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Condition: Disability
Management: Partnerships

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Total 145 results found since Jan 2013.

A Longitudinal Mixed-Methods Characterization of Family Support from Adolescence to Young Adulthood in Autism and Other Developmental Disabilities
J Autism Dev Disord. 2023 Sep 5. doi: 10.1007/s10803-023-06070-y. Online ahead of print.ABSTRACTAlthough caregiving responsibilities and need for support persist and evolve across the life course in families with autistic youth or youth with other developmental disabilities (DDs), little is known about support during their child's adulthood years. Therefore, the present study used a mixed-methods approach to examine change and stability in formal and informal family support across the transition to adulthood. Caregivers of 126 individuals with autism or DDs completed a modified version of the Family Support Scale, includin...
Source: Journal of Autism and Developmental Disorders - September 5, 2023 Category: Psychiatry Authors: Hillary K Schiltz Elaine Clarke Nicole Rosen Sofi Gomez De La Rosa Nina Masjedi Kourtney Christopher Catherine Lord Source Type: research

The Socioeconomic Burden of Acromegaly
Eur J Endocrinol. 2023 Aug 3:lvad097. doi: 10.1093/ejendo/lvad097. Online ahead of print.ABSTRACTAcromegaly is a rare and insidious disease characterized by chronic excess growth hormone, leading to various morphological changes and systemic complications. Despite its low prevalence, acromegaly poses a significant socioeconomic burden on patients and healthcare systems. This review synthesizes the current state of knowledge on the psychosocial burden, disability, impact on daily life, and cost of acromegaly disease, focusing on quality of life, partnership, medical care and treatment afflictions, participation in daily act...
Source: European Journal of Endocrinology - August 3, 2023 Category: Endocrinology Authors: Sylv ère Störmann Thomas Cuny Source Type: research

Featured Health IT Job: Director, Application Development and Integrations
We like to regularly feature a healthcare IT job that might be of interest to readers. Today, we’re featuring the Director, Application Development and Integrations position that was recently posted on Healthcare IT Central. This position was posted by New York eHealth Collaborative and is a hybrid position requiring one day in either the Manhattan, New York office or the Albany, New York office. Here’s a description of the position: New York eHealth Collaborative (NYeC) is a not-for-profit organization working in partnership with the New York State Department of Health to improve healthcare by collaborativel...
Source: EMR and HIPAA - July 26, 2023 Category: Information Technology Authors: Health IT Jobs Tags: Career and Jobs Healthcare IT Application Development and Integrations Director Jobs Health IT Jobs Healthcare IT Jobs Job Seekers New York eHealth Collaborative New York Health IT Jobs NYeC Source Type: blogs

Supportive mobility devices across the lifespan in Cerebral Palsy: a modified Delphi study to establish stakeholder research priorities
DISCUSSION: A modified Delphi process was a useful tool for stakeholders in co-developing research priorities related to SMD use across the lifespan. Drawing on the lived expertise of stakeholders is important in facilitating improved research translation in the CP community.PMID:37452575 | DOI:10.1080/17483107.2023.2233564
Source: Disability and Rehabilitation. Assistive Technology. - July 15, 2023 Category: Rehabilitation Authors: Heather A Feldner Deborah Gaebler-Spira Varun Awasthi Kristie K Bjornson Source Type: research

Utilization of dental care by adults with and without impairments and disabilities-results of the GEDA 2014/2015-EHIS study
This article examines the 12-month prevalence of dental utilization among adults with and without impairments and disabilities in Germany.METHODS: Analyses are based on data from 23,372 persons aged 18 years and older with permanent residency in Germany from the GEDA 2014/2015-EHIS study. Participants were asked when they last visited a dentist or orthodontist on their own behalf - "less than 6 months ago," "6 to less than 12 months ago," "12 months ago or longer," or "never." For the analyses, the first two and the last two response options were combined, giving the 12-month prevalence of dental utilization.RESULTS: Adult...
Source: Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz - July 14, 2023 Category: International Medicine & Public Health Authors: Laura Krause Peter Schmidt Stefanie Seeling Franziska Pr ütz Source Type: research

Featured Health IT Job: Procurement Coordinator
We like to regularly feature a healthcare IT job that might be of interest to readers. Today, we’re featuring the Procurement Coordinator position that was recently posted on Healthcare IT Central. This position was posted by New York eHealth Collaborative and is a hybrid position requiring one day a week in the Albany, New York office. Here’s a description of the position: New York eHealth Collaborative (NYeC) is a not-for-profit organization working in partnership with the New York State Department of Health to improve healthcare by collaboratively leading, connecting, and integrating health information exc...
Source: EMR and HIPAA - June 28, 2023 Category: Information Technology Authors: Health IT Jobs Tags: Career and Jobs Healthcare IT Health IT Jobs Health IT Procurement Healthcare IT Jobs Job Seekers New York eHealth Collaborative New York Health IT Jobs NYeC Procurement Coordinator Source Type: blogs