Association News
No abstract available (Source: Journal of Hospice and Palliative Nursing)
Source: Journal of Hospice and Palliative Nursing - January 5, 2021 Category: Nursing Tags: DEPARTMENTS: Association News Source Type: research

The “Other” Confronting Injustice in 2021 and Beyond
No abstract available (Source: Journal of Hospice and Palliative Nursing)
Source: Journal of Hospice and Palliative Nursing - January 5, 2021 Category: Nursing Tags: DEPARTMENTS: From the Editor Source Type: research

Advance Care Planning Engagement Among Muslim Community-Dwelling Adults Living in the United States
No abstract available (Source: Journal of Hospice and Palliative Nursing)
Source: Journal of Hospice and Palliative Nursing - October 29, 2020 Category: Nursing Tags: DEPARTMENTS: CE Tests Source Type: research

Managing Dyspnea in Individuals With Idiopathic Pulmonary Fibrosis
No abstract available (Source: Journal of Hospice and Palliative Nursing)
Source: Journal of Hospice and Palliative Nursing - October 29, 2020 Category: Nursing Tags: DEPARTMENTS: CE Tests Source Type: research

Comparison of Perceptions of Spiritual Care Among Patients With Life-Threatening Cancer, Primary Family Caregivers, and Hospice/Palliative Care Nurses in South Korea
This study aimed to compare perceptions of spiritual care among patients with life-threatening cancer, their primary family caregivers, and hospice/palliative care nurses. (Source: Journal of Hospice and Palliative Nursing)
Source: Journal of Hospice and Palliative Nursing - October 29, 2020 Category: Nursing Tags: Global Exemplar Series Source Type: research

An End-of-Life Care Educational Series to Improve Staff Knowledge and Comfort Levels
Nursing staff play a key role in enhancing a patient's quality of life during end of life; however, they perceive lack of knowledge to be the largest barrier in providing quality end-of-life (EOL) care. Literature suggests that implementation of palliative and EOL care education can improve nursing EOL care practices. In order to address the gap in nursing knowledge and comfort, a quasi-experimental study was conducted; this study included the implementation of a multimodal EOL care educational series on an inpatient pediatric hematology oncology floor over 6 months. Prior to implementation, nursing staff completed a surve...
Source: Journal of Hospice and Palliative Nursing - October 29, 2020 Category: Nursing Tags: Feature Articles Source Type: research

Family Bereavement Adaptation After Death of a Loved One in an Intensive Care Unit: Impact of Race/Ethnicity
Limited longitudinal studies have hindered the understanding of family adaptation after loss of a loved one in an intensive care unit (ICU). Based on the Double ABCX Model, this study examined changes in adaptation to bereavement for family members in the first year after the ICU death, with special attention to the effects of race/ethnicity. A repeated-measures design was used to conduct the investigation using 3 time points (1-3, 6, and 12 months) after the ICU death. Data were analyzed using linear mixed modeling. Family members (n = 30) consisted of 60% non-Hispanic Whites and 40% African Americans (AAs). During the fi...
Source: Journal of Hospice and Palliative Nursing - October 29, 2020 Category: Nursing Tags: Feature Articles Source Type: research

Evaluation of Self-efficacy and Confidence Levels Among Newly Graduated Nurses Exposed to an End-of-Life Simulation: A Comparison Study
Self-efficacy and confidence levels among newly graduated nurses who participated in an end-of-life simulation were compared with nurses who had been practicing for no more than a year but had not participated in an end-of-life simulation. The study included a pretest-and-posttest evaluation of an end-of-life simulation intervention during a new graduate residency program among newly graduated nurses to improve self-efficacy and confidence with end-of-life care. Nurses who had been in practice for no more than a year but had not been exposed to an end-of-life simulation intervention were also surveyed. The Palliative Care ...
Source: Journal of Hospice and Palliative Nursing - October 29, 2020 Category: Nursing Tags: Feature Articles Source Type: research

The “PalliActive Caregivers” Intervention for Caregivers of Patients With Cancer in Palliative Care: A Feasibility Pilot Study
This pilot study aimed to assess the feasibility and possible effects of the “PalliActive Caregivers,” nursing intervention, on the uncertainty in illness and quality of life of family caregivers of patients with cancer receiving palliative care. This pilot study used a randomized controlled design. The participants were 80 family caregivers. The experimental group received the novel “PalliActive Caregivers” intervention. Data were collected using a sociodemographic form, the Uncertainty in Illness Scale, the Quality of Life scale, and an Intervention satisfaction questionnaire. The caregivers who received the inte...
Source: Journal of Hospice and Palliative Nursing - October 29, 2020 Category: Nursing Tags: Feature Articles Source Type: research

A Pilot Study of Nonpharmacological Interventions for Hospice Patients With Behavioral and Psychological Symptoms in Dementia
The objective of this study was to analyze the efficacy of tailored nonpharmacological interventions for mitigation of unwanted behaviors in the population of patients with behavioral and psychological symptoms in dementia while receiving hospice care. The 4-domain Pittsburgh Agitation Scale (PAS; Motor, Verbal, Aggressive, Resistance to Care) was used for multiple baseline and posttest measurements of agitation. Effectiveness of nonpharmacological interventions was evaluated using analysis of variance for repeated measures for the total PAS score. Motor agitation was the presenting problem with highest-rated severity comp...
Source: Journal of Hospice and Palliative Nursing - October 29, 2020 Category: Nursing Tags: Feature Articles Source Type: research

Advance Care Planning Engagement Among Muslim Community-Dwelling Adults Living in the United States
Advance care planning (ACP) is a cornerstone of self-determination for the type of care provided at the end of life. Despite many national efforts to improve American adults' engagement in ACP, statistics indicate low engagement. Low engagement, especially among racial and ethnic minority populations, immigrants, people with lower socioeconomic status, young adults, rural residents, or non-English speakers, is common. Advance care planning engagement among Muslims living in the United States has been minimally studied. The purpose of this study was to explore Muslims' engagement in ACP. A cross-sectional descriptive design...
Source: Journal of Hospice and Palliative Nursing - October 29, 2020 Category: Nursing Tags: Feature Articles Source Type: research

Compassion Fatigue in Nurses Caring for Medically Complex Children
The number of children living with chronic, complex medical needs is steadily increasing secondary to advances in clinical technology and disease management. As a result, patient care requirements become multifaceted with the need for specific therapies and treatments that require extensive knowledge and skills. As these children are managed throughout the health care continuum, nurses are challenged to offer specialized care for complex conditions, while meeting the personnel and financial demands of the changing health care environment. It is well established that medically complex children can put a burden on family lif...
Source: Journal of Hospice and Palliative Nursing - October 29, 2020 Category: Nursing Tags: Feature Articles Source Type: research

An Exploratory Study of the Influence of Perceived Organizational Support, Coworker Social Support, the Nursing Practice Environment, and Nurse Demographics on Burnout in Palliative Care Nurses
Burnout, a condition characterized by emotional exhaustion, depersonalization, and decreased personal accomplishment, has been studied in many disciplines in health care, including nursing, medicine, and social work. The purpose of this study was to examine the relationship between perceived organizational support, coworker social support, the nursing practice environment, and nurse demographics (age, years of nursing experience, education level, marital status, and sex) on burnout in a national sample of palliative care nurses. The study aims were (1) to examine the relationship between perceived organizational support, c...
Source: Journal of Hospice and Palliative Nursing - October 29, 2020 Category: Nursing Tags: Feature Articles Source Type: research

Palliative Care Knowledge and Characteristics in Caregivers of Chronically Ill Children
There is a growing population of children with complex chronic conditions (CCCs) whose caregivers would benefit from palliative care (PC). However, little is known about caregivers' PC awareness. We aimed to describe PC awareness among caregivers of children with CCCs and identify factors associated with lack of PC awareness. We used the National Cancer Institute's national Health Information National Trends Survey 2018 data to determine the percentage of caregivers of ill children who have PC awareness. After matching, caregiver PC awareness was compared with that of (1) the general survey population, (2) other caregivers...
Source: Journal of Hospice and Palliative Nursing - October 29, 2020 Category: Nursing Tags: Feature Articles Source Type: research

Managing Dyspnea in Individuals With Idiopathic Pulmonary Fibrosis
Idiopathic pulmonary fibrosis is an unrelenting form of interstitial lung disease associated with a high symptom burden and reported low health-related quality of life. Clinicians have access to limited pharmacologic interventions to help slow the disease progression. Nonpharmacologic interventions are vital in managing dyspnea for these individuals, which is one of the most frequently reported factors that negatively impacts health-related quality of life. Common methods of symptom control include integration of pulmonary rehabilitation, supplemental oxygen, and interdisciplinary support, such as support groups, palliativ...
Source: Journal of Hospice and Palliative Nursing - October 29, 2020 Category: Nursing Tags: Symptom Management Series Source Type: research