Improving the measurement properties of the Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised (ALSFRS-R): deriving a valid measurement total for the calculation of change
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - March 1, 2024 Category: Neurology Authors: Carolyn A YoungAmina ChaouchChristopher J McdermottAmmar Al-ChalabiSuresh K ChhetriKevin TalbotAndrea MalaspinaRoger MillsAlan Tennant1 Walton Centre NHS Foundation Trust, Liverpool, UK2 Department of Pharmacology and Therapeutics, University of Liverpool Source Type: research

What is the extent of reliability and validity evidence for screening tools for cognitive and behavioral change in people with ALS? A systematic review
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - February 28, 2024 Category: Neurology Authors: Lyndsay DidcoteSilia VitoratouAmmar Al-ChalabiLaura H. Goldstein1 Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience, King ’s College London, London, UK2 Department of Biostatistics and Health Informatics, Institute of Psychi Source Type: research

The ALSFRS-R Summit: a global call to action on the use of the ALSFRS-R in ALS clinical trials
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - February 24, 2024 Category: Neurology Authors: Angela GengeJesse M. CedarbaumJeremy ShefnerAdriano ChioAmmar Al-ChalabiPhilip Van DammeChris McDermottJonathan GlassJames BerryRuben P.A. van EijkChristina FournierJulian GrosskreutzJinsy AndrewsVanessa BertoneTommy M BunteMathias CouillardCathy Cummings Source Type: research

Geographical distribution of clinical trials in amyotrophic lateral sclerosis: a scoping review
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - February 23, 2024 Category: Neurology Authors: Beliu Garc ía-ParraJosep M. GuiuMónica PovedanoEduardo L. MariñoPilar Modamio1 Clinical Neurophysiology Section – Neurology Service, Bellvitge University Hospital. L’Hospitalet de Llobregat, Barcelona, Spain2 Clinical Pharmacy and Pharmaceutical Ca Source Type: research

Correction
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - February 21, 2024 Category: Neurology Source Type: research

Rurality modifies the association between symptoms and the diagnosis of amyotrophic lateral sclerosis
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - February 14, 2024 Category: Neurology Authors: Alexander A. HartAndrea SwensonNandakumar S. NarayananJacob E. Simmering1 Department of Neurology, University of Michigan, Ann Arbor, MI,, USA2 Department of Neurology, University of Iowa, Iowa City, IA, , USA, and3 Department of Internal Medicine, Univer Source Type: research

Prognosis of amyotrophic lateral sclerosis patients after tracheostomy invasive ventilation in Korea
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - February 10, 2024 Category: Neurology Authors: Jong-Su KimMinae ParkSojeong ParkJuhee ChaeYoon-Ho HongKyung Seok ParkJung-Joon SungSeok-Jin Choi1 Department of Neurology, Seoul National University College of Medicine, Seoul National University Hospital, Seoul, Republic of Korea2 Data Science Team, Han Source Type: research

Supporting people with Motor Neuron Disease (MND) to make decisions about gastrostomy feeding tube placement: a survey of UK healthcare professionals ’ practice and beliefs
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - February 10, 2024 Category: Neurology Authors: Sean WhiteAlicia O ’CathainVanessa HallidayMichael BradburnChristopher J. McDermott1 Division of Neuroscience, The University of Sheffield, Sheffield, UK2 Sheffield Centre for Health and Related Research (SCHARR), The University of Sheffield, Sheffield, Source Type: research

ALSFRS-R decline rate prior to baseline is not useful for stratifying subsequent progression of functional decline
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - February 7, 2024 Category: Neurology Authors: Tatsuto HamataniNaoki AtsutaFumiya SanoRyoichi NakamuraYukikazu HayashiGen Sobue1 Drug Development Division, Sumitomo Pharma Co., Ltd, Tokyo, Japan2 Clinical Research, Sumitomo Pharma America, Inc, USA3 Department of Neurology, Aichi Medical University Sc Source Type: research

ALSUntangled #74: Withania Somnifera (Ashwagandha)
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - February 6, 2024 Category: Neurology Authors: Sartaj JhootyPaul BarkhausAndrew BrownJavier Mascias CadavidGregory T. CarterJesse CrayleTerry Heiman-PattersonXiaoyan LiElise MallonChristopher McdermottTasnim MushannenGary PatteeDylan RatnerPaul WicksMartina WiedauRichard Bedlack1 Department of Neurosc Source Type: research

Verbal expressive language minimally affected in non-demented people living with amyotrophic lateral sclerosis
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - February 2, 2024 Category: Neurology Authors: Elisabeth KasperAnna G. M. TempVerena K öckritzLisa MeierJudith MachtsStefan VielhaberAndreas HermannJohannes Prudlo1 Department of Neurology, University Medical Centre, Rostock, Germany2 DZNE site Rostock, German Centre for Neurodegenerative Diseases (D Source Type: research

Peripheral immunity relate to disease progression and prognosis in amyotrophic lateral sclerosis
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - January 25, 2024 Category: Neurology Authors: Qirui JiangQianqian WeiLingyu ZhangTianmi YangJunyu LinYi XiaoChunyu LiYanbing HouRuwei OuKuncheng LiuBi ZhaoYing WuXiaohui LaiHuifang ShangDepartment of Neurology, Laboratory of Neurodegenerative Disorders and Immunology, Rare Disease Center, West China Source Type: research

A comparison between bioelectrical impedance analysis and air-displacement plethysmography in assessing fat-free mass in patients with motor neurone diseases: a cross-sectional study
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - January 24, 2024 Category: Neurology Authors: Mark R. Janse van MantgemMaaike L. Soors D ’AnconaMyrte MeyjesLeonard H. Van Den BergElles SteenhagenAnnemieke KokRuben P. A. Van Eijk1 Department of Neurology, UMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands2 Depar Source Type: research