Would you consider donating your left-over embryos to treat Parkinson ’s disease? Interviews with individuals that underwent IVF in Sweden
Parkinson ’s disease (PD) has been considered to be one of the most promising target diseases for forthcoming cell-based therapy. The aim of this study is to explore the views of individuals with cryopreserved ... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - December 3, 2022 Category: Medical Ethics Authors: Karin Sch ölin Bywall, Jan Holte, Thomas Brodin, Mats Hansson and Jennifer Drevin Tags: Research Source Type: research
General practitioner residents and patients end-of life: involvement and consequences
The ageing of the population and the increased number of chronic diseases are associated with an increased frequency of end of life care in hospital settings. Residents rotating in hospital wards play a major ... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - December 3, 2022 Category: Medical Ethics Authors: Victoire Haardt, Am élie Cambriel, Sidonie Hubert, Marc Tran, Cédric Bruel and Francois Philippart Tags: Research article Source Type: research
Health data privacy through homomorphic encryption and distributed ledger computing: an ethical-legal qualitative expert assessment study
Increasingly, hospitals and research institutes are developing technical solutions for sharing patient data in a privacy preserving manner. Two of these technical solutions are homomorphic encryption and distr... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - December 1, 2022 Category: Medical Ethics Authors: James Scheibner, Marcello Ienca and Effy Vayena Tags: Research Source Type: research
Perceptions, attitudes, and willingness of the public in low- and middle-income countries of the Arab region to participate in biobank research
Population-based genomics studies have proven successful in identifying genetic variants associated with diseases. High-quality biospecimens linked with informative health data from diverse segments of the pop... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - December 1, 2022 Category: Medical Ethics Authors: Mamoun Ahram, Fatma Abdelgawad, Samar Abd ElHafeez, Ahmed Samir Abdelhafiz, Maha Emad Ibrahim, Alya Elgamri, Zeinab Mohammed, Karima El-Rhazi, Eman Elsebaie, Ehsan Gamel, Manal Shahouri, Nada Taha Mostafa, Latifa Adarmouch and Henry Silverman Tags: Research Source Type: research
Author Correction: Ethical challenges experienced by prehospital emergency personnel: a practice-based model of analysis
(Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 26, 2022 Category: Medical Ethics Authors: Henriette Bruun, Louise Milling, S øren Mikkelsen and Lotte Huniche Tags: Author Correction Source Type: research
An e-consent framework for tiered informed consent for human genomic research in the global south, implemented as a REDCap template
Research involving human participants requires their consent, and it is common practice to capture consent information on paper and store those hard copies, presenting issues such as long-term storage requirem... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 24, 2022 Category: Medical Ethics Authors: Tsaone Tamuhla, Nicki Tiffin and Taryn Allie Tags: Database Source Type: research
Practical training using immersive roleplay and an intensive course on clinical ethics consultation in Japan
Clinical ethics consultation (CEC) is not sufficiently widespread in Japan. A possible reason is that a practical training system for CEC has not been established. Hence, we have developed “immersive role-play... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 24, 2022 Category: Medical Ethics Authors: Makoto Udagawa and Yoshiyuki Takimoto Tags: Research Source Type: research
Electronic informed consent criteria for research ethics review: a scoping review
The research shows a growing trend in using an electronic platform to supplement or replace traditional paper-based informed consent processes. Instead of the traditionally written informed consent document, e... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 21, 2022 Category: Medical Ethics Authors: Mohd Yusmiaidil Putera Mohd Yusof, Chin Hai Teo and Chirk Jenn Ng Tags: Research Source Type: research
Knowledge, opinions and experiences of researchers regarding ethical regulation of biomedical research in Benin: a cross-sectional study
Ethics in biomedical research is still a fairly new concept in Africa. This work aims to assess the knowledge, attitude and experiences of Beninese researchers with regard to the national ethical regulatory fr... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 19, 2022 Category: Medical Ethics Authors: Flore Gangbo, Gr âce Quenum, Fernand Aimé Guédou and Martial Boko Tags: Research Source Type: research
Ethical preparedness in health research and care: the role of behavioural approaches
Public health scholars have long called for preparedness to help better negotiate ethical issues that emerge during public health emergencies. In this paper we argue that the concept of ethical preparedness ha... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 17, 2022 Category: Medical Ethics Authors: G. Samuel, L. M. Ballard, H. Carley and A. M. Lucassen Tags: Research Source Type: research
Correction to: Flaws in advance directives that request withdrawing assisted feeding in late-stage dementia may cause premature or prolonged dying
(Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 16, 2022 Category: Medical Ethics Authors: Stanley A. Terman, Karl E. Steinberg and Nathaniel Hinerman Tags: Correction Source Type: research
“I don’t think people are ready to trust these algorithms at face value”: trust and the use of machine learning algorithms in the diagnosis of rare disease
As the use of AI becomes more pervasive, and computerised systems are used in clinical decision-making, the role of trust in, and the trustworthiness of, AI tools will need to be addressed. Using the case of c... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 16, 2022 Category: Medical Ethics Authors: Nina Hallowell, Shirlene Badger, Aurelia Sauerbrei, Christoffer Nell åker and Angeliki Kerasidou Tags: Research Source Type: research
What information and the extent of information to be provided in an informed assent/consent form of pediatric drug trials
This study aimed to determine the elements and the extent of information that child participants and their parents would like to read in an informed assent form (IAF)/informed consent form (ICF) of a pediatric... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 16, 2022 Category: Medical Ethics Authors: Nut Koonrungsesomboon, Pimlak Charoenkwan, Rungrote Natesirinilkul, Kanda Fanhchaksai, Wannachai Sakuludomkan and Nimit Morakote Tags: Research article Source Type: research
Italian law n. 219/2017 on consent and advance directives: survey among Ethics Committees on their involvement and possible role
On December 2017 the Italian Parliament approved law n. 219/2017 “Provisions for informed consent and advance directives” regarding challenging legal and bioethical issues related to healthcare decisions and e... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 16, 2022 Category: Medical Ethics Authors: Corinna Porteri, Giulia Ienco, Edda Mariaelisa Turla, Carlo Petrini and Patrizio Pasqualetti Tags: Research Source Type: research
Needs to address clinicians ’ moral distress in treating unvaccinated COVID-19 patients
Moral dilemmas have arisen concerning whether physicians and other providers should treat patients who have declined COVID vaccination and are now sick with this disease. Several ethicists have argued that cli... (Source: BMC Medical Ethics)
Source: BMC Medical Ethics - November 14, 2022 Category: Medical Ethics Authors: Robert Klitzman Tags: Debate Source Type: research
