What outcomes of moral case deliberations are perceived important for healthcare professionals to handle moral challenges? A national cross-sectional study in paediatric oncology
In paediatric oncology, healthcare professionals face moral challenges. Clinical ethics support services, such as moral case deliberation (MCD), aim to assist them in dealing with these challenges. Yet, health... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 11, 2022 Category: Medical Ethics Authors: Cecilia Bartholdson, Isabelle Billstein, Bert Molewijk and Pernilla Pergert Tags: Research Source Type: research
Professional and academic profile of the Brazilian research ethics committees
Brazil is among the sixteen countries that conducts the most clinical trials in the world. It has a system to review research ethics with human beings made up by the National Commission on Research Ethics (CON... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 11, 2022 Category: Medical Ethics Authors: Eug ênio Pacelli de Veras Santos and Iara Coelho Zito Guerriero Tags: Research article Source Type: research
Operationalization of assent for research participation in pre-adolescent children: a scoping review
Seeking assent from children for participation in medical research is an ethical imperative of numerous institutions globally. However, none of these organizations provide specific guidance on the criteria or ... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 3, 2022 Category: Medical Ethics Authors: Florence Cayouette, Katie O ’Hearn, Shira Gertsman and Kusum Menon Tags: Research Source Type: research
Attitudes of Polish physicians, nurses and pharmacists towards the ethical and legal aspects of the conscience clause
While healthcare professionals ’ right to invoke the conscience clause has been recognised as a fundamental human right, it continues to provoke a heated debate in Polish society. Although public discourse is f... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 3, 2022 Category: Medical Ethics Authors: Justyna Czekajewska, Dariusz Walkowiak and Jan Domaradzki Tags: Research Source Type: research
The view of Hong Kong parents on secondary use of dried blood spots in newborn screening program
Residual dried blood spots (rDBS) from newborn screening programmes represent a valuable resource for medical research, from basic sciences, through clinical to public health. In Hong Kong, there is no legisla... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 1, 2022 Category: Medical Ethics Authors: L. L. Hui, E. A.S. Nelson, H. B. Deng, T. Y. Leung, C. H. Ho, J. S.C. Chong, G. P.G. Fung, J. Hui and H. S. Lam Tags: Research Source Type: research
Ownership of individual-level health data, data sharing, and data governance
The ownership status of individual-level health data affects the manner in which it is used. In this paper we analyze two competing models of the ownership status of the data discussed in the literature recent... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - October 29, 2022 Category: Medical Ethics Authors: Jan Piasecki and Phaik Yeong Cheah Tags: Debate Source Type: research
Patient satisfaction with surgical informed consent at Jimma Medical Center, Ethiopia
Informed consent is a process in which a healthcare provider obtains permission from an individual prior to surgery. Patient satisfaction with the informed consent process is one of the main indicators of heal... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - October 25, 2022 Category: Medical Ethics Authors: Tsegaw Biyazin, Ayanos Taye and Yeshitila Belay Tags: Research article Source Type: research
Patients ’ views on using human embryonic stem cells to treat Parkinson’s disease: an interview study
Human embryonic stem cells (hESC) as a source for the development of advanced therapy medicinal products are considered for treatment of Parkinson ’s disease (PD). Research has shown promising results and opene... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - October 19, 2022 Category: Medical Ethics Authors: Jennifer Drevin, Dag Nyholm, H åkan Widner, Trinette Van Vliet, Jennifer Viberg Johansson, Elena Jiltsova and Mats Hansson Tags: Research Source Type: research
Patient perspectives on advance euthanasia directives in Huntington ’s disease. A qualitative interview study
Huntington ’s disease (HD) has a poor prognosis. For HD patients in the Netherlands, one way of dealing with their poor prognosis is by drawing up an advance euthanasia directive (AED). Little is known about th... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - October 10, 2022 Category: Medical Ethics Authors: Marina R. Ekkel, Marja F.I.A. Depla, Els M.L. Verschuur, Ruth B. Veenhuizen, Cees M.P.M. Hertogh and Bregje D. Onwuteaka-Philipsen Tags: Research Source Type: research
Flaws in advance directives that request withdrawing assisted feeding in late-stage dementia may cause premature or prolonged dying
The terminal illness of late-stage (advanced) Alzheimer ’s and related dementias is progressively cruel, burdensome, and can last years if caregivers assist oral feeding and hydrating. Options to avoid prolonge... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - October 6, 2022 Category: Medical Ethics Authors: Stanley A. Terman, Karl E. Steinberg and Nathaniel Hinerman Tags: Debate Source Type: research
Clinical ethics consultations: a scoping review of reported outcomes
Clinical ethics consultations (CEC) can be complex interventions, involving multiple methods, stakeholders, and competing ethical values. Despite longstanding calls for rigorous evaluation in the field, progre... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - September 27, 2022 Category: Medical Ethics Authors: Jennifer A. H. Bell, Marina Salis, Eryn Tong, Erica Nekolaichuk, Claudia Barned, Andria Bianchi, Daniel Z. Buchman, Kevin Rodrigues, Ruby R. Shanker and Ann M. Heesters Tags: Research Source Type: research
Parental waivers to enable adolescent participation in certain forms of health research: lessons from a South African case study
The South African legal framework requires mandatory parental/legal guardian consent for all research with children. Ethics guidelines provide some reprieve by allowing RECs to grant waivers of parental or guardi... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - September 24, 2022 Category: Medical Ethics Authors: Ann Strode and Zaynab Essack Tags: Debate Source Type: research
Managing the moral expansion of medicine
Science and technology have vastly expanded the realm of medicine. The numbers of and knowledge about diseases has greatly increased, and we can help more people in many more ways than ever before. At the same... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - September 22, 2022 Category: Medical Ethics Authors: Bj ørn Hofmann Tags: Debate Source Type: research
How to deal with moral challenges around the decision-making competence in transgender adolescent care? Development of an ethics support tool
Decision-making competence is a complex concept in the care for transgender and gender diverse adolescents, since this type of care concerns one ’s developing gender identity and involves treatment options that... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - September 22, 2022 Category: Medical Ethics Authors: Janine de Snoo-Trimp, Annelou de Vries, Bert Molewijk and Irma Hein Tags: Research Source Type: research
Exploring how biobanks communicate the possibility of commercial access and its associated benefits and risks in participant documents
Biobanks and biomedical research data repositories collect their samples and associated data from volunteer participants. Their aims are to facilitate biomedical research and improve health, and they are frame... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - September 21, 2022 Category: Medical Ethics Authors: G. Samuel, F. Hardcastle, R. Broekstra and A. Lucassen Tags: Research Source Type: research
