amber R. Comer, Linda S. Williams, Stephanie Bartlett, Lynn D'Cruz, Katlyn Endris, McKenzie Marchand, Isabel Zepeda, Sumeet Toor, Carly Waite, Areeba Jawed, Robert Holloway, Claire J. Creutzfeldt, James E. Slaven, Alexia M. Torke Tags: Original Article Source Type: research

OnabotulinumtoxinA Improves Pain in Patients with Post-Stroke Spasticity: Findings from a Randomized, Double-Blind, Placebo-Controlled Trial
Patients with post-stroke spasticity (PSS) commonly experience pain in affected limbs, which may impact quality of life.
Source: Journal of Pain and Symptom Management - March 28, 2016 Category: Palliative Care Authors: Jörg Wissel, Vaidyanathan Ganapathy, Anthony B. Ward, Jörgen Borg, Per Ertzgaard, Christoph Herrmann, Anders Haggstrom, Mohamed Sakel, Julia Ma, Rozalina Dimitrova, Antony Fulford-Smith, Patrick Gillard Source Type: research

OnabotulinumtoxinA Improves Pain in Patients With Post-Stroke Spasticity: Findings From a Randomized, Double-Blind, Placebo-Controlled Trial
Patients with post-stroke spasticity (PSS) commonly experience pain in affected limbs, which may impact quality of life.
Source: Journal of Pain and Symptom Management - March 28, 2016 Category: Palliative Care Authors: J örg Wissel, Vaidyanathan Ganapathy, Anthony B. Ward, Jörgen Borg, Per Ertzgaard, Christoph Herrmann, Anders Haggstrom, Mohamed Sakel, Julia Ma, Rozalina Dimitrova, Antony Fulford-Smith, Patrick Gillard Tags: Original Article Source Type: research

Establishing Goals of Care for Patients with Stroke and Feeding Problems: An Interdisciplinary Trigger-Based Continuous Quality Improvement Project
Few patients with dysphagia due to stroke receive early palliative care to align treatment goals with their values, as called for by practice guidelines, particularly before enteral access procedures for artificial nutrition.
Source: Journal of Pain and Symptom Management - June 25, 2018 Category: Palliative Care Authors: Franchesca Hwang, Christine Boardingham, Susanne Walther, Molly Jacob, Andrea Hidalgo, Chirag D. Gandhi, Anne C. Mosenthal, Sangeeta Lamba, Ana Berlin Source Type: research

Appraisal of Health States Worse than Death in Patients with Acute Stroke (S714)
Goals of care discussions are frequently indicated after acute stroke. Many of these conversations happen without direct patient participation secondary to aphasia or encephalopathy.
Source: Journal of Pain and Symptom Management - January 25, 2020 Category: Palliative Care Authors: Elyse Everett, William Everett, Matthew Brier, Patrick White Source Type: research

Electro-acupuncture for post-stroke spasticity: results of a pilot pragmatic randomized controlled trial
People with spasticity which occurred between 30 days and one year after stroke onset with a baseline Modified Ashworth Scale (MAS) ≥ 1.
Source: Journal of Pain and Symptom Management - August 4, 2020 Category: Palliative Care Authors: Yiyi Cai, Claire Shuiqing Zhang, Anthony Lin Zhang, Cliff Da Costa, Charlie Changli Xue, Zehuai Wen Tags: Original Article Source Type: research

Mobility Goals of Care Conversations with Hospitalized Patients Suffering Severe Stroke (Sci239)
1. Using the WHO Functional classification, attendants will understand a mobility goals-of-care conversation, its prevalence, associated predictors, interventions, and outcomes.2. The attendant will be able to note similarities and differences between the large stroke population and the propensity-matched groups.
Source: Journal of Pain and Symptom Management - April 14, 2023 Category: Palliative Care Authors: Stephanie L. Bartlett, Kristine Miller, James Slaven, Veronica R. Kassab, Aubrey Odgers, Xochitl G. Rivera-Cordova, Amber R. Comer Source Type: research

Improving Access to Specialist Palliative Care for Patients with Catastrophic Strokes: A Quality Improvement Project to Trigger Inpatient Palliative Care Consultations (QI730)
The American Stroke Association strongly recommends palliative care for patients hospitalized with catastrophic strokes to improve shared decision-making and relieve suffering. An automatic trigger to consider a consult for these patients may improve access to palliative care. The National Institutes of Health Stroke Scale (NIHSS) is a good predictor of short- and long-term outcomes and high scores (>= 20) are associated with poorer prognosis.
Source: Journal of Pain and Symptom Management - February 23, 2021 Category: Palliative Care Authors: Vandana Nagpal, Marcey Osgood, Jennifer Reidy Source Type: research

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