Measurement properties of the EQ-5D-5L and PROPr in patients with spinal muscular atrophy
Spinal muscular atrophy (SMA) is a rare monogenic neuromuscular disorder caused by loss of function mutations. Measuring health-related quality of life to support economic evaluations in this population is enc... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - November 15, 2023 Category: International Medicine & Public Health Authors: Richard Huan Xu, Bin Ma, Huanping Xin, Huanyu Zhang, Yan Zeng, Nan Luo and Dong Dong Tags: Research Source Type: research

Development and psychometric evaluation of item banks for memory and attention – supplements to the EORTC CAT Core instrument
Cancer patients may experience a decrease in cognitive functioning before, during and after cancer treatment. So far, the Quality of Life Group of the European Organisation for Research and Treatment of Cancer... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - November 15, 2023 Category: International Medicine & Public Health Authors: AA Rogge, MA Petersen, NK Aaronson, T Conroy, L Dirven, F Fischer, EJJ Habets, JC Reijneveld, M Rose, C Sleurs, M Taphoorn, KA Tomaszewski, H Vachon, T Young and M Groenvold Tags: Research Source Type: research

Prediction of the SF-6D utility score from Lung cancer FACT-L: a mapping study in China
To develop a mapping algorithm for generating the Short Form Six-Dimension (SF-6D) utility score based on the Functional Assessment of Cancer Therapy-Lung (FACT-L) of lung cancer patients. (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - November 14, 2023 Category: International Medicine & Public Health Authors: Qing Yang, Long Lin Jiang, Yin Feng Li and Deyu Huang Tags: Research Source Type: research

Measurement invariance and adapted preferences: evidence for the ICECAP-A and WeRFree instruments
Self-report instruments are used to evaluate the effect of interventions. However, individuals adapt to adversity. This could result in individuals reporting higher levels of well-being than one would expect. ... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - November 10, 2023 Category: International Medicine & Public Health Authors: Jasper Ubels and Michael Schlander Tags: Research Source Type: research

A cross-sectional study of the relationship between injuries and quality of life, psychological distress, sleeping problems, and global subjective health in adults from three Norwegian counties
Studies examining associations between injuries and outcomes like quality of life and psychological distress are important to understand a broader range of possible consequences of injuries for population health. (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - November 3, 2023 Category: International Medicine & Public Health Authors: Leif Edvard Aar ø, Eyvind Ohm, Jens Christoffer Skogen, Thomas Nilsen, Marit Knapstad, Øystein Vedaa, Ragnhild Bang Nes, Benjamin Clarsen and Knut-Inge Klepp Tags: Research Source Type: research

Comparison of the measurement properties of the EQ-5D-5L and SF-6Dv2 among overweight and obesity populations in China
To evaluate and compare the measurement properties of the EQ-5D-5L and SF-6Dv2 among Chinese overweight and obesity populations. (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - October 31, 2023 Category: International Medicine & Public Health Authors: Shitong Xie, Meixuan Li, Dingyao Wang, Tianqi Hong, Weihua Guo and Jing Wu Tags: Research Source Type: research

Association between healthy lifestyle factors and health-related quality of life among Chinese adolescents: the moderating role of gender
To examine the associations of the independent and combined healthy lifestyle factors with health-related quality of life (HRQOL) in adolescents, and to test the moderating role of gender. (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - October 31, 2023 Category: International Medicine & Public Health Authors: Hongyu Xiang, Xiuqiong Feng, Li Lin, Shengyu Luo, Xinxia Liu, Dezhong Chen, Kang Qin, Xun Guo, Weiqing Chen and Vivian Yawei Guo Tags: Research Source Type: research

Comparisons of EQ-5D-Y and PedsQL in pediatric patients with mild-to-moderate chronic kidney disease in longitudinal analyses
To characterize longitudinal changes and correlations between the measures of EQ-5D-Y and generic PedsQL and their associations with clinical changes in children and adolescents with mild-to-moderate chronic k... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - October 27, 2023 Category: International Medicine & Public Health Authors: Chien-Ning Hsu, You-Lin Tain, Pei-Chen Lu and Hsiang-Wen Lin Tags: Research Source Type: research

Profiles of quality of life among patients using emergency departments for mental health reasons
This study identified profiles associated with quality of life (QoL) and sociodemographic and clinical characteristics of patients using emergency departments (ED) for mental health reasons and associated thes... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - October 26, 2023 Category: International Medicine & Public Health Authors: Marie-Jos ée Fleury, Zhirong Cao, Guy Grenier and Francine Ferland Tags: Comment Source Type: research

Socioeconomic status and health-related quality of life after stroke: a systematic review and meta-analysis
Socioeconomic status (SES) is associated with stroke occurrence and survival following stroke but its association with health-related quality of life (HRQoL) following stroke remains uncertain. We performed a ... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - October 25, 2023 Category: International Medicine & Public Health Authors: Yichao A. Sun, Serah Kalpakavadi, Sarah Prior, Amanda G. Thrift, Suzanne Waddingham, Hoang Phan and Seana L. Gall Tags: Review Source Type: research

Impact of walk advice alone or in combination with supervised or home-based structured exercise on patient-reported physical function and generic and disease-specific health related quality of life in patients with intermittent claudication, a secondary analysis in a randomized clinical trial
Supervised exercise is an integral part of the recommended first-line treatment for patients with intermittent claudication (IC). By reflecting the patients ’ perspectives, patient-reported outcome measurements... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - October 23, 2023 Category: International Medicine & Public Health Authors: Anna Sandberg, Maria B äck, Åsa Cider, Lennart Jivegård, Birgitta Sigvant and Joakim Nordanstig Tags: Research Source Type: research

Cross-walk of the Chronic Liver Disease Questionnaire for Nonalcoholic Steatohepatitis (CLDQ-NASH) and the EuroQol EQ-5D-5L in patients with NASH
Nonalcoholic steatohepatitis (NASH) is a chronic progression of nonalcoholic fatty liver disease, which can negatively impact the health-related quality of life (HRQoL) of affected individuals. HRQoL in NASH h... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - October 14, 2023 Category: International Medicine & Public Health Authors: Jesse Fishman, Victoria Higgins, James Piercy and James Pike Tags: Research Source Type: research

Impact of interventions on the quality of life of cancer patients: a systematic review and meta-analysis of longitudinal research
The impact of cancer interventions has been conducted in several research due to the significant burden of this non-communicable disease. The interventions that played an important role in the improvement of t... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - October 11, 2023 Category: International Medicine & Public Health Authors: Long Bao Nguyen, Linh Gia Vu, Thanh Thien Le, Xuan Thanh Nguyen, Nam Gia Dao, Duy Cao Nguyen, Trang Huyen Thi Dang, Thuc Minh Thi Vu, Laurent Boyer, Guillaume Fond, Pascal Auquier, Carl A. Latkin, Melvyn W.B. Zhang, Roger C.M. Ho and Cyrus S.H. Ho Tags: Research Source Type: research

Inclusion body myositis —health-related quality of life and care situation during phases of the “patience journey” in Germany: results from a qualitative study
To understand the health-related quality of life (HRQoL) in inclusion body myositis (IBM) from a holistic perspective on the background of a complex care situation. The focus was on how the patient journey may... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - October 10, 2023 Category: International Medicine & Public Health Authors: Katja C. Senn, Simone Thiele, Laura Gumbert, Sabine Krause, Maggie C. Walter and Klaus H. Nagels Tags: Research Source Type: research

Translation and validation of the multiple sclerosis walking scale 12 for the German population – the MSWS-12/D
Gait impairment is a relevant problem in persons with multiple sclerosis (pwMS). The Multiple Sclerosis Walking Scale 12 (MSWS-12) is a valid Patient Reported Outcome Measure (PROM) to evaluate walking ability... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - October 9, 2023 Category: International Medicine & Public Health Authors: Anna Chorschew, Firat Kesgin, Judith Bellmann-Strobl, Peter Flachenecker, Insa Schiffmann, Friederike Rosenthal, Patrick Althoff, Daniel Drebinger, Radina Arsenova, Ludwig Rasche, Eva-Maria Dorsch, Christoph Heesen, Friedemann Paul, Jan-Patrick Stellmann Tags: Research Source Type: research