The impact of severe rare chronic neurological disease in childhood on the quality of life of families —a study on MLD and PCH2

Rare and severe neurological disorders in childhood not only heavily affect the life perspective of the patients, but also their caregivers and families. The aim of this study was to investigate the impact of ...

Source: Orphanet Journal of Rare Diseases - May 10, 2021 Category: Internal Medicine Authors: Louisa Ammann-Schnell, Samuel Groeschel, Christiane Kehrer, Saskia Fr ölich and Ingeborg Krägeloh-Mann Tags: Research Source Type: research