Medical News Today: How gene therapy saved a little boy's life
Epidermolysis bullosa gives rise to painful blisters and chronic wounds. Doctors were sure that one little boy was going to lose his life — but he didn't. (Source: Health News from Medical News Today)
Source: Health News from Medical News Today - November 8, 2017 Category: Consumer Health News Tags: Dermatology Source Type: news
Boy is given new skin thanks to gene therapy
(Ruhr-University Bochum) A medical team at the Ruhr-Universit ä t Bochum's burn unit and the Center for Regenerative Medicine at the University of Modena (Italy) were the first ever to successfully treat a child suffering from extensive skin damage using transplants derived from genetically modified stem cells. The boy is a so-called butterfly child: he suffers from epidermolysis bullosa, a genetic skin disease that had destroyed approximately 80 percent of his epidermis. (Source: EurekAlert! - Medicine and Health)
Source: EurekAlert! - Medicine and Health - November 8, 2017 Category: International Medicine & Public Health Source Type: news
Mother slams Facebook after photo of toddler is banned
WARNING GRAPHIC CONTENT: Rhiannon Atkinson, 30, tried to advertise pictures of Pippa's blistered feet to raise awareness of epidermolysis bullosa on Facebook. (Source: the Mail online | Health)
Source: the Mail online | Health - October 3, 2017 Category: Consumer Health News Source Type: news
Girl with EB blisters at the slightest touch
WARNING GRAPHIC CONTENT: Rhiannon Atkinson, 30, from South Wales, was told her daughter, Pippa, one, had epidermolysis bullosa. Her skin blisters and tears at just the slightest touch. (Source: the Mail online | Health)
Source: the Mail online | Health - September 22, 2017 Category: Consumer Health News Source Type: news
Girl, 1, blisters at the slightest touch
WARNING GRAPHIC CONTENT: Rhiannon Atkinson, 30, from South Wales, was told her daughter, Pippa, one, had epidermolysis bullosa. Her skin blisters and tears at just the slightest touch. (Source: the Mail online | Health)
Source: the Mail online | Health - September 22, 2017 Category: Consumer Health News Source Type: news
Pennsylvania boy is born with 'butterfly skin' disease
Lennon Gregory, who lives in Masontown, Pennsylvania, was diagnosed with epidermolysis bullosa (EB) just 26 hours after he was born. (Source: the Mail online | Health)
Source: the Mail online | Health - August 9, 2017 Category: Consumer Health News Source Type: news
Skin condition has turned woman's hands into mittens
Myra Ali, 29, from Solihull, West Midland, suffers from a genetic complaint known as epidermolysis bullosa – also called the 'butterfly condition' – where skin is so delicate it tears constantly. (Source: the Mail online | Health)
Source: the Mail online | Health - August 9, 2017 Category: Consumer Health News Source Type: news
Epidermolysis Bullosa teenager lives with painful blisters
Khewjira Phanij, from central Thailand, was born with epidermolysis bullosa (EB) - an incurable condition. The disease causes the 16-year-old's skin to blister and tear at the slightest touch. (Source: the Mail online | Health)
Source: the Mail online | Health - July 6, 2017 Category: Consumer Health News Source Type: news
Gene finding to eradicate severe blistering disorder of the skin found in dogs
(University of Helsinki) Researchers at the University of Helsinki have identified a novel gene defect that causes a hereditary blistering disorder of the skin, epidermolysis bullosa, in dogs. Epidermolysis bullosa, found in the Central Asian Shepherd dog breed, occurs also in humans due to an identical gene found in both canines and humans. (Source: EurekAlert! - Social and Behavioral Science)
Source: EurekAlert! - Social and Behavioral Science - June 1, 2017 Category: International Medicine & Public Health Source Type: news
11-month-boy suffers from epidermolysis bullosa
Jamie White, from Staffordshire, was born with epidermolysis bullosa (EB) - an incurable condition. It causes his skin to tear at the slightest touch. (Source: the Mail online | Health)
Source: the Mail online | Health - May 26, 2017 Category: Consumer Health News Source Type: news
Meet the 'butterfly' baby
Jamie White, from Staffordshire, was born with epidermolysis bullosa (EB) - an incurable condition. It causes his skin to tear at the slightest touch. (Source: the Mail online | Health)
Source: the Mail online | Health - May 26, 2017 Category: Consumer Health News Source Type: news
Exton firm advancing drug candidate to help 'butterfly children'
Fibrocell Science Inc., a Chester County gene and cell therapy company, is making progress on its experimental treatment to help “butterfly children.”
The Exton company’s lead drug candidate, FCX-007, is being developed to treat a condition known as recessive dystrophic epidermolysis bullosa (RDEB).
The rare skin disease afflicts an estimated 1,100 to 2,500 people, mostly children, nationwide. The condition prevents t he layers of skin from forming properly. As a result, pediatric patients… (Source: bizjournals.com Health Care:Physician Practices headlines)
Source: bizjournals.com Health Care:Physician Practices headlines - May 23, 2017 Category: American Health Authors: John George Source Type: news
Epidermolysis bullosa sufferer, 4, can't be hugged
Jasmine Ritchie has epidermolysis bullosa which makes her skin so delicate that the slightest touch can make it tear. Mother Anna, from Gloucestershire, said: 'She ’s not giving up, so neither will we' (Source: the Mail online | Health)
Source: the Mail online | Health - May 22, 2017 Category: Consumer Health News Source Type: news
Gov. Deal signs medical marijuana expansion
Legislation Gov. Nathan Deal signed Tuesday will add six illnesses to the list of medical conditions that qualify for treatment in Georgia with a form of medical marijuana.
Senate Bill 16 expands access to cannabis oil to Georgians suffering from Tourette's syndrome; autism spectral disorder in the case of adults and severe autism in children; epidermolysis bullosa; severe or end stage Alzheimer's disease, AIDS or peripheral neuropathy; and hospice patients who have been authorized by their physicians… (Source: bizjournals.com Health Care:Physician Practices headlines)
Source: bizjournals.com Health Care:Physician Practices headlines - May 9, 2017 Category: American Health Authors: Dave Williams Source Type: news
Gov. Deal signs medical marijuana expansion
Legislation Gov. Nathan Deal signed Tuesday will add six illnesses to the list of medical conditions that qualify for treatment in Georgia with a form of medical marijuana.
Senate Bill 16 expands access to cannabis oil to Georgians suffering from Tourette's syndrome; autism spectral disorder in the case of adults and severe autism in children; epidermolysis bullosa; severe or end stage Alzheimer's disease, AIDS or peripheral neuropathy; and hospice patients who have been authorized by their physicians… (Source: bizjournals.com Health Care:Biotechnology headlines)
Source: bizjournals.com Health Care:Biotechnology headlines - May 9, 2017 Category: Biotechnology Authors: Dave Williams Source Type: news
