EveryLife Foundation for Rare Diseases Travel Scholarship
The EveryLife Foundation for Rare Diseases is providing travel stipends for patient advocates in United States (outside of the DC metro area) to attend FDA meetings & Capitol Hill events. Scholarships are given to ensure patients have the ability to participate in these important meetings. Travel stipends range from $300-$1,000 maximum and are intended to help offset travel costs but not to cover all costs in full. The amount of the award depends upon the distance the recipient has to travel for the event. Scholarship Applications for Rare Disease Week 2015 will be closed on Dec. 31st, 2014. (Source: ScanGrants feed)
Source: ScanGrants feed - December 9, 2014 Category: Research Authors: EveryLife Foundation for Rare Diseases Source Type: funding
Benign Essential Blepharospasm Research Foundation Fellowship Program
Deadline: June 30, 2015 The Benign Essential Blepharospasm Research Foundation (BEBRF) is pleased to offer a research fellowship to support the training of exceptionally qualified physicians or scientists who wish to focus on blepharospasm with and without oromandibular dystonia. Fellowships will be awarded in the amount of up to $75,000 per year for two years. The training program should focus on research into new treatments, pathophysiology or the genetics of benign essential blepharospasm and oromandibular dystonia. Research into photophobia, dry eye, and apraxia of the eyelid opening as they relate to benign e...
Source: ScanGrants feed - December 8, 2014 Category: Research Authors: Benign Essential Blepharospasm Research Foundation Source Type: funding
Clinical Studies of Safety and Effectiveness of Orphan Products Research Project Grant (R01)
Funding Opportunity RFA-FD-15-001 from the NIH Guide for Grants and Contracts. The goal of FDA's OPD grant program is to support the clinical development of products for use in rare diseases or conditions where no current therapy exists or where the product being developed will be superior to the existing therapy. FDA provides grants for clinical studies on safety and/or effectiveness that will either result in, or substantially contribute to, market approval of these products. Applicants must include in the application's Background and Significance section documentation to support the assertion that the orphan dise...
Source: NIH Funding Opportunities (Notices, PA, RFA) - October 20, 2014 Category: Research Source Type: funding
Limited Competition for the Continuation of Rare Diseases Clinical Research Consortia in the Rare Diseases Clinical Research Network (U54)
Funding Opportunity Number: PAR-15-019 Opportunity Category: DiscretionaryFunding Instrument Type: Cooperative AgreementCategory of Funding Activity: EducationHealthCFDA Number: 93.35093.39493.39593.853Eligible Applicants State governmentsCounty governmentsCity or township governmentsSpecial district governmentsIndependent school districtsPublic and State controlled institutions of higher educationNative American tribal governments (Federally recognized)Public housing authorities/Indian housing authoritiesNative American tribal organizations (other than Federally recognized tribal governments)Nonprof...
Source: Grants.gov - October 17, 2014 Category: Research Tags: Education Health Source Type: funding
Limited Competition for the Continuation of Rare Diseases Clinical Research Consortia in the Rare Diseases Clinical Research Network (U54)
Funding Opportunity PAR-15-019 from the NIH Guide for Grants and Contracts. This Funding Opportunity Announcement (FOA) is limited to those Program Director(s)/Principal Investigator(s) of Rare Diseases Clinical Research Consortia (RDCRC) who received an NINDS award under the Rare Diseases Clinical Research Network (RDCRN) program through RFA-TR-13-002, or an NCI award through RFA-OD-08-001. The purpose of this limited competition FOA is to allow these NINDS- and NCI-awarded consortia an opportunity to compete for another four years of participation in the RDCRN. The RDCRN is a collaborative and coordinated network...
Source: NIH Funding Opportunities (Notices, PA, RFA) - October 16, 2014 Category: Research Source Type: funding
Notice of Intent to Publish a Limited Competition Announcement for Applications for Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases Clinical Research Network (U54)
Notice NOT-NS-14-042 from the NIH Guide for Grants and Contracts (Source: NIH Funding Opportunities (Notices, PA, RFA))
Source: NIH Funding Opportunities (Notices, PA, RFA) - August 8, 2014 Category: Research Source Type: funding
Undiagnosed Diseases Gene Function Research (R21)
Funding Opportunity Number: RFA-RM-14-005 Opportunity Category: DiscretionaryFunding Instrument Type: GrantCategory of Funding Activity: HealthCFDA Number: 93.310Eligible Applicants State governmentsCounty governmentsCity or township governmentsSpecial district governmentsIndependent school districtsPublic and State controlled institutions of higher educationNative American tribal governments (Federally recognized)Public housing authorities/Indian housing authoritiesNative American tribal organizations (other than Federally recognized tribal governments)Nonprofits having a 501(c)(3) status with the I...
Source: Grants.gov - April 18, 2014 Category: Research Tags: Health Source Type: funding
Undiagnosed Diseases Gene Function Research (R21)
Funding Opportunity RFA-RM-14-005 from the NIH Guide for Grants and Contracts. This Exploratory/Developmental Research Funding Opportunity intends to support gene function studies in collaboration with the Undiagnosed Diseases Network (UDN) building upon the NIH Intramural Research Programs Undiagnosed Diseases Program (NIH-UDP). Responsive applications will propose to investigate the underlying genetics, biochemistry and/or pathophysiology of newly diagnosed diseases in association with the respective gene variant(s) identified through the UDN. In recent years, gene function studies combined with genetic and genomic...
Source: NIH Funding Opportunities (Notices, PA, RFA) - April 18, 2014 Category: Research Source Type: funding
Call for Entries: EveryLife Art Contest
Entry Deadline: Rare Disease Day, February 28, 2014 11:59 pm. Voting continues until March 15, 2014. Awards to be announced April 1, 2014. The EveryLife Art Contest was established to exhibit the unique gifts of individuals affected by rare diseases and to promote the expression of their stories through art. Children (4-11): $100 gift card Teens (12-17): $250 gift card Adults (18+): $500 gift card Adults- Photography/Digital Art: $500 gift card (Source: ScanGrants feed)
Source: ScanGrants feed - February 25, 2014 Category: Research Authors: Rare Artist Source Type: funding
Clinical Studies of Safety and Effectiveness of Orphan Products Research Project Grant (R01)
Funding Opportunity Number: RFA-FD-13-001 Opportunity Category: DiscretionaryFunding Instrument Type: GrantCategory of Funding Activity: Business and CommerceCommunity DevelopmentConsumer ProtectionEducationEnvironmentFood and NutritionHealthInformation and StatisticsNatural ResourcesRegional DevelopmentScience and Technology and other Research and DevelopmentCFDA Number: 93.103Eligible Applicants State governmentsCounty governmentsCity or township governmentsSpecial district governmentsPublic and State controlled institutions of higher educationNative American tribal governments (Federally recognize...
Source: Grants.gov - October 27, 2013 Category: Research Tags: Business and Commerce Community Development Consumer Protection Education Environment Food and Nutrition Health Information and Statistics Natural Resources Regional Development Science and Technology and other Research and Development Source Type: funding
Data Management and Coordinating Center (DMCC) for Rare Diseases Clinical Research Network (RDCRN) (U01)
Funding Opportunity Number: RFA-TR-13-003 Opportunity Category: DiscretionaryFunding Instrument Type: Cooperative AgreementCategory of Funding Activity: HealthCFDA Number: 93.12193.853Eligible Applicants State governmentsCounty governmentsCity or township governmentsSpecial district governmentsIndependent school districtsPublic and State controlled institutions of higher educationNative American tribal governments (Federally recognized)Public housing authorities/Indian housing authoritiesNative American tribal organizations (other than Federally recognized tribal governments)Nonprofits having a 501(c...
Source: Grants.gov - October 23, 2013 Category: Research Tags: Health Source Type: funding
Data Management and Coordinating Center (DMCC) for Rare Diseases Clinical Research Network (RDCRN) (U01)
Funding Opportunity RFA-TR-13-003 from the NIH Guide for Grants and Contracts. The purpose of this Funding Opportunity Announcement (FOA) is to invite new and renewal cooperative agreement applications for the DMCC, which supports the RDCRN. The Network facilitates clinical research in rare diseases through support for 1) collaborative clinical research in rare diseases, including longitudinal studies of individuals with rare diseases, clinical studies and/or phase I , II and II/III trials; 2) training of clinical investigators in rare diseases research; 3) pilot and demonstration projects; 4) clinical data manageme...
Source: NIH Funding Opportunities (Notices, PA, RFA) - October 21, 2013 Category: Research Source Type: funding
Notice of Pre-Application Meeting for RFA-TR-13-002 Rare Diseases Clinical Research Consortia (RDCRC) for the Rare Diseases Clinical Research Network (U54)
Notice NOT-TR-13-008 from the NIH Guide for Grants and Contracts (Source: NIH Funding Opportunities (Notices, PA, RFA))
Source: NIH Funding Opportunities (Notices, PA, RFA) - August 29, 2013 Category: Research Source Type: funding
Rare Diseases Clinical Research Consortia (RDCRC) for Rare Diseases Clinical Research Network (U54)
Funding Opportunity Number: RFA-TR-13-002 Opportunity Category: DiscretionaryFunding Instrument Type: Cooperative AgreementCategory of Funding Activity: Food and NutritionHealthIncome Security and Social ServicesCFDA Number: 93.12193.83793.83893.83993.84693.84793.85393.85593.85693.865Eligible Applicants State governmentsCounty governmentsCity or township governmentsSpecial district governmentsIndependent school districtsPublic and State controlled institutions of higher educationNative American tribal governments (Federally recognized)Public housing authorities/Indian housing authoritiesNative Americ...
Source: Grants.gov - August 17, 2013 Category: Research Tags: Food and Nutrition Health Income Security and Social Services Source Type: funding
Rare Diseases Clinical Research Consortia (RDCRC) for Rare Diseases Clinical Research Network (U54)
Funding Opportunity RFA-TR-13-002 from the NIH Guide for Grants and Contracts. The purpose of this FOA is to facilitate clinical research in rare diseases through support for 1) collaborative clinical research in rare diseases, including longitudinal studies of individuals with rare diseases, clinical studies and/or clinical trials; 2) training of clinical investigators in rare diseases research; 3) pilot/demonstration (proof of concepts) clinical research projects; and 4) access to information related to rare diseases for basic and clinical researchers, academic and practicing physicians, patients, and the lay publi...
Source: NIH Funding Opportunities (Notices, PA, RFA) - August 13, 2013 Category: Research Source Type: funding
