Heavy Menstrual Bleeding in Adolescents with Joint Hypermobility Syndrome/Hypermobile-Type Ehlers-Danlos: A Review
Pediatr Ann. 2024 Mar;53(3):e104-e108. doi: 10.3928/19382359-20240109-05. Epub 2024 Mar 1.ABSTRACTHeavy menstrual bleeding has a high prevalence and is well documented in adult patients with hypermobile-type Ehlers-Danlos syndrome, but there is limited research surrounding work-up and treatment for the adolescent population. Excessive menstrual blood loss can significantly interfere with emotional and physical quality of life. A provider should acquire a comprehensive medical and menstrual history and focused physical examination, as well as baseline laboratory studies, to determine the presence of anemia or underlying ble...
Source: Pediatric Annals - March 11, 2024 Category: Pediatrics Authors: Erin Isaacson Tazim Dowlut-McElroy Source Type: research
Improving Cultural Humility Among Pediatric Patients With Complex Medical Needs
This article presents an evaluation of cultural humility and how the awareness of differing viewpoints, values, and norms can assist and improve the medical care of pediatric patients with chronic complex conditions. [Pediatr Ann. 2024;53(3):e88-e92.].PMID:38466326 | DOI:10.3928/19382359-20240109-02 (Source: Pediatric Annals)
Source: Pediatric Annals - March 11, 2024 Category: Pediatrics Authors: Kimberly M Tarver Source Type: research
Psychological Care of the Family of Children with Medical Complexities
Pediatr Ann. 2024 Mar;53(3):e93-e98. doi: 10.3928/19382359-20240109-03. Epub 2024 Mar 1.ABSTRACTAdvances in medical knowledge and treatments have made possible the survival of children with diseases that require lifelong care, and increasing numbers of families with children with medical complexity are presenting for health care. Owing to an increase in home-based care, the responsibility of complicated treatment regimens falls on parents and family caregivers. Based on studies and national survey, parents of children with medical complexity fare worse in mental health and family functioning. This review describes screenin...
Source: Pediatric Annals - March 11, 2024 Category: Pediatrics Authors: Andrea Scheid Shashi Sahai Source Type: research
Symptom Management in Children Who Are Neurologically Impaired for the Primary Care Medical Home
Pediatr Ann. 2024 Mar;53(3):e82-e87. doi: 10.3928/19382359-20240108-02. Epub 2024 Mar 1.ABSTRACTChildren with neurologic impairment are a growing population of pediatric patients who require care from a large team of physicians to maintain their health. These children often have similar clinical patterns and symptoms that occur because of their neurologic impairment. Families often seek care first from their primary care home to identify and guide initial steps in management. Identifying the symptoms outlined in the 4 cases in this article will help alleviate consequences of delayed care for these patients and provide oppo...
Source: Pediatric Annals - March 11, 2024 Category: Pediatrics Authors: Wisdeen Wu Source Type: research
Telehealth and Children with Medical Complexity
This article details the numerous benefits of telehealth to CMC with an emphasis on its use as an extender of the medical home, describes the venues in which telehealth augments access to safe, high-quality care, presents best practices in engaging in telehealth encounters, and enumerates barriers that may exacerbate current health inequities. We review current published telehealth patient-/caregiver-level, clinician-level, and payor-level outcomes while revealing research gaps and opportunities. [Pediatr Ann. 2024;53(3):e74-e81.].PMID:38466329 | DOI:10.3928/19382359-20240109-01 (Source: Pediatric Annals)
Source: Pediatric Annals - March 11, 2024 Category: Pediatrics Authors: Ruchi Kaushik Source Type: research
Integrative Care for Children with Medical Complexities
Pediatr Ann. 2024 Mar;53(3):e72-e73. doi: 10.3928/19382359-20240108-01. Epub 2024 Mar 1.NO ABSTRACTPMID:38466330 | DOI:10.3928/19382359-20240108-01 (Source: Pediatric Annals)
Source: Pediatric Annals - March 11, 2024 Category: Pediatrics Authors: Wisdeen Wu Patricia K DeForest Source Type: research
Immunization for Respiratory Syncytial Virus-Promises and Pitfalls
Pediatr Ann. 2024 Mar;53(3):e70-e71. doi: 10.3928/19382359-20240214-01. Epub 2024 Mar 1.NO ABSTRACTPMID:38466331 | DOI:10.3928/19382359-20240214-01 (Source: Pediatric Annals)
Source: Pediatric Annals - March 11, 2024 Category: Pediatrics Authors: Joseph R Hageman Lolita Alcocer Alkureishi Source Type: research
Navigating Difficult Conversations in Caring for Children with Medical Complexity
This article reviews three difficult situations that families of children with medical complexity may face and three different readily available and valuable frameworks to assist with navigating those difficult conversations. [Pediatr Ann. 2024;53(3):e99-e103.].PMID:38466332 | DOI:10.3928/19382359-20240109-04 (Source: Pediatric Annals)
Source: Pediatric Annals - March 11, 2024 Category: Pediatrics Authors: Patricia K DeForest Source Type: research
Heavy Menstrual Bleeding in Adolescents with Joint Hypermobility Syndrome/Hypermobile-Type Ehlers-Danlos: A Review
Pediatr Ann. 2024 Mar;53(3):e104-e108. doi: 10.3928/19382359-20240109-05. Epub 2024 Mar 1.ABSTRACTHeavy menstrual bleeding has a high prevalence and is well documented in adult patients with hypermobile-type Ehlers-Danlos syndrome, but there is limited research surrounding work-up and treatment for the adolescent population. Excessive menstrual blood loss can significantly interfere with emotional and physical quality of life. A provider should acquire a comprehensive medical and menstrual history and focused physical examination, as well as baseline laboratory studies, to determine the presence of anemia or underlying ble...
Source: Pediatric Annals - March 11, 2024 Category: Pediatrics Authors: Erin Isaacson Tazim Dowlut-McElroy Source Type: research
Sickle Cell Disease: Past, Present, and Future
Pediatr Ann. 2024 Feb;53(2):e42. doi: 10.3928/19382359-20231205-01. Epub 2024 Feb 1.NO ABSTRACTPMID:38302119 | DOI:10.3928/19382359-20231205-01 (Source: Pediatric Annals)
Source: Pediatric Annals - February 1, 2024 Category: Pediatrics Authors: Radhika Peddinti Source Type: research
Comprehensive Care in Sickle Cell Disease
Pediatr Ann. 2024 Feb;53(2):e43-e46. doi: 10.3928/19382359-20231205-02. Epub 2024 Feb 1.ABSTRACTDespite advancements in sickle cell disease (SCD) management, individuals with SCD continue to face greater degrees of mortality, disability, and health care barriers compared with their healthy peers. Comprehensive care includes essential elements such as newborn screening, key immunizations, penicillin prophylaxis, and consistent health screening for common complications. Pediatricians should be familiar with treatment options for SCD to offer informed education to both patients and their families. By providing guided and comp...
Source: Pediatric Annals - February 1, 2024 Category: Pediatrics Authors: Ananya Chandra Sabina Shamayeva Wendy Darlington Source Type: research
Disease-Modifying Therapies for Sickle Cell Disease-An Overview
Pediatr Ann. 2024 Feb;53(2):e52-e55. doi: 10.3928/19382359-20231205-05. Epub 2024 Feb 1.ABSTRACTSickle cell disease refers to a group of inherited blood disorders in which hemoglobin polymerization leads to hemolysis and vaso-occlusion. This causes a myriad of complications during a patient's life span, ranging from anemia, infections, and acute and chronic pain to stroke and multiorgan dysfunction. Although there have been dramatic improvements in childhood survival thanks to improved supportive care with penicillin prophylaxis, immunizations, and improved transfusion practices, there was a dearth of disease-modifying the...
Source: Pediatric Annals - February 1, 2024 Category: Pediatrics Authors: Radhika Peddinti Source Type: research
Curative Therapies for Sickle Cell Disease
Pediatr Ann. 2024 Feb;53(2):e56-e61. doi: 10.3928/19382359-20231205-06. Epub 2024 Feb 1.ABSTRACTSickle cell disease (SCD) is an autosomal recessive hemoglobinopathy that affects individuals worldwide. The mutation in the beta-globin gene leads to abnormal hemoglobin production, sickle hemoglobin, which polymerizes under stress leading to, among other end-organ manifestations, chronic hemolytic anemia, debilitating vaso-occlusive crises, and stroke. Unfortunately, chronic stress on end-organs impacts the life expectancy of patients with SCD, which in the United States averages 43 years, approximately 36 years less than peop...
Source: Pediatric Annals - February 1, 2024 Category: Pediatrics Authors: Saara Kaviany Zhour Barnawi James LaBelle Source Type: research
Management of Acute Complications of Sickle Cell Disease
Pediatr Ann. 2024 Feb;53(2):e47-e51. doi: 10.3928/19382359-20231205-03. Epub 2024 Feb 1.ABSTRACTSickle cell disease (SCD) is a group of inherited autosomal recessive disorders that affect hemoglobin structure. The presence of this mutated form of hemoglobin, hemoglobin S, results in the abnormally ("sickle") shaped cells. These sickle-shaped red blood cells lead to the disruption of blood flow in small vessels and result in a myriad of complications. Pain, excruciating and unpredictable, is the hallmark of the disease. In addition, many organs are affected, including but not limited to brain, kidneys, bones, and lungs. Thi...
Source: Pediatric Annals - February 1, 2024 Category: Pediatrics Authors: Sabina Shamayeva Perry Morocco Source Type: research
Concussion Care in Teenage Athletes
Pediatr Ann. 2024 Feb;53(2):e39-e41. doi: 10.3928/19382359-20240117-01. Epub 2024 Feb 1.ABSTRACTConcussion is a form of traumatic brain injury that occurs commonly in pediatric patients. One group at higher risk for concussion is adolescent and teenage athletes. Athletes may sustain one or more concussions throughout their athletic careers, and these injuries may lead to significant morbidities for children. Although most concussion symptoms will resolve in less than 1 month, there is a subset of patients for whom symptoms may persist. Given the increased interest in preventing long-term sequelae related to concussion, leg...
Source: Pediatric Annals - February 1, 2024 Category: Pediatrics Authors: Molly M Diaz Kane Source Type: research
