Construction and preliminary validation of a tool to measure the needs of adolescents and young adults (AYA) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs: QUEEC-AYAs
In France, 2300 adolescents and young adults (AYAs, 15 –25 years old) are diagnosed with cancer each year. As soon as the disease is diagnosed, a number of physical, psychological and social needs may arise. Th... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - April 23, 2024 Category: International Medicine & Public Health Authors: S. Justafr é, P. Marino, R. Touzani, F. Dupeyre-Alvarez, P. Dantin, P. Viens, N. Vey and S. Calvin Tags: Research Source Type: research

An assessment of the psychometric properties of the Coping Strategies Questionnaire – Sickle Cell Disease (CSQ-SCD) among adults in the United States
This study examined the psychometric properties of the CSQ-SCD among adults ... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - April 22, 2024 Category: International Medicine & Public Health Authors: Monika Salkar, Meagen Rosenthal, Kaustuv Bhattacharya, Sujith Ramachandran, Marie Barnard, John Young and John P. Bentley Tags: Research Source Type: research

Assessing health-related quality of life of Chinese population using CQ-11D
This study aimed to assess the health-related quality of life (HRQoL) of the Chinese population by using the Chinese medicine quality of life-11 dimensions (CQ-11D) questionnaire and to identify factors associ... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - April 19, 2024 Category: International Medicine & Public Health Authors: Jie Pan, Qianxi Han, Pingda Zhou, Jiameng Zhou, Mengpei Zhang and Wentao Zhu Tags: Research Source Type: research

Health state utility estimates for value assessments of novel treatments in Huntington ’s disease: a systematic literature review
Huntington ’s disease (HD) is a progressive neurodegenerative disease with a devastating impact on patients and their families. Quantifying how treatments affect patient outcomes is critical for informing reimb... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - April 16, 2024 Category: International Medicine & Public Health Authors: Ruta Sawant, Kyle Paret, Jennifer Petrillo, Aaron Koenig, Sorrel Wolowacz, Naoko Ronquest and Hugh Rickards Tags: Review Source Type: research

Longitudinal course and predictors of health-related quality of life, mental health, and fatigue, in non-hospitalized individuals with or without post COVID-19 syndrome
Long-term information on health-related quality of life (HRQOL) and mental health of non-hospitalized individuals with „post COVID-19 syndrome“ (PCS) is scarce. Thus, the objectives of the present study were t... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - April 14, 2024 Category: International Medicine & Public Health Authors: Inge Kirchberger, Christine Meisinger, Tobias D. Warm, Alexander Hyhlik-D ürr, Jakob Linseisen and Yvonne Goßlau Tags: Research Source Type: research

Patient-reported outcome measures for primary hyperparathyroidism: a systematic review of measurement properties
The quality of patient-reported outcome measures (PROMs) used to assess the outcomes of primary hyperparathyroidism (PHPT), a common endocrine disorder that can negatively affect patients ’ health-related quali... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - April 2, 2024 Category: International Medicine & Public Health Authors: George Liang, Manraj N. Kaur, Carrie G. Wade, Maria O. Edelen, David W. Bates, Andrea L. Pusic and Jason B. Liu Tags: Review Source Type: research

Development and validation of the patient-reported outcome for older people living with HIV/AIDS in China (PROHIV-OLD)
The involvement of quality of life as the UNAIDS fourth 90 target to monitor the global HIV response highlighted the development of patient-reported outcome (PRO) measures to help address the holistic needs of... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - April 1, 2024 Category: International Medicine & Public Health Authors: Rui Zhou, Ying-Jing Zheng, Bei-Jia Wang, Donald L. Patrick, Todd C. Edwards, Jing-Yi Yun, Jie Zhou, Ren-Jun Gu, Bing-Hui Miao and Hong-Mei Wang Tags: Research Source Type: research

The feasibility, repeatability, validity and responsiveness of the EQ-5D-3L in Krio for patients with stroke in Sierra Leone
To assess the feasibility, repeatability, validity and responsiveness of the EQ-5D-3L in Krio for patients with stroke in Sierra Leone, the first psychometric assessment of the EQ-5D-3L to be conducted in pati... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - March 28, 2024 Category: International Medicine & Public Health Authors: Daniel Youkee, Sahr Pessima, Catherine Sackley, Marina Soley-Bori, Gibrilla F. Deen and Iain J. Marshall Tags: Research Source Type: research

Acceptability and usefulness of the EORTC ‘Write In three Symptoms/Problems’ (WISP): a brief open-ended instrument for symptom assessment in cancer patients
The use of open-ended questions supplementing static questionnaires with closed questions may facilitate the recognition of symptoms and toxicities. The open-ended ‘Write In three Symptoms/Problems (WISP)’ ins... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - March 26, 2024 Category: International Medicine & Public Health Authors: Leslye Rojas-Concha, Juan Ignacio Arrarr ás, Thierry Conroy, Tara Chalk, Monica Guberti, Bernhard Holzner, Olga Husson, Dagmara Kuliś, Omar Shamieh, Claire Piccinin, María José Puga, Gudrun Rohde and Mogens Groenvold Tags: Research Source Type: research

Fatigue in children who have recently completed treatment for acute lymphoblastic leukemia: a longitudinal study
This study examined fatigue in patients treated for childhood acute lymphoblastic leukemia (ALL) over a 2-year period (3- to 27-months post-treatment completion), from the perspective of children and parent ca... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - March 22, 2024 Category: International Medicine & Public Health Authors: S. Walsh, M. Mulraney, M.C. McCarthy and Cinzia R. De Luca Tags: Research Source Type: research

Health-related quality of life and its determinants among cancer patients: evidence from 12,148 patients of Indian database
Cancer survivors experience a decrement in health-related quality of life (HRQoL) resulting from the disease as well as adverse effects of therapy. We evaluated the HRQoL of cancer patients, stratified by prim... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - March 13, 2024 Category: International Medicine & Public Health Authors: Jyoti Dixit, Nidhi Gupta, Amal Kataki, Partha Roy, Nikita Mehra, Lalit Kumar, Ashish Singh, Pankaj Malhotra, Dharna Gupta, Aarti Goyal, Kavitha Rajsekar, Manjunath Nookala Krishnamurthy, Sudeep Gupta and Shankar Prinja Tags: Research Source Type: research

Correction: Translation and cross-cultural adaptation of an Arabic version of PROMIS ® of dyspnea activity motivation, requirement item pool and sleep-related impairments item bank
(Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - March 12, 2024 Category: International Medicine & Public Health Authors: Monira I. Aldhahi, Hadeel R. Bakhsh, Bodor H. Bin Sheeha and Rehab Alhasani Tags: Correction Source Type: research

A time trade-off study to determine health-state utilities of transplant recipients with refractory cytomegalovirus infection with or without resistance
Health-state utility values (HSUVs) for post-transplant refractory cytomegalovirus (CMV) infection (with or without resistance [R/R]) were determined using a time trade-off (TTO) survey completed by 1,020 memb... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - March 6, 2024 Category: International Medicine & Public Health Authors: Waqas Ahmed, Louise Longworth, Yemi Oluboyede, Peter Cain, Stacey L. Amorosi, Sarah Hill and Ishan Hirji Tags: Research Source Type: research

Correction: Prediction of the SF-6D utility score from lung cancer FACT-L: a mapping study in China
(Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - February 27, 2024 Category: International Medicine & Public Health Authors: Qing Yang, Long Lin Jiang, Yin Feng Li and Deyu Huang Tags: Correction Source Type: research

Health inequity assessment in Brazil: is EQ-5D-3L sensible enough to detect differences among distinct socioeconomic groups?
Multidimensional health-related quality of life (HRQOL) instruments, such as the EQ-5D, are increasingly used to assess inequalities in health. However, it is necessary to explore the ability of these instrume... (Source: Health and Quality of Life Outcomes)
Source: Health and Quality of Life Outcomes - February 27, 2024 Category: International Medicine & Public Health Authors: Bernardo Rangel Tura, Milene Rangel da Costa, Sylvia Lordello, Danillo Barros, Yuri Souza and Marisa da Silva Santos Tags: Research Source Type: research