Journal of Hospice and Palliative Nursing This is an RSS file. You can use it to subscribe to this data in your favourite RSS reader or to display this data on your own website or blog.

Providing Palliative Care to Neonates With Anencephaly in the Home Setting
This article is a secondary analysis that discusses the concerns and complications that parents experienced after bringing home a neonate with anencephaly. Each parental experience is a qualitative descriptive summary extracted from a larger study on the impact of anencephaly on parents. Parents reported feeling alone in their grief and struggled with their partners' differing style of grief. Parents' primary concerns after hospital discharge included transporting their neonate home, feeding their neonate, changing cranial defect dressings, managing pain and seizures, addressing uncertainty, and facilitating a good death. ...
Source: Journal of Hospice and Palliative Nursing - July 9, 2021 Category: Nursing Tags: Feature Articles Source Type: research

Compassionate Removal of Heated High-Flow Nasal Cannula for End of Life: Case Series and Protocol Development
We present a clinical protocol designed for weaning HHFNC to allow a natural death and ensuring adequate symptom management throughout the process. This was a retrospective chart review of 8 patients seen by an inpatient palliative care service of an academic tertiary referral hospital who underwent terminal weaning of HHFNC using a structured protocol to manage dyspnea. Eight patients with diverse medical diagnoses, including COVID-19 pneumonia, underwent terminal weaning of HHFNC according to the clinical protocol with 4 down-titrations of approximately 25% for both fraction of inspired oxygen and liter flow with preempt...
Source: Journal of Hospice and Palliative Nursing - July 9, 2021 Category: Nursing Tags: Feature Articles Source Type: research

Promoting Evidence-Based Practice in Clinical Education at a Hospice Designated Education Unit
Integration of palliative care principles into undergraduate nursing curriculum is essential to prepare students to provide supportive care services across the continuum of care for individuals with serious illness. Baccalaureate nursing curricula emphasize development and application of evidence-based practice (EBP); however, development of nursing skills often overshadows teaching students how to deliver care or facilitate practice changes based on evidence in clinical education. Problems revealed in clinical practice are a valuable tool for improving student use and appreciation of EBP in clinical settings. The EBP proj...
Source: Journal of Hospice and Palliative Nursing - July 9, 2021 Category: Nursing Tags: Feature Articles Source Type: research

“I Feel All Alone Out Here”: Analysis of Audio Diaries of Bereaved Hospice Family Caregivers During the COVID-19 Pandemic
The COVID-19 pandemic has dramatically changed social life. This secondary qualitative analysis aimed to better understand the impact of the pandemic on bereaved hospice family caregivers' experiences of social connection and isolation in a time of social distancing and general anxiety. Six caregivers in 3 states recorded audio diaries (N = 59) between March 13 and May 15, 2020. Caregivers were, on average, 56.80 years old (SD, 14.22; range, 32-67 years old) and consisted of spouses (n = 2), adult children (n = 3), and a sibling (n = 1). Using NVIVO 12, caregiver diaries were coded for (1) “social connection” (n = 23),...
Source: Journal of Hospice and Palliative Nursing - July 9, 2021 Category: Nursing Tags: Feature Articles Source Type: research

Simulated Learning Experience in Advance Care Planning Conversations
The Centers for Disease Control and Prevention reports that one-third of all Americans have not done any advance care planning, which is essential for maintaining autonomy when people are no longer able to communicate wishes directly at the end of life. The Institute of Medicine reports that providers have limited training in communication techniques and low confidence in holding advance care planning conversations. Forty-four family nurse practitioner students received classroom communication training using evidence-based end-of-life nursing education consortium materials and role-play opportunities. One month later, stud...
Source: Journal of Hospice and Palliative Nursing - July 9, 2021 Category: Nursing Tags: Feature Articles Source Type: research

Parental Posttraumatic Growth After Pediatric Hematopoietic Stem Cell Transplant
Little is known about the development of posttraumatic growth among parents of children with serious advanced disease. The purpose of this study is to describe parental posttraumatic growth 100 days after pediatric stem cell transplant. This is a cross-sectional, descriptive study of 24 parents, approximately 100 days after their children received stem cell transplant. Participants reported environmental, personal, and disease characteristics and completed measures of distress, coping, rumination, and posttraumatic growth. Evidence of parental posttraumatic growth was described in each of 5 dimensions (relating to others, ...
Source: Journal of Hospice and Palliative Nursing - July 9, 2021 Category: Nursing Tags: Feature Articles Source Type: research

The Mutual Effects of Perceived Spiritual Needs on Quality of Life in Patients With Advanced Cancer and Family Caregivers
This study used the Actor-Partner Interdependence Model as the conceptual model to investigate the mutual effects of perceived spiritual needs on the quality of life in patients with advanced cancer and their family caregivers after being admitted to hospice. This cross-sectional study used the baseline data of a large clinical trial and identified that patients with cancer and their family caregivers perceived similar spiritual needs associated with the community and outlook needs and had fewer unmet spiritual needs. After controlling for partner effects, perceived outlook needs shown in patients significantly predicted t...
Source: Journal of Hospice and Palliative Nursing - July 9, 2021 Category: Nursing Tags: Feature Articles Source Type: research

A Review of Web-Based COVID-19 Resources for Palliative Care Clinicians, Patients, and Their Caregivers
Palliative and end-of-life care has been pushed to the forefront of medical care during the pandemic caused by the coronavirus-2019 (COVID-19). Palliative care organizations have responded to the growing demand for the rapid dissemination of research, clinical guidance, and instructions for care to clinicians, patients with COVID-19, and their caregivers by creating COVID-19 resource Web pages. Here, end users can access resources that can be updated in real time. These Web pages, however, can be variable in what resources they offer and for whom they are designed for (clinicians, patients, caregivers). Therefore, this pro...
Source: Journal of Hospice and Palliative Nursing - July 9, 2021 Category: Nursing Tags: Special Article: COVID-19 Source Type: research

Music Therapy and Nursing Cotreatment in Integrative Hospice and Palliative Care
This article introduces processes of referral, assessment, and treatment that nurses and music therapists may engage in to address family support, spirituality, bereavement, and telehealth. Clinical vignettes are provided to illustrate how cotreatment may evolve and its potential benefits given diverse circumstances. As part of this framing, music therapy is positioned as a core—rather than alternative or complementary—service in hospice that satisfies the required counseling services detailed in Medicare's Conditions of Participation for hospice providers. The systematic and intentional partnering of nurses and music ...
Source: Journal of Hospice and Palliative Nursing - July 9, 2021 Category: Nursing Tags: Symptom Management Series Source Type: research

Caring for an Unconscious Transgender Patient at the End of Life: Ethical Considerations and Implications
This article describes an approach to the provision of affirmative, trans-inclusive care in a palliative nursing context that integrates cultural humility and self-reflection into an established patient care framework. The approach is then applied to identify ethical dilemmas present in the case of a trans patient who arrived at a hospital in an unconscious state following serious injury. Nurses' use of the ethical approach when caring for seriously ill trans patients would represent important progress toward fostering a health care system that provides affirmative, trans-inclusive care. (Source: Journal of Hospice and Palliative Nursing)
Source: Journal of Hospice and Palliative Nursing - July 9, 2021 Category: Nursing Tags: Ethics Series Source Type: research

HPNA July/August 2021 Association News
No abstract available (Source: Journal of Hospice and Palliative Nursing)
Source: Journal of Hospice and Palliative Nursing - July 9, 2021 Category: Nursing Tags: DEPARTMENTS: Association News Source Type: research

Being a Bereavement-Conscious Hospice and Palliative Care Clinician
No abstract available (Source: Journal of Hospice and Palliative Nursing)
Source: Journal of Hospice and Palliative Nursing - July 9, 2021 Category: Nursing Tags: DEPARTMENTS: From the Editor Source Type: research

Delirium Education in Hospice Care: A Quality Improvement Project
No abstract available (Source: Journal of Hospice and Palliative Nursing)
Source: Journal of Hospice and Palliative Nursing - May 13, 2021 Category: Nursing Tags: DEPARTMENTS: NCPD Tests Source Type: research

Withholding Medical Interventions and Ageism During a Pandemic: A Model for Resource Allocation Decision Making
No abstract available (Source: Journal of Hospice and Palliative Nursing)
Source: Journal of Hospice and Palliative Nursing - May 13, 2021 Category: Nursing Tags: DEPARTMENTS: NCPD Tests Source Type: research

Medical Cannabis
No abstract available (Source: Journal of Hospice and Palliative Nursing)
Source: Journal of Hospice and Palliative Nursing - May 13, 2021 Category: Nursing Tags: DEPARTMENTS: Position Statement Source Type: research