Data privacy protection in scientific publications: process implementation at a pharmaceutical company
Sharing anonymized/de-identified clinical trial data and publishing research outcomes in scientific journals, or presenting them at conferences, is key to data-driven scientific exchange. However, when data fr... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - June 25, 2022 Category: Medical Ethics Authors: Friedrich Maritsch, Ingeborg Cil, Colin McKinnon, Jesse Potash, Nicole Baumgartner, Val érie Philippon and Borislava G. Pavlova Tags: Research Source Type: research

Withdrawing or withholding treatments in health care rationing: an interview study on ethical views and implications
When rationing health care, a commonly held view among ethicists is that there is no ethical difference between withdrawing or withholding medical treatments. In reality, this view does not generally seem to b... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - June 24, 2022 Category: Medical Ethics Authors: Liam Strand, Lars Sandman, Gustav Tingh ög and Ann-Charlotte Nedlund Tags: Research Source Type: research

Patient participation in Dutch ethics support: practice, ideals, challenges and recommendations —a national survey
Patient participation in clinical ethics support services (CESS) has been marked as an important issue. There seems to be a wide variety of practices globally, but extensive theoretical or empirical studies on... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - June 22, 2022 Category: Medical Ethics Authors: Marleen Eijkholt, Janine de Snoo-Trimp, Wieke Ligtenberg and Bert Molewijk Tags: Research Source Type: research

Clinical ethical practice and associated factors in healthcare facilities in Ethiopia: a cross-sectional study
Clinical ethical practice (CEP) is required for healthcare workers (HCWs) to improve health-care delivery. However, there are gaps between accepted ethical standards and CEP in Ethiopia. There have been limite... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - June 18, 2022 Category: Medical Ethics Authors: Nebiyou Tafesse, Assegid Samuel, Abiyu Geta, Fantanesh Desalegn, Lidia Gebru, Tezera Tadele, Ewnetu Genet, Mulugeta Abate and Kemal Jemal Tags: Research Source Type: research

Research based on existing clinical data and biospecimens: a systematic study of patients ’ opinions
The aim of the present survey was to investigate newly discharged hospital patients ’ opinions on secondary use of their hospital data and biospecimens within the context of health research in general and, more... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - June 16, 2022 Category: Medical Ethics Authors: Hilde Eikemo, Linda T ømmerdal Roten and Arne Einar Vaaler Tags: Research Source Type: research

Managing community engagement in research in Uganda: insights from practices in HIV/AIDS research
Community engagement (CE) in research is valuable for instrumental and intrinsic reasons. Despite existing guidance on how to ensure meaningful CE, much of what it takes to achieve this goal differs across set... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - June 14, 2022 Category: Medical Ethics Authors: John Barugahare and Nancy E. Kass Tags: Research Source Type: research

Screening is not always healthy: an ethical analysis of health screening packages in Singapore
Health screening is undertaken to identify individuals who are deemed at higher risk of disease for further diagnostic testing so that they may possibly benefit from interventions to modify the natural course ... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - June 7, 2022 Category: Medical Ethics Authors: Sarah Ee Fang Yong, Mee Lian Wong and Teck Chuan Voo Tags: Research Source Type: research

Public attitudes towards sharing loyalty card data for academic health research: a qualitative study
This study aimed to investigate public a... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - June 7, 2022 Category: Medical Ethics Authors: Elizabeth H. Dolan, Kate Shiells, James Goulding and Anya Skatova Tags: Research Source Type: research

The challenges of keeping clinicians unaware of their participation in a national, cluster-randomised, implementation trial
Implementation of recommendations from clinical practice guidelines is essential for evidence based clinical practice. However, the most effective methods of implementation are unclear. We conducted a national... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - May 30, 2022 Category: Medical Ethics Authors: Jex Kuo, Sonja Woodall, Jane Harding, Caroline Crowther and Jane Alsweiler Tags: Research Source Type: research

The red packet phenomenon from the perspective of young Chinese doctors: a questionnaire study
In China, informal payments in the medical profession, which workers in the public health care system receive from patients in the course of performing profession-related activities, are usually referred to as... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - May 30, 2022 Category: Medical Ethics Authors: Hanhui Xu and Mengci Yuan Tags: Research Source Type: research

The genetic technologies questionnaire: lay judgments about genetic technologies align with ethical theory, are coherent, and predict behaviour
Policy regulations of ethically controversial genetic technologies should, on the one hand, be based on ethical principles. On the other hand, they should be socially acceptable to ensure implementation. In ad... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - May 25, 2022 Category: Medical Ethics Authors: Svenja K üchenhoff, Johannes Doerflinger and Nora Heinzelmann Tags: Research Source Type: research

Patient consent preferences on sharing personal health information during the COVID-19 pandemic: “the more informed we are, the more likely we are to help”
Rapid ethical access to personal health information (PHI) to support research is extremely important during pandemics, yet little is known regarding patient preferences for consent during such crises. This fol... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - May 20, 2022 Category: Medical Ethics Authors: Sarah Tosoni, Indu Voruganti, Katherine Lajkosz, Shahbano Mustafa, Anne Phillips, S. Joseph Kim, Rebecca K. S. Wong, Donald Willison, Carl Virtanen, Ann Heesters and Fei-Fei Liu Tags: Research Source Type: research

Decision-making approaches for children with life-limiting conditions: results from a qualitative phenomenological study
For children with life-limiting conditions who are unable to participate in decision-making, decisions are made for them by their parents and paediatricians. Shared decision-making is widely recommended in pae... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - May 16, 2022 Category: Medical Ethics Authors: Sidharth Vemuri, Jenny Hynson, Katrina Williams and Lynn Gillam Tags: Research Source Type: research

A chronological discourse analysis of ancillary care provision in guidance documents for research conduct in the global south
Numerous guidelines and policies for ethical research practice have evolved over time, how this translates to global health practice in resource-constrained settings is unclear. The purpose of this paper is to... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - May 14, 2022 Category: Medical Ethics Authors: Blessings M. Kapumba, Nicola Desmond and Janet Seeley Tags: Research Source Type: research

“Many roads lead to Rome and the Artificial Intelligence only shows me one road”: an interview study on physician attitudes regarding the implementation of computerised clinical decision support systems
Research regarding the drivers of acceptance of clinical decision support systems (CDSS) by physicians is still rather limited. The literature that does exist, however, tends to focus on problems regarding the... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - May 6, 2022 Category: Medical Ethics Authors: Daan Van Cauwenberge, Wim Van Biesen, Johan Decruyenaere, Tamara Leune and Sigrid Sterckx Tags: Research Source Type: research