Specialized multidisciplinary care improves ALS survival in Belgium: a population-based retrospective study
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - January 19, 2024 Category: Neurology Authors: Frederik HobinJoke De VochtNikita LamaireHilde BeyensFouke OmbeletPhilip Van Damme1 Neurology Department, University Hospitals Leuven, Leuven, Belgium2 Department of Neurosciences, Experimental Neurology, and Leuven Brain Institute (LBI), KU Leuven-Univer Source Type: research

Diagnostic utility of Gold Coast criteria for amyotrophic lateral sclerosis in Asia
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - January 16, 2024 Category: Neurology Authors: Ryo OtaniKazumoto ShibuyaToshio ShimizuTakamasa KitaojiYu-Ichi NotoKota BokudaHideki KimuraTomoki SuichiKeigo NakamuraHiroki KanoMarie MorookaYuya AotsukaMoeko OgushiSonoko MisawaSatoshi Kuwabara1 Department of Neurology, Graduate School of Medicine, Chib Source Type: research

A report of resources used by clinicians in the UK to support motor neuron disease genomic testing
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - January 2, 2024 Category: Neurology Authors: Jade HowardHilary L. BekkerChristopher J. McdermottAlisdair Mcneill1 Division of Neuroscience and Neuroscience Institute, The University of Sheffield, Sheffield, UK2 Leeds Unit for Complex Intervention Development, The University of Leeds, Leeds, UK3 Acad Source Type: research

Time from amyotrophic lateral sclerosis symptom onset to key disease milestones: analysis of data from a multinational cross-sectional survey
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - December 29, 2023 Category: Neurology Authors: Paulos GebrehiwetJohan BrekkeStacy A. RudnickiJennifer MellorJack WrightLucy EarlNathan BallHalima IqbalOwen ThomasGiorgio Castellano1 Health Economics and Outcomes Research, Cytokinetics, Incorporated, South San Francisco, CA, USA2 Medical Affairs, Cytok Source Type: research

ALSUntangled #73: Lion ’s Mane
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - December 23, 2023 Category: Neurology Authors: Maya MuhannaIssac LundMark BrombergPaul WicksMichael BenatarBenjamin BarnesKaitlyn PierceDylan RatnerAndrew BrownTulio BertoriniPaul BarkhausGreg CarterJavier Mascias CadavidChristopher McDermottJonathan D GlassGary PatteeCarmel ArmonRichard BedlackXiaoya Source Type: research

Premorbid lipid levels and long-term risk of ALS —a population-based cohort study
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - December 20, 2023 Category: Neurology Authors: Anders Myhre VaageJ ūratė Šaltytė BenthHaakon E. MeyerTrygve HolmøyOla Nakken1 Department of Neurology, Akershus University Hospital, Lørenskog, Norway2 Institute of Clinical Medicine, University of Oslo, Oslo, Norway3 Health Services Research Unit, Source Type: research

What, how and when do families communicate about ALS? A qualitative exploration of parents ’ and children’s perceptions
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - December 9, 2023 Category: Neurology Authors: Marion Sommers-SpijkermanAnna StukkerMelinda S. KavanaughMarjolijn KetelaarJohanna M. A. Visser-MeilyAnita Beelen1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands Source Type: research

ALS Health care provider wellness
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - December 9, 2023 Category: Neurology Authors: Gregory HansenSarah Burton-MacLeodKerri Lynn Schellenberg1 Divison of Pediatric Critical Care, Jim Pattison Children ’s Hospital, Saskatoon Canada2 Divison of Palliative Care Medicine, Faculty of Medicine & Dentistry, University of Alberta, Edmonton, C Source Type: research

What, how and when do families communicate about ALS? A qualitative exploration of parents ’ and children’s perceptions
. (Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration)
Source: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - December 9, 2023 Category: Neurology Authors: Marion Sommers-SpijkermanAnna StukkerMelinda S. KavanaughMarjolijn KetelaarJohanna M. A. Visser-MeilyAnita Beelen1 Department of Rehabilitation, Physical Therapy Science and Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands Source Type: research