Patient spotlight - Doing it for themselves
In our accompanying roundtable discussion,we hear views from a group of patients and clinicians based largely in the UK on the actions required to advance progress towards providing patient centred care.
To extend the conversation we talked to members of the BMJ's international patient advisory panel and other patient advocates - and what follows are short clips of hour long conversations with people in the US, Europe, India, Equador a nd Uganda.
While the quality of the recordings vary there is no mistaking
the passion of these advocates to improve care for fellow patients and the barriers which need to be overcome...
Source: The BMJ Podcast - February 10, 2015 Category: General Medicine Authors: BMJ talk medicine Source Type: podcasts
Patient spotlight - Doing it for themselves
In our accompanying roundtable discussion,we hear views from a group of patients and clinicians based largely in the UK on the actions required to advance progress towards providing patient centred care.
To extend the conversation we talked to members of the BMJ's international patient advisory panel and other patient advocates - and what follows are short clips of hour long conversations with people in the US, Europe, India, Equador and Uganda.
While the quality of the recordings vary there is no mistaking
the passion of these advocates to improve care for fellow patients and the barriers which need to be overcome ...
Source: The BMJ Podcast - February 10, 2015 Category: General Medicine Authors: BMJ Group Source Type: podcasts
Screening Newborns' DNA -- Why Not?
Marshall Summar and Jess Gilbert Thoene talk about how newborn screening has evolved and the almost unimaginable impact the Orphan Drug Act has had on product development for rare diseases since 1983. (Source: Medscape Pediatrics Podcast)
Source: Medscape Pediatrics Podcast - February 5, 2015 Category: Pediatrics Authors: Medscape Source Type: podcasts
Registries for Rare Diseases: Involve the Patient
Knowledge will expand, care will advance, and outcomes will improve if registries are used to their full potential. (Source: Medscape Family Medicine Podcast)
Source: Medscape Family Medicine Podcast - January 14, 2015 Category: Primary Care Authors: Medscape Source Type: podcasts
Step Up and Advocate for Rare Diseases
NORD's vice president for public policy Diane Dorman appeals to the medical community for their help in improving treatments and access to treatments for all rare disorders. (Source: Medscape Family Medicine Podcast)
Source: Medscape Family Medicine Podcast - December 8, 2014 Category: Primary Care Authors: Medscape Source Type: podcasts
Targeting Drugs for Rare Diseases
Marshall Summar speaks with FDA director of the Office of Orphan Products Development, Gayatri Rao, about progress in diagnostics and therapeutics for rare diseases. (Source: Medscape Pharmacists Podcast)
Source: Medscape Pharmacists Podcast - November 25, 2014 Category: Drugs & Pharmacology Authors: Medscape Source Type: podcasts
What Is a Rare Disease, Exactly?
Marshall Summar defines 'rare disease' and explains how the field is evolving into personalized medicine for everyone, not just children. (Source: Medscape Medscape Podcast)
Source: Medscape Medscape Podcast - November 24, 2014 Category: Journals (General) Authors: Medscape Source Type: podcasts
Every Player Counts: The Team Approach to Rare Diseases
Geneticist Dr. Priya Kishnani and genetic counselor Stephanie Austin talk about why a multidisciplinary team approach is critical to optimal management of patients with rare diseases. (Source: Medscape Medscape Podcast)
Source: Medscape Medscape Podcast - February 27, 2014 Category: Journals (General) Authors: Medscape Source Type: podcasts
The Zebras Are Growing Up: Are We Ready?
Dr. Priya Kishnani discusses the importance of a multidisciplinary approach in the treatment of rare diseases as patients move to adolescence and beyond. (Source: Medscape Pathology and Laboratory Medicine Podcast)
Source: Medscape Pathology and Laboratory Medicine Podcast - February 26, 2013 Category: Laboratory Medicine Authors: Medscape Source Type: podcasts
The Zebras Are Growing Up: Are We Ready?
Dr. Priya Kishnani discusses the importance of a multidisciplinary approach in the treatment of rare diseases as patients move to adolescence and beyond. (Source: Medscape Medscape Podcast)
Source: Medscape Medscape Podcast - February 26, 2013 Category: Journals (General) Authors: Medscape Source Type: podcasts
Alternative Lifestyles & Rare Diseases
DARRYL MITTELDORF
LGBT Cancer Advocate
Founder/CEO
Out With Cancer
LGBT Survivor Program
DENIS COSTELLO
Rare Disease Survivorship Advocate
Manager, Web Communications
Eurodis (Source: The Stupid Cancer Show - Blog Talk Radio)
Source: The Stupid Cancer Show - Blog Talk Radio - February 24, 2009 Category: Cancer & Oncology Authors: Stupid Cancer Show Tags: Health Source Type: podcasts
Alternative Lifestyles & Rare Diseases
DARRYL MITTELDORFLGBT Cancer Advocate Founder/CEO Out With Cancer LGBT Survivor Program DENIS COSTELLORare Disease Survivorship Advocate Manager, Web Communications Eurodis (Source: The Stupid Cancer Show - Blog Talk Radio)
Source: The Stupid Cancer Show - Blog Talk Radio - February 24, 2009 Category: Cancer & Oncology Authors: Stupid Cancer Show Tags: Health Source Type: podcasts
Alternative Lifestyles & Rare Diseases - 二月 24,2009
DARRYL MITTELDORFLGBT Cancer Advocate Founder/CEO Out With Cancer LGBT Survivor Program DENIS COSTELLORare Disease Survivorship Advocate Manager, Web Communications Eurodis (Source: The Stupid Cancer Show - Blog Talk Radio)
Source: The Stupid Cancer Show - Blog Talk Radio - February 24, 2009 Category: Cancer & Oncology Authors: Stupid Cancer Show Tags: Health Source Type: podcasts
Alternative Lifestyles & Rare Diseases - Feb 24,2009
DARRYL MITTELDORFLGBT Cancer Advocate Founder/CEO Out With Cancer LGBT Survivor Program DENIS COSTELLORare Disease Survivorship Advocate Manager, Web Communications Eurodis (Source: The Stupid Cancer Show - Blog Talk Radio)
Source: The Stupid Cancer Show - Blog Talk Radio - February 24, 2009 Category: Cancer & Oncology Authors: Stupid Cancer Show Tags: Health Source Type: podcasts
