Living beyond loss: a qualitative investigation of caregivers ’ experiences after the death of their relatives with amyotrophic lateral sclerosis
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - September 7, 2023 Category: Neurology Authors: Eleonora VolpatoPaolo BanfiValentina PolettiFrancesco Pagnini1 Department of Psychology, Universit à Cattolica del Sacro Cuore, Milan, Italy and2 Heart-Respiratory Rehabilitation Unit, IRCCS Fondazione Don Carlo Gnocchi, Milan, Italy Source Type: research

IMPACT-ALS: summary of results from a European survey of people living with ALS
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - September 4, 2023 Category: Neurology Authors: Eilis Conroy Beatriz V élez-Gómez David O ’Brien Mark Heverin Orla Hardiman Christopher Mcdermott Miriam Galvin Source Type: research

Do we really need to calculate a minimal important difference for ALSFRS-R?: A letter in response to ‘Clinically meaningful change: evaluation of the Rasch-built Overall Amyotrophic Lateral Sclerosis Disability Scale (ROADS) and the ALSFRS-R’ published in Vol. 24(3–4), pp. 311–316
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - August 30, 2023 Category: Neurology Authors: Juan Francisco V ázquez-Costa1 Department of Medicine, University of Valencia, Valencia, Spain2 ALS Unit, Department of Neurology, Hospital Universitario y Politécnico La Fe, Valencia, Spain3 Neuromuscular Research Unit, Instituto de Investigación Sani Source Type: research

Relationship between quantitative strength and functional outcomes in the phase 2 FORTITUDE-ALS trial
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - August 29, 2023 Category: Neurology Authors: Jeremy M. ShefnerBill JacobsenStuart KupferFady I. MalikLisa MengJenny WeiAndrew A WolffStacy A. Rudnicki1 Barrow Neurological Institute, University of Arizona, and Creighton University, Phoenix, AZ, USA and2 Cytokinetics, Incorporated, South San Francisc Source Type: research

Prevalence of amyotrophic lateral sclerosis in the United States, 2018
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - August 21, 2023 Category: Neurology Authors: Paul Mehta Jaime Raymond Yuzi Zhang Reshma Punjani Moon Han Theodore Larson Oleg Muravov Robert H. Lyles D. Kevin Horton Source Type: research

Crushing riluzole tablets: evaluation of loss of powder and active principle in a home-simulation experiment
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - August 16, 2023 Category: Neurology Authors: Antonella Casiraghi Andrea Gentile Ivan Marjanovic Adriano Chi ò Source Type: research

An electronic health record cohort of Veterans with amyotrophic lateral sclerosis
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - August 9, 2023 Category: Neurology Authors: Richard J. Reimer Andre Goncalves Braden Soper Jose Cadena Jennifer L. Wilson Amy L. Gryshuk Paola Suarez Thomas F. Osborne Kevin V. Grimes Priyadip Ray Source Type: research

Slowly progressive late-onset spinal muscular atrophy Finkel-type related to p.Pro56Ser VABP mutation in Colombia
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - August 7, 2023 Category: Neurology Authors: Cristian Correa-Arrieta Fernando Ortiz-Corredor Sandra Castellar-Leones Diana S ánchez-Peñarete Source Type: research

Comparing Amyotrophic lateral sclerosis (ALS) patient characteristics from the National ALS Registry and the Massachusetts ALS Registry, data through 2015
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - August 4, 2023 Category: Neurology Authors: Jaime Raymond Reshma Punjani Theodore Larson James D. Berry D. Kevin Horton Paul Mehta Source Type: research

Increased total daily energy expenditure in mild to moderate ALS: greater contribution from physical activity energy expenditure than hyper-metabolism
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - August 4, 2023 Category: Neurology Authors: Rup Tandan Diantha Howard Dwight E. Matthews Source Type: research

Correction
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - August 3, 2023 Category: Neurology Source Type: research